Meet Hannah Keime from HeartCharged. Diagnosed with a genetic heart condition at just 14, Hannah gets real about the challenges of an invisible illness and explains why she started HeartCharged. She opens up about showing her scars and sharing the raw, unfiltered truth of her patient journey to build a supportive global community for young people.

Her story is a powerful blend of vulnerability, resilience, and life-saving advocacy.

Find Hannah and Bethany's work ⁠ @heartcharged ⁠ on Instagram. Tune now.

#LetsTalkSADSLive #SADSCanada #HeartCharged #Cardiomyopathy #ICD #InvisibleIllness #PatientAdvocacy #HeartHealth

The Road to Recovery after a Cardiac Storm

In this powerful first episode of the new patient-driven Let’s Talk SADS Live, Sally Gilbert shares her journey of living with exercise-induced ARVC and the emotional aftermath of surviving multiple ICD shocks during a cardiac event earlier this year.

Sally opens up about the fear and uncertainty that followed, and how she’s learned to cope, rebuild her confidence, and move forward one day at a time. Her story is one of strength, resilience, and the importance of community support for those living with inherited heart rhythm conditions.

Listen as Sally brings honesty and hope to the conversation on recovery after sudden cardiac events.

Join the Canadian SADS Foundation for the 35th episode of Let’s Talk SADS Live with Dr. Andrew Krahn, as we take a closer look at Long QT Syndrome and what it means for patients and families.This episode will explore the latest understanding of Long QT Syndrome, from diagnosis and risk assessment to management and family screening. Dr. Krahn will share insights from his clinical and research experience on how we can better identify individuals at risk, prevent sudden cardiac events, and support those living with this inherited arrhythmia.Dr. Andrew Krahn is a Professor in the Division of Cardiology at the University of British Columbia. He specializes in inherited arrhythmia syndromes, with a particular focus on Long QT Syndrome and other genetic heart rhythm disorders. Through his leadership in research and clinical care and the Hearts in Rhythm Organization (HiRO, pronounced hero), Dr. Krahn has been at the forefront of improving outcomes for individuals and families affected by inherited cardiac conditions.This episode of Let’s Talk SADS Live takes an in-depth look at Long QT Syndrome and provides valuable knowledge for patients, families, and healthcare providers working together to reduce the risks of SADS.

Join us for our first pre-recorded episode! In episode 34 of Let’s Talk SADS Live, we sit down with Dr. Andrew Landstrom to explore the promise and progress of gene therapy for inherited arrhythmia syndromes. This episode dives into how gene therapies are being developed to treat conditions such as Long QT Syndrome, CPVT, and Brugada Syndrome, and what this means for families affected by SADS. From understanding how these therapies work to what’s on the horizon in clinical research, Dr. Landstrom will help break down the science and share insights into what the future may hold.

Join the Canadian SADS Foundation for the 33rd episode of Let’s Talk SADS Live, where we’ll be joined by Dr. Danna Spears to explore Managing Pregnancy with a SADS Condition. This episode will focus on the unique challenges and important considerations for individuals with inherited arrhythmia syndromes as they plan for and go through pregnancy. From risk assessment to delivery planning, we’ll take a closer look at how to support safe and informed decision-making throughout the process.Dr. Danna Spears is a cardiac electrophysiologist at the University Health Network and Associate Professor of Medicine at the University of Toronto. With a clinical and research focus on inherited heart rhythm disorders, Dr. Spears works closely with individuals and families affected by Long QT Syndrome, CPVT, Brugada Syndrome, and related conditions. She has been instrumental in developing care models that bring together cardiology, genetics, and reproductive health to support women navigating pregnancy with a SADS condition.This episode of Let’s Talk SADS Live explores pregnancy with SADS conditions and what it means to plan for a family while living with a genetic heart rhythm condition.

Join the Canadian SADS Foundation for the 32nd episode of Let’s Talk SADS Live, where we’ll be joined by Dr. Lauren Schneider to explore the Impact of SADS Conditions on Mental Health and Wellbeing. This episode will highlight how anxiety, trauma, and uncertainty can affect overall wellbeing, and why integrating mental health support into cardiac care is so critical.Dr. Lauren Mikula Schneider is a Clinical Professor of Psychiatry and Behavioral Sciences and Pediatrics at Stanford University, and a pediatric psychologist at Lucile Packard Children’s Hospital Stanford. She works closely with children and families affected by congenital heart disease, arrhythmias, and transplant needs, offering specialized support through the Medical Coping and Wellness Clinic. Dr. Schneider’s work focuses on how chronic illness intersects with psychological development, and she is a leading voice in developing strategies to promote resilience and emotional wellbeing in pediatric cardiac care.This episode of Let’s Talk SADS Live is an excellent opportunity for patients and families to better understand the impact of mental health on living with a SADS condition, and to explore strategies for emotional wellbeing, resilience, and support.

Join the Canadian SADS Foundation Live for the 31st episode of Let’s Talk SADS Live, hosted by Dr. Shubhayan Sanatani. In this episode, we’ll be speaking with Dr. Dominic Abrams about Arrhythmogenic Right Ventricular Cardiomyopathy, exploring how genetics, exercise, and evolving diagnostic strategies play a role in identifying and managing this complex inherited heart condition.Dr. Dominic Abrams is a pediatric electrophysiologist at Boston Children’s Hospital and an Associate Professor of Pediatrics at Harvard Medical School. With specialized expertise in inherited arrhythmia syndromes and cardiomyopathies, Dr. Abrams leads multidisciplinary efforts focused on the diagnosis, risk assessment, and management of genetic heart rhythm conditions in children and young adults. He is actively involved in clinical research and international collaborations that aim to advance our understanding of sudden cardiac arrest and inherited cardiovascular disease. Widely respected for his clinical insight and patient-centered approach, Dr. Abrams is committed to improving outcomes and supporting families impacted by conditions under the SADS spectrum.This episode of Let’s Talk SADS Live is an excellent opportunity for patients and families to become more informed on how this vital system influences heart rhythms and its role in SADS conditions.

In this episode, we will be speaking with Dr. Victoria Claydon on the Autonomic Nervous System and fainting spells (or syncopal episodes) and whether, in rare cases, it can contribute to irregular heart beats associated with a phenomenon known as “autonomic conflict”.Dr. Victoria Claydon is a professor in the Department of Biomedical Physiology and Kinesiology at Simon Fraser University (SFU). She earned her B.Sc. (Hons) in Physiology in 1998 and completed her Ph.D. in Cardiovascular Physiology in 2001. Dr. Claydon leads the Cardiovascular Physiology Laboratory at SFU, where her research focuses on cardiovascular physiology and pathophysiology, with particular interests in cerebrovascular control, the autonomic nervous system, spinal cord injury, and syncope.

Join us for the 29th episode of Let's Talk SADS Live, hosted by Dr. Shubhayan Sanatani. In this episode, we will be speaking with Dr. Robert Avram on the uses of AI in healthcare, and how this will affect the future of SADS conditions. Dr. Avram has completed an AI fellowship at UCSF and an Interventional Cardiology fellowship in Ottawa. He is currently a clinician and researcher at the Montreal Heart Institute affiliated with the University of Montreal where he leads the Heartwise.ai laboratory to develop, validate and deploy AI Algorithms in healthcare and cardiology.

Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us on Episode 28 of Let's Talk SADS Live with guest Dr. Georgia Brugada of SJD Barcelona Children’s Hospital. Dr Georgia Brugada is a specialist in pediatric arrhythmias, family cardiology, and sudden death at the Cardiology Department of the SJD Barcelona Children's Hospital. For a number of years, she was an attending physician in congenital heart diseases at the Hôpital Necker Enfants Malades and at the Hospital Européen George Pompidou, in Paris.

Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/