Today I am discussing the newly-dropped Global Lipedema Consensus Document that was published by members of the Lipedema World Alliance. (link)

In this comeback of Legs Like Mine, I break down a major new international medical consensus document on lipedema and why it matters so much for our community. This paper calls out what many of us have known for years: lipedema is a chronic disease, it comes with real symptoms like pain, heaviness, swelling, and easy bruising, and it is not the same thing as obesity.

I explain the key highlights in plain language, including why diagnosis is often missed, what the document says about treatment and management, and how this consensus makes it harder for doctors and society to dismiss, misdiagnose, or blame us. This episode is about validation, awareness, and finally having receipts that support what we’ve been saying all along.

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Take action: Email the CDC at ⁠[email protected]⁠ before October 9, 2025 to support the initiative — and ask ten friends or supporters to do the same. Together, our voices can make a lasting impact.

Welcome to Legs Like Mine: The Podcast — where we explore lipedema from a patient’s perspective, break down the latest research, and share real-life experiences of living with this often misunderstood condition.

In this episode, we dive into why ICD-10 codes for lipedema are so urgently needed in the United States. While some argue that ICD-11 will solve the problem eventually, the reality is that the U.S. has no timeline for adopting ICD-11 — leaving patients invisible in the healthcare system.

We’ll cover why diagnosis codes matter for tracking prevalence, ensuring consistency, and building the knowledge bases that guide clinical care. You’ll also hear why “waiting for ICD-11” is not an acceptable answer for patients today.

Take action: Email the CDC at [email protected] before October 9, 2025 to support the initiative — and ask ten friends or supporters to do the same. Together, our voices can make a lasting impact.

Welcome to Legs Like Mine: The Podcast — where we explore lipedema from a patient’s perspective, break down the latest research, and share real-life experiences of living with this often misunderstood condition.In this episode, we’re diving into something that doesn’t get talked about enough: kinesiophobia, the fear of movement, and how it affects people living with lipedema.A new study reveals that 78% of lipedema patients experience kinesiophobia, which can lead to a cycle of inactivity, increased pain, and declining quality of life. But here’s the good news: we’re not stuck. 💪Tune in as we explore:

• What kinesiophobia is and why it’s so common in lipedema

• The emotional and physical impact of avoiding movement
• Real, practical tips to gently and safely overcome that fear
• How to start moving again in a way that supports your body—not punishes itWhether you’re just starting your lipedema journey or looking to reclaim your strength, this episode offers hope, science, and encouragement to help you move forward—literally.Here are some links I promised in the podcast:Free pdf of my book Aqua Therapy for LIpedema and Lymphedema: www.LegsLikeMine.com/books-and-downloadsEdely Wallace - lymphatic Yoga: https://youtu.be/KaB3Vl6qDmg?si=LeaTIaOM2YD-5g_KBook: Hypermobility on the Yoga Mat by Jess Glenny: https://amzn.to/4o8nK4gCheck out the blog on www.LegsLikeMine.com

If you like our content, please consider donating a few dollars to say Hey Thanks for Making this: paypal.com/donate/?hosted_button_id=MQNCDP9HAK5WQ

Research Source:

Kasap Z, Türköz MD, Keleş B, Çilesizoğlu Yavuz N. Unveiling kinesiophobia: A hidden challenge in women with lipedema. Phlebology. 2025 Jul 14:2683555251360606. doi: 10.1177/02683555251360606. Epub ahead of print. PMID: 40660631.

This one is a little bit heavy on the science but what the big takeaway is, is that researchers are looking into our genetics, our bloodwork, and our fat cells, and are learning how to identify lipedema from blood tests, and understanding how our lipedema fat works. The results will surprise you.
No, don't run off and get a blood test or a genetics test just yet, this is early research that will take time, but BIG TIME forward movement is happening thanks to the amazing researchers like Dr. Herbst.
This episode is a must-listen for anyone living with lipedema, a researcher interested in lipedema, or someone supporting someone who does. We dive deep into a game-changing new study published in the journal
In this episode, we broke down an extremely scientific and technical publication down what the study found, including:
How fat cells in early-stage lipedema show dysregulation meaning important fat cell messengers aren't communicating properly.
A surprising discovery about decreased inflammation in lipedema fat tissue, which really changes how we think about the condition.
New insights into altered metabolic processes, and perhaps most exciting – how this research is helping to develop accurate blood-test-based prediction models for lipedema, bringing us closer to objective diagnosis.
This study is a huge step forward in validating our experiences and finding real answers. Tune in to hear how this groundbreaking science is shaping the future for the lipedema community.
#LegsLikeMine #Lipedema #LipedemaAwareness #LipedemaResearch #NewEpisode #Podcast #ChronicIllness #WomensHealth #Hope #Community #lipoedema

As the month progresses, I'm enjoying all of the challenge bits more and more, especially the drinking of water and moisturizing. These are things I needed to be doing. In this episode I also talk about the OKC Thunder, and some progress the American Lipedema Association is making. Check out the blog on www.LegsLikeMine.comIf you like our content, please consider donating a few dollars to say Hey Thanks for Making this: paypal.com/donate/?hosted_button_id=MQNCDP9HAK5WQ

Come sit with me for a while while I tell a tall tale of making call to action videos for national news media and a long lipedema ladies meet up in OKC this weekend. It was good and busy and I'm happy it all happened!

#lipedema #lipoedema #advocacy #community #challenge #lipedemaawarenessmonth

Welcome to Legs Like Mine, the podcast, where we talk about all things lipedema from a patient's perspective. I watch for new research and news about lipedema every day and come to share it with you. And today, we have a major announcement. Aetna is settling outside of a trial on a 6 year old class action case for denying women with lipedema the treatment they need to save mobility, function, and relieve pain. Check out the blog on www.LegsLikeMine.comIf you like our content, please consider donating a few dollars to say Hey Thanks for Making this: paypal.com/donate/?hosted_button_id=MQNCDP9HAK5WQ

Follow along with me to see what I've learned, what challenges I've experienced, and glories gained by going through my own Lipedema Awareness Month challenge.

This week is all about reaching out to BIG media and today I've emailed Mel Robins and Oprah, both my favorites, to ask them to do a show about lipedema, since it does affect 11% of women. It's kind of a big deal.

Hi friends! Wondering how my challenge is going and if I've given up yet? LOL. Join me this Monday morning for an update.

In this episode, I am personally inviting you to join me in the Lipedema Awareness Month Challenge — a 30-day journey designed to raise awareness outside the lipedema community. Why? Because 1 in 9 women may have lipedema, and most will never be correctly diagnosed.

You’ll learn:
✔️ What lipedema really is
✔️ Why it’s not just about weight
✔️ The daily habits in this awareness challenge
✔️ Simple ways YOU can raise awareness, even if you’ve never heard of lipedema before today

Together, we can shine a light on this condition and help more women get the answers they deserve.