Let's Talk SADS Live

From unexpected heart failure at 23 to founding a national patient community.

Today we are speaking with Marc Bains, co-founder of HeartLife Foundation. He shares his powerful journey from diagnosis to transplant and into advocacy. This episode explores how community, research, and patient partnership can transform life after a devastating cardiac diagnosis and why building support is critical for anyone living with heart disease.

To hear the full story of resilience and how Heart Life was born, listen now on all platforms:

Facebook - https://tinyurl.com/CanadianSADSFacebook

YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube

⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠

Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠

Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠

Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠

#SADS #HeartFailure #Cardiomyopathy #HeartTransplant #GeneticHeartCondition #Cardiology #InheritedArrhythmia #PatientAdvocacy #HeartHealth #HeartLife #SurvivorStory #LivingWithHeartDisease #PatientPartner #HeartResearch #CanadianHealth

What if we rebranded exercise with a SADS condition as play?

Join us as health coach Janet Omstead shares her joyful approach to building a sustainable movement and exercise routine. This episode dives into practical strategies to overcome fear, find motivation, and rediscover the pleasure of moving within your limits.

To build a complete and safe foundation, we recommend listening to part 1 of this 2 part exercise series featuring pediatric cardiologist Dr. Robert Hamilton.

Listen to this episode now:
YouTube - https://tinyurl.com/CanadianSADSYouTube
Instagram - https://tinyurl.com/CanadianSADSInstagram
Spotify - https://tinyurl.com/CanadianSADSSpotify
Apple - https://tinyurl.com/CanadianSADSApple
Amazon - https://tinyurl.com/CanadianSADSAmazon

#SADS #BrugadaSyndrome #CPVT #LongQT #ARVC #HypertrophicCardiomyopathy #Cardiology #InheritedArrhythmia #ExerciseWithHeart #HeartHealth #HealthCoach #BehaviorChange #Play #JoyfulMovement #LivingWithSADS

What if your diagnosis didn't mean you had to give up the sports and activities you love? 

Pediatric cardiologist Dr. Robert Hamilton challenges decades of fear with a new, empowering message for the SADS community: "Complete restriction is just not healthy."

Drawing from the latest patient data and his extensive clinical practice, Dr. Hamilton explains how exercise recommendations for inherited arrhythmia conditions have evolved. He provides clear, practical guidance on safely staying active, from recreational sports to high-intensity training, and tackles the tough questions about ICD shocks, overheating, and finding your personal limits.

This is Part 1 of a two-part series on Exercise & SADS. Dr. Hamilton provides the essential medical framework and permission to move. To turn this knowledge into action, don't miss Part 2 with health coach and behavior change expert Janet Omstead, who shares practical and inspirational strategies to build motivation, overcome mental hurdles, and create a sustainable, joyful exercise routine.

Listen and follow on our socials!
YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠
Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠
Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠
Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠
Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠

#SADS #Cardiology #InheritedArrhythmia #ExerciseWithHeart #HeartHealth #CPVT #LongQT #ARVC #HypertrophicCardiomyopathy #BrugadaSyndrome #AthleteHeart #ICD #LivingWithSADS #CardiacRehab #HeartPodcast #ExerciseMotivation #BehaviorChange

What if the greatest gift for your family wasn't something you could wrap? Yvonne Heath, author of "Live Your Life to Death", explains why preparing for the end of life is an essential act of love. She shares powerful stories from the bedside, revealing the profound peace that comes with planning and the heartbreaking conflict that arises without it.

This conversation is a powerful call to normalize end-of-life planning, to "just show up" for ourselves and our loved ones, and to embrace proactive living over reactive crisis.

To learn more about Yvonne’s transformative practices or to purchase her books, visit her website at https://yvonneheath.com/shop. As a generous supporter of our community, Yvonne has offered to donate 25% of each sale to the Canadian SADS Foundation when you leave the message "SADS" in the contact section on her website after your purchase.

Listen and follow on our socials!

Facebook - https://tinyurl.com/CanadianSADSFacebook

YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube

⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠

Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠

Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠

Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠

#EndOfLifePlanning #DifficultConversations #Legacy #GriefAndJoy #ProactiveLiving #FamilyFirst #JustShowUp #SADSCanada #LifeAndDeath

Having your life's dream taken away in an instant is a reality Brett MacLean faced at 23.

A professional hockey player who had just scored in the NHL, Brett's career ended with a sudden cardiac arrest on the ice. In this powerful conversation, he shares his story of survival, from waking up with no memory of his hockey career to grappling with the profound loss of his identity. This conversation is a powerful testament to the importance of CPR/AED training and the human capacity for resilience. Brett’s story is not just about an ending, but about a new beginning.

#CardiacArrest #SuddenCardiacArrest #HeartHealth #CPRSavesLives #AED #LifeAfterSports #AthleteMentalHealth #NewBeginnings #NHL

For Lia Olmsted, the discovery that her children had Brugada Syndrome came after the devastating loss of her 21-month-old daughter, Reese. In this heartfelt conversation, Lia shares the realities of parenting a child with a life-altering condition, the critical importance of CPR awareness, and how she channels her love for Reese into a foundation that supports and brings smiles to children in her community.

This episode is a powerful testament to a family's strength and a mother's determination to create light from profound darkness.

Meet Hannah Keime from HeartCharged. Diagnosed with a genetic heart condition at just 14, Hannah gets real about the challenges of an invisible illness and explains why she started HeartCharged. She opens up about showing her scars and sharing the raw, unfiltered truth of her patient journey to build a supportive global community for young people.

Her story is a powerful blend of vulnerability, resilience, and life-saving advocacy.

Find Hannah and Bethany's work ⁠ @heartcharged ⁠ on Instagram. Tune now.

#LetsTalkSADSLive #SADSCanada #HeartCharged #Cardiomyopathy #ICD #InvisibleIllness #PatientAdvocacy #HeartHealth

The Road to Recovery after a Cardiac Storm

In this powerful first episode of the new patient-driven Let’s Talk SADS Live, Sally Gilbert shares her journey of living with exercise-induced ARVC and the emotional aftermath of surviving multiple ICD shocks during a cardiac event earlier this year.

Sally opens up about the fear and uncertainty that followed, and how she’s learned to cope, rebuild her confidence, and move forward one day at a time. Her story is one of strength, resilience, and the importance of community support for those living with inherited heart rhythm conditions.

Listen as Sally brings honesty and hope to the conversation on recovery after sudden cardiac events.

Join the Canadian SADS Foundation for the 35th episode of Let’s Talk SADS Live with Dr. Andrew Krahn, as we take a closer look at Long QT Syndrome and what it means for patients and families.This episode will explore the latest understanding of Long QT Syndrome, from diagnosis and risk assessment to management and family screening. Dr. Krahn will share insights from his clinical and research experience on how we can better identify individuals at risk, prevent sudden cardiac events, and support those living with this inherited arrhythmia.Dr. Andrew Krahn is a Professor in the Division of Cardiology at the University of British Columbia. He specializes in inherited arrhythmia syndromes, with a particular focus on Long QT Syndrome and other genetic heart rhythm disorders. Through his leadership in research and clinical care and the Hearts in Rhythm Organization (HiRO, pronounced hero), Dr. Krahn has been at the forefront of improving outcomes for individuals and families affected by inherited cardiac conditions.This episode of Let’s Talk SADS Live takes an in-depth look at Long QT Syndrome and provides valuable knowledge for patients, families, and healthcare providers working together to reduce the risks of SADS.

Join us for our first pre-recorded episode! In episode 34 of Let’s Talk SADS Live, we sit down with Dr. Andrew Landstrom to explore the promise and progress of gene therapy for inherited arrhythmia syndromes. This episode dives into how gene therapies are being developed to treat conditions such as Long QT Syndrome, CPVT, and Brugada Syndrome, and what this means for families affected by SADS. From understanding how these therapies work to what’s on the horizon in clinical research, Dr. Landstrom will help break down the science and share insights into what the future may hold.