Let's Talk About The POTS life

In this episode, Ryenn shares her journey from misdiagnosis to managing POTS and vascular conditions, highlighting the importance of persistence, proper diagnosis, and lifestyle modifications. Her story offers hope and practical insights for others navigating similar health challenges.

In this episode, Ryenn shares her journey from misdiagnosis to managing POTS and vascular conditions, highlighting the importance of persistence, proper diagnosis, and lifestyle modifications. Her story offers hope and practical insights for others navigating similar health challenges.

This episode is sponsored by Re-Lyte Hydration Electrolyte Powder.

Click on the link below and use the code: KELSEY to receive 15% off your first order.

redmond.com/kelsey

If you want more information about what Dr. Kelsey can do for your POTS journey:

https://thepotslife.com/

This podcast was produced and edited by Ashlyne Blue at Small Batch Sound.

https://www.smallbatchsound.com/

In this episode, Kelsey and her husband Cale discuss the journey of living with POTS, diagnosis, treatment, and how it has impacted their family life. They share insights, challenges, and advice for others navigating similar experiences.

Living with chronic pain, hypermobility, POTS, or other complex conditions can make it difficult to connect the dots. In this episode, I sit down with Dr. Linda Bluestein, a board-certified physician specializing in connective tissue disorders, to discuss the connections between hypermobility, Ehlers-Danlos syndrome (EDS), POTS, mast cell disorders, and chronic pain.

Dr. Bluestein shares her personal journey, why these conditions are so often missed, common misconceptions, and practical strategies for improving quality of life. We also discuss her MEN'S PMMS framework and the importance of individualized, patient-centered care.

Whether you're newly diagnosed, supporting a loved one, or a healthcare professional looking to better understand these conditions, this conversation offers education, validation, and hope.

Connect with Dr. Linda Bluestein:

• Website: https://www.hypermobilitymd.com
• Instagram: @hypermobilitymd
• Podcast: Bendy Bodies with Dr. Linda Bluestein

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Receiving a POTS diagnosis can be both validating and overwhelming. After finally getting answers, many people are surprised to learn there isn't a quick fix and that managing POTS often requires consistent lifestyle changes over time.

In this episode, we talk about the emotional side of life after diagnosis, including grieving your old life, learning to let go of constantly pushing through, and building a support system that truly understands what you're going through. We also discuss practical strategies for focusing on what you can control, including hydration, electrolytes, gradual exercise, and creating habits that support long-term improvement.

If you're newly diagnosed or still learning to navigate life with POTS, this episode is a reminder that you're not alone and that while the journey isn't easy, it can get better.

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Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy.

In this episode of Let's Talk About the POTS Life, Kelsey sits down with Dr. Seeley to discuss her journey from developing POTS after a post-viral illness in 1993 to helping change the future of care for people living with POTS and dysautonomia around the world.

Together, they discuss:

• Dr. Seeley's personal journey with POTS
• Why so many patients are dismissed or misdiagnosed
• The connection between POTS, Ehlers-Danlos syndrome (EDS), and hypermobility
• Why women with POTS often face unique challenges in healthcare
• Why we're experiencing an "epidemic of recognition," not an epidemic of POTS
• The future of POTS research, advocacy, and patient care

Whether you're newly diagnosed or have been living with POTS for years, this conversation offers insight, validation, and hope from someone who understands the condition from every perspective as a patient, clinician, researcher, and advocate.

Learn more about the Australian POTS Foundation: https://potsfoundation.org.au

Connect with Us:

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Facebook: The POTS Life

Instagram: @thepotslife_

Tik Tok: thepotslife

How do you start trusting your body again after a POTS diagnosis?

In this episode, Kelsey and Brit talk about the fear of doing everyday activities when your symptoms feel unpredictable. From weddings and travel to summer events and driving, they discuss practical ways to prepare, pace yourself, and build confidence as your body changes and improves.

They also dive into the connection between POTS and anxiety, why progress isn't always linear, and how small wins can help you regain trust in yourself over time.

Whether you're newly diagnosed or further along in your journey, this episode is a reminder that fear doesn't have to make the decisions.

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Facebook: The POTS Life

Instagram: @thepotslife_

Tik Tok: thepotslife

What is the connection between POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility?

In this episode, I sit down with Dr. Cohen Solomon, board-certified pediatrician, educator, and patient living with hEDS and dysautonomia. We discuss the overlap between POTS, EDS, chronic pain, fatigue, GI symptoms, and why so many patients struggle to find answers.

We also talk about recognizing early signs of hypermobility, building the right healthcare team, advocating for yourself, and why validation matters when living with a complex chronic illness.

Whether you're a patient, parent, or healthcare provider, this episode offers practical insights and hope for navigating the journey.

Follow Dr. Solomon: @thebendypediatrician

Learn More: https://thebendypediatrician.com/

Connect with Us:

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Facebook: The POTS Life

Instagram: @thepotslife_

Tik Tok: thepotslife

Timestamps

• 00:00 Introduction
• 03:16 Living with hEDS & Dysautonomia
• 05:43 Early Signs of Hypermobility in Children
• 10:36 Understanding EDS & Hypermobility
• 12:14 Pain, Fatigue & Invisible Illness
• 22:32 The Connection Between POTS & EDS
• 23:22 Why Patients Need a Healthcare "Quarterback"
• 28:58 GI Symptoms, Dysmotility & EDS
• 31:51 The Importance of Validation
• 33:51 Building the Right Care Team
• 36:33 Tips for Advocating for Yourself
• 41:40 The UVA EDS & Hypermobility Clinic
• 46:05 Advice for Newly Diagnosed Patients
• 47:20 Finding Hope

In this episode of Let’s Talk About The POTS Life, we sit down with Joanna Behm, occupational therapist, dysautonomia advocate, and co-author of The Dysautonomia Workbook. Joanna shares her personal journey to diagnosis, the challenges of living with POTS, MCAS, and hEDS, and the work she does through the Dysautonomia Support Network (DSN) to help others feel more supported and informed.

We also talk about practical tools for managing daily life with dysautonomia, including pacing, symptom tracking, accommodations, mental health, and building a better quality of life while navigating chronic illness.

About DSN: Dysautonomia Support Network is a nonprofit dedicated to supporting and empowering those with dysautonomia through education, resources, and community. Learn more at dysautonomiasupport.org.

Workbook:
The Dysautonomia Workbook: A Guide to Empowered Living
https://www.dysautonomiasupport.org/product/the-dysautonomia-workbook-a-guide-to-empowered-living/

Follow DSN:
Instagram: @dyssupport
YouTube: @DysSupport
Facebook: Dysautonomia Support Network

Connect with Joanna:
LinkedIn: Joanna Behm

If you’ve recently been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), it can feel overwhelming figuring out what actually helps.

In this episode, we break down what to focus on early and what to avoid.

We talk through common mistakes after a POTS diagnosis, including over-relying on water without enough sodium, falling for “electrolyte” products that don’t contain meaningful salt, and making drastic diet changes too quickly. We explain how to approach hydration and electrolytes more effectively, including why sodium matters and how to start building tolerance.

We also cover nutrition myths, why cutting multiple foods at once can backfire, and how to use simple tracking to identify real triggers. On the movement side, we walk through why exercise is still important with POTS and how to approach it in a low, slow, and sustainable way to avoid worsening symptoms.

If you’re feeling stuck, overwhelmed, or unsure where to start, this episode will help you take your next step with more clarity.

Timestamps:

00:00 What to do after a POTS diagnosis

01:20 Common mistakes early on

02:45 Electrolytes vs water (what actually helps)

04:50 How much sodium you need

07:10 Choosing the right electrolyte options

09:20 Why cutting foods too quickly backfires

10:20 How to track food triggers

12:00 MCAS + food sensitivities

14:20 Salt myths explained

15:30 Why movement matters with POTS

17:00 How to start exercise safely

19:00 Support, structure, and community

21:30 Final thoughts + next steps

Connect with Us:

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Facebook: The POTS Life

Instagram: @thepotslife_

Tik Tok: thepotslife

GI symptoms, pain clues, and why a consult matters

In this episode of Let’s Talk About the POTS Life, we break down the connection between POTS and pelvic floor dysfunction and why it’s often overlooked.

We cover common “beige flags” like GI issues (IBS, bloating, constipation/diarrhea cycles, gastroparesis), bladder symptoms (chronic UTIs, straining to pee), and unexplained pelvic or low back pain. We also touch on tension patterns (like teeth grinding) and conditions like endometriosis and hypermobility.

This episode highlights how pelvic floor therapy can fit into a bigger picture approach alongside POTS care, GI support, and mental health.

If you feel like your symptoms aren’t fully adding up, this might be a missing piece.

Episode breakdown:

00:00 Pelvic Floor Meets POTS

00:40 Why They Overlap

02:09 GI Red Flags Explained

03:59 Tension and Constipation Cycle

05:13 Movement and Digestion Tips

06:45 UTIs and Peeing Strain

09:03 Pain, Endo, and Hypermobility

11:06 Consults and Team Approach

13:02 Finding the Right PT

14:10 Program Modifications Together

14:50 Wrap Up