This one is a little bit heavy on the science but what the big takeaway is, is that researchers are looking into our genetics, our bloodwork, and our fat cells, and are learning how to identify lipedema from blood tests, and understanding how our lipedema fat works. The results will surprise you.
No, don't run off and get a blood test or a genetics test just yet, this is early research that will take time, but BIG TIME forward movement is happening thanks to the amazing researchers like Dr. Herbst.
This episode is a must-listen for anyone living with lipedema, a researcher interested in lipedema, or someone supporting someone who does. We dive deep into a game-changing new study published in the journal
In this episode, we broke down an extremely scientific and technical publication down what the study found, including:
How fat cells in early-stage lipedema show dysregulation meaning important fat cell messengers aren't communicating properly.
A surprising discovery about decreased inflammation in lipedema fat tissue, which really changes how we think about the condition.
New insights into altered metabolic processes, and perhaps most exciting – how this research is helping to develop accurate blood-test-based prediction models for lipedema, bringing us closer to objective diagnosis.
This study is a huge step forward in validating our experiences and finding real answers. Tune in to hear how this groundbreaking science is shaping the future for the lipedema community.
#LegsLikeMine #Lipedema #LipedemaAwareness #LipedemaResearch #NewEpisode #Podcast #ChronicIllness #WomensHealth #Hope #Community #lipoedema

As the month progresses, I'm enjoying all of the challenge bits more and more, especially the drinking of water and moisturizing. These are things I needed to be doing. In this episode I also talk about the OKC Thunder, and some progress the American Lipedema Association is making. Check out the blog on www.LegsLikeMine.comIf you like our content, please consider donating a few dollars to say Hey Thanks for Making this: paypal.com/donate/?hosted_button_id=MQNCDP9HAK5WQ

Come sit with me for a while while I tell a tall tale of making call to action videos for national news media and a long lipedema ladies meet up in OKC this weekend. It was good and busy and I'm happy it all happened!

#lipedema #lipoedema #advocacy #community #challenge #lipedemaawarenessmonth

Welcome to Legs Like Mine, the podcast, where we talk about all things lipedema from a patient's perspective. I watch for new research and news about lipedema every day and come to share it with you. And today, we have a major announcement. Aetna is settling outside of a trial on a 6 year old class action case for denying women with lipedema the treatment they need to save mobility, function, and relieve pain. Check out the blog on www.LegsLikeMine.comIf you like our content, please consider donating a few dollars to say Hey Thanks for Making this: paypal.com/donate/?hosted_button_id=MQNCDP9HAK5WQ

Follow along with me to see what I've learned, what challenges I've experienced, and glories gained by going through my own Lipedema Awareness Month challenge.

This week is all about reaching out to BIG media and today I've emailed Mel Robins and Oprah, both my favorites, to ask them to do a show about lipedema, since it does affect 11% of women. It's kind of a big deal.

Hi friends! Wondering how my challenge is going and if I've given up yet? LOL. Join me this Monday morning for an update.

In this episode, I am personally inviting you to join me in the Lipedema Awareness Month Challenge — a 30-day journey designed to raise awareness outside the lipedema community. Why? Because 1 in 9 women may have lipedema, and most will never be correctly diagnosed.

You’ll learn:
✔️ What lipedema really is
✔️ Why it’s not just about weight
✔️ The daily habits in this awareness challenge
✔️ Simple ways YOU can raise awareness, even if you’ve never heard of lipedema before today

Together, we can shine a light on this condition and help more women get the answers they deserve.

In this episode I'm talking about my success yesterday, sharing lipedema stuff on an influencer's page (Jeremiah Daniel Johnson on FB), using AI to write songs using Suno AI, and how I used DALL-E image generation to illustrate my children's book and one of my coffee table books featuring women with lipedema.

Here's a link to my author page on Amazon where I use my real name (I have a lot of books under a pen name too, lol!): https://www.amazon.com/stores/Susan-OHara/author/B09Y3RTDN3?ref=sr_ntt_srch_lnk_1&qid=1749230122&sr=8-1&isDramIntegrated=true&shoppingPortalEnabled=true&ccs_id=00c25536-62e3-4fa5-affa-967be3c0799f

Here's a link to the books I'm reading about AI: Prediction Machines: https://amzn.to/3SF9jWYAI 2041: https://amzn.to/444hx1g

Here's a link to some of my shoes from LegsLikeMine: https://www.LegsLikeMine.com/productsCheck out the blog on www.LegsLikeMine.com

If you like our content, please consider donating a few dollars to say Hey Thanks for Making this: paypal.com/donate/?hosted_button_id=MQNCDP9HAK5WQ

Today's video goes over my personal Lipedema Awareness Month Challenge consisting of seven things I want to do this month. And on day 4, I missed the mark by 1 out of seven. Which one will it be?Check out the blog on www.LegsLikeMine.comIf you like our content, please consider donating a few dollars to say Hey Thanks for Making this: paypal.com/donate/?hosted_button_id=MQNCDP9HAK5WQPS: Because some of you asked - here is a link to the MEGA thing of protein powder I am showing. Tasted pretty good. https://amzn.to/3ZdZBP6

🎧 Welcome to Legs Like Mine: The Podcast — where we explore lipedema from a patient’s perspective, break down the latest research, and share real-life experiences of living with this often misunderstood condition.

In today’s episode, host Susan O’Hara shares what she’s discovered while scanning PubMed every single day for new lipedema research — and why so many recent studies seem to repeat the same thing:🧐 “We need more research.”📉 “Tools are inconsistent.”🧪 “There’s no standard protocol.”

Susan highlights the growing number of systematic reviews in the lipedema space — papers that analyze existing research without contributing new data — and reads directly from the latest one published in Obesity Reviews in May 2025:📚

Cifarelli V. Lipedema: Progress, Challenges, and the Road Ahead. Obes Rev. 2025 May 27:e13953.👉https://pubmed.ncbi.nlm.nih.gov/40425048/

And she directly quotes an older research study:

Eason HE, Kilbreath SL, Fearn N, Dylke ES. Assessment Tools to Quantify the Physical Aspects of Lipedema: A Systematic Review. Lymphat Res Biol. 2025 Mar 5. doi: 10.1089/lrb.2024.0102. Epub ahead of print. PMID: 40042124.

🎙 If you're frustrated with slow progress in lipedema care — or curious about how research gets done and why it matters — this is an episode you won't want to miss.🦵 Let’s talk about what’s missing, what’s promising, and how patients can stay informed in a sea of reviews with no real conclusions.

Check out the blog on www.LegsLikeMine.comIf you like our content, please consider donating a few dollars to say Hey Thanks for Making this: paypal.com/donate/?hosted_button_id=MQNCDP9HAK5WQ