In this episode of 'Let's Talk About the POTS Life,' Arielle shares her compelling journey with Postural Orthostatic Tachycardia Syndrome (POTS). Diagnosed at 12, Arielle recounts her initial symptoms, the challenges of finding the right medical support, and the invaluable role her parents played in her recovery. She discusses her experiences with various treatments, medications, and the importance of staying motivated. Ariel's story emphasizes the significance of a robust support system and sheds light on her growth, both physically and emotionally, as she navigates college life and looks towards the future.

00:00 Introduction to the POTS Life Podcast

01:14 Arielle's Early Diagnosis Journey

03:29 Challenges and Support from Family

06:21 High School Struggles and Finding Dr. Abdullah

07:14 Navigating High School with POTS

11:01 Transition to College and Beyond

18:14 Recognizing Improvement in Health

18:58 Balancing Activities and Health

19:50 Medication Management

23:14 Transitioning to Physical Activities

25:11 Living with POTS: Challenges and Progress

29:44 Advice for the Newly Diagnosed

32:42 Support Systems and Final Thoughts

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In this episode of 'Let's Talk about the POTS Life,' the hosts welcome Ashley Schuetz, a dual-certified Family and Psychiatric Mental Health Nurse Practitioner. Ashley shares her journey from cosmetology to the medical field and her extensive experience working in the Pittsburgh Public Schools. The discussion dives into the intersections of mental health and chronic illness, particularly POTS, emphasizing the importance of validating symptoms, the struggles of navigating multiple diagnoses, and the crucial role of community and support. The conversation also highlights the increase in diagnoses of ADHD, OCD, and anxiety, especially post-COVID, and provides advice for parents on advocating for their children's health. Tune in for valuable insights on managing chronic illnesses and mental health holistically.

00:00 Introduction to the POTS Life Podcast

00:23 Meet Our Guest: Ashley Schuetz, CRNP

00:59 Ashley's Journey into Nursing

02:55 Mental Health and COVID-19

04:45 Challenges in Diagnosing Chronic Illnesses

06:53 Supporting Children with Chronic Illnesses

08:09 The Importance of Validation and Advocacy

10:54 Navigating the Medical System

16:39 The Role of Community and Support

19:30 Post-COVID Mental Health Trends

21:41 Understanding OCD and ADHD Symptoms

22:21 The Importance of Treating Symptoms, Not Diagnoses

22:44 The Impact of Mental Health on Daily Life

23:36 The Role of Therapy and Medication

25:24 Breaking the Stigma Around Mental Health

26:30 The Necessity of Mental Health Professionals

28:07 The Benefits of Comprehensive Care

31:08 Specialized Care for Students

33:47 Raising Awareness About POTS

35:19 Final Thoughts and Contact Information

Connect with Ashley:

Ashley Schuetz, CRNP | Fine Tune Psychiatry

Psychiatric Care for Children, Teens & Adults | Fine Tune Psychiatry

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Instagram: @thepotslife_

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In this episode of 'Let's Talk About the POTS Life,' the hosts delve into the frequently asked questions surrounding the Tilt Table Test, a crucial diagnostic procedure for POTS (Postural Orthostatic Tachycardia Syndrome). They explain what the test involves, who typically orders it, and its importance in diagnosing POTS. The discussion also covers personal experiences with the test, how to prepare for it, and tips for managing the aftereffects. Listeners are advised on how to navigate the healthcare system to get a proper diagnosis and the importance of finding the right medical team for ongoing support.

00:00 Introduction to the POTS Life Podcast

00:34 Understanding the Tilt Table Test

01:01 Preparing for the Tilt Table Test

05:23 Experiencing the Tilt Table Test

10:57 Post-Test Reactions and Advice

15:09 Alternative Diagnosis Methods

18:44 Living with POTS: Next Steps

21:56 Conclusion and Support

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Welcome to a special holiday edition of 'Let's Talk About the POTS Life.' In this episode, we share essential tips and tricks to navigate the holiday season while managing Postural Orthostatic Tachycardia Syndrome (POTS). We discuss the importance of maintaining routines, prioritizing exercise, staying hydrated, and eating consistent small meals. Additionally, we emphasize the significance of self-care and flexibility during this festive yet chaotic time. Join us for practical advice to keep your POTS symptoms at bay and learn about our supportive POTS Life Program to start the new year strong.

00:00 Welcome to the POTS Life Holiday Edition

00:35 Managing Holiday Stress with POTS

01:08 Maintaining Routines and Exercise

02:21 Importance of Hydration and Nutrition

05:07 Grace and Flexibility During the Holidays

05:41 Join the POTS Life Program in the New Year

06:45 Conclusion and Holiday Wishes

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The POTS Life

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In this episode of 'Let's Talk About the POTS Life,' Lindsey, a graduate of the POTS Life program, shares her journey from a sudden onset of symptoms to diagnosis and eventual recovery. Diagnosed post-Thanksgiving 2023, Lindsey recounts her struggles with various symptoms, misdiagnoses, and numerous doctor visits before finding the POTS Life program.

Lindsey discusses her initial skepticism, the challenges, and the support she found within the community. She emphasizes the importance of consistency, even when feeling unwell, and shares the progress she made through the program. Offering hope and encouragement, Lindsey's story highlights the potential for improvement and a changed perspective on life after managing POTS.00:00 Introduction and Welcome00:23 Meet Lindsey: A POTS Life Graduate01:41 Lindsey's Journey to Diagnosis04:09 Life Before and After POTS Diagnosis08:26 The POTS Life Program Experience12:52 Overcoming Setbacks and Finding Support18:56 Advice for Newcomers and Final Thoughts23:20 Conclusion and Farewell

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In this episode of 'Let's Talk about the POTS Life,' the hosts discuss the importance of balancing rest and activity for those living with Postural Orthostatic Tachycardia Syndrome (POTS).

The episode highlights why excessive rest can be detrimental and provides practical tips for gradually increasing activity levels. They share real-life examples of patients who have improved their conditions by incorporating small, structured movements and making lifestyle adjustments. Emphasizing the need for personalized approaches, the hosts offer advice on how to rest effectively, manage fatigue, and integrate gradual physical activity to improve overall well-being.00:00 Introduction to the POTS Life Podcast00:24 The Importance of Rest01:58 Understanding Fatigue in POTS03:16 Personal Stories and Progress04:41 Tips for Managing POTS07:14 The Role of Sleep and Napping14:40 Small Steps to Improvement19:39 Final Thoughts and Encouragement20:00 Closing Remarks

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www.thepotslife.com

In this episode of 'Let's Talk About the POTS Life,' we dive into the intersection of living with POTS and planning a Disney vacation. The hosts share personal experiences and practical advice for preparing, traveling, and enjoying Disney while managing POTS symptoms. Topics include packing essentials, hydration strategies, handling stress and adrenaline, and ensuring you stay on track with your health routines.

Whether you're a first-time traveler or a Disney regular, these tips aim to help you make the most of your trip without sacrificing your wellbeing.

00:00 Introduction to the POTS Life Podcast

00:32 Preparing for a Disney Trip with POTS

02:36 Managing Symptoms and Enjoying Disney

03:28 Travel Tips and Personal Experiences

04:48 Packing and Hydration Strategies

09:12 Navigating Disney with POTS13:15 Rides and Sensory Experiences

15:20 Discussing Ride Preferences and Disney Experiences

16:31 Tips for Staying Hydrated at Disney

17:14 Importance of Regular Meals and Snacks

18:15 Managing Exercise and Activity Levels1

9:43 The Value of a Buffer Day After Vacation

24:30 Encouragement to Travel Despite Health Concerns

26:51 Final Thoughts and Encouragement

In this Thanksgiving episode of 'Let's Talk About the POTS Life,' the hosts share practical tips for managing the holiday season while living with POTS. They discuss the importance of eating small, balanced meals throughout the day, staying hydrated, and maintaining a manageable routine. They also highlight the need for moderation, especially when it comes to alcohol, and the value of communicating your needs with family. The episode emphasizes enjoying the moment, not striving for perfection, and giving yourself grace if things don't go as planned.00:00 Introduction and Welcome00:27 Navigating Holiday Stress01:27 Thanksgiving Tips and Tricks01:46 Moderation and Nutrition05:02 Hydration and Sensory Overload05:56 Alcohol and Socializing08:29 Exercise and Routine10:04 Final Thoughts and Encouragement11:09 Conclusion and Farewell

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In this episode of 'Let's Talk About the POTS Life,' the hosts discuss why recumbent exercise is a fundamental part of the POTS Life program. They explain the scientific reasoning and practical benefits behind starting with recumbent biking instead of more traditional forms of exercise. They also discuss how the program can be customized to meet various needs, answer common questions about modifications, and emphasize the importance of adapting the plan to individual circumstances. Whether you're a seasoned athlete or just beginning your journey with POTS, this episode provides valuable insights and encouragement for managing the condition effectively.
00:00 Introduction to the POTS Life Podcast
00:25 Understanding the Importance of Recumbent Exercise
01:11 Challenges and Misconceptions in POTS Treatment
05:49 The Role of Biking in POTS Recovery
10:44 Customizing Your POTS Life Program
16:39 Conclusion and How to Get Started

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Website: www.thepotslife.com
Instagram: @thepotslife_
Facebook & TikTok: The POTS Life

In this episode of Let’s Talk About The POTS Life, host Dr. Kelsey Botti and Britney sit down with Dr. Erin Nance, an orthopedic hand surgeon based in New York City, better known to her close to 1M followers as @littlemissdiagnosed.

Dr. Nance shares how her personal journey with chronic illness inspired her to raise awareness about commonly misunderstood and misdiagnosed conditions—including POTS (Postural Orthostatic Tachycardia Syndrome). Together, they unpack what it’s like to navigate the medical system as both a physician and a patient, the emotional stages of misdiagnosis, and how empowering patients with credible information can change the future of chronic illness care.

They also explore FeelBetr, Dr. Nance’s new digital platform connecting patients with reliable, physician-approved health information and community support.

Tune in for an honest, uplifting, and informative conversation about the intersection of patient advocacy, medical education, and the power of social media in reshaping chronic illness awareness.

00:00 Introduction and Welcome
00:24 Meet Dr. Erin Nance
01:02 The Power of Social Media in Diagnosis
02:28 The Importance of Patient Experience
03:53 Challenges in Diagnosing POTS
06:32 Understanding Perimenopause and Menopause
08:34 The Role of Health Literacy
14:05 The Emotional Journey of Misdiagnosis
18:20 The Need for Credible Health Information
20:49 Introducing the Feel Better App
24:03 The Power of Short-Form Content
24:33 Creating a Space for Conversation
25:38 The Role of Social Media in Medical Information
26:20 Going Viral with Engaging Content
28:41 Combating Medical Misinformation
31:13 The Importance of Patient Stories
34:39 Challenges in Diagnosing Complex Conditions
41:33 Conclusion and Final Thoughts

Connect with Dr. Erin Nance

Instagram & TikTok: @littlemissdiagnosed
Website: https://www.nancemd.com
App: FeelBetr -- https://www.feelbetr.health/

Connect with The POTS Life

Website: www.thepotslife.com
Instagram: @thepotslife_
Facebook & TikTok: The POTS Life