Lichen Sclerosus Podcast

Ashlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only to find her own trial by fire as she discovers a unique way to challenge a patient's overprotective nervous system.

"The beautiful thing, good and bad, is that physical therapists, we're not allowed to prescribe medicine in the United States. So I think one of the cool things about my job then is we're really taught to work with the human body, and we're not allowed to order imaging, we're not allowed to prescribe medications.”

Ashlie Crewe is a Pelvic Health physical therapist and teacher/mentor to Pelvic Health physical therapists across the United States. She has a passion for neuroscience, psychology, and Pelvic Health, making her an expert in persistent pelvic pain.

Ashlie Crewe found her true calling when she attended her first pelvic health class after physical therapy school. The class blew her mind and she knew the neuroscience of pain was the way to help patients with persistent pelvic pain. She quickly developed her skills and started to understand how to apply the neuroscience of pain to her practice.

She creates a space with her patients to make them feel safe and trusts them to choose their own treatment path. She assesses their tissues, looking for any signs of adherence, and then checks their nervous system to see how it responds. Through this practice, she helps to rewrite the painful stories her patients have been told and shows them that physical therapy can provide them with lasting relief.

In this episode, you will learn the following:

1. How does physical therapy help treat chronic pain and persistent pain conditions?

2. How does the relationship with a therapist impact a patient's improvement?

3. How can physical therapists use neuroscience to assess and treat pelvic pain?

Resources:

International Pelvic Pain Society - https://www.pelvicpain.org/

Drayer Physical Therapy for northeast USA - https://drayer.urpt.com/

Upstream Rehabilitation for across USA - https://urpt.com/

Other episodes you'll enjoy:

Lichen Sclerosus and Overactive Pelvic Floor - https://youtu.be/mxQjC3jEoYg

Dr. Rachel Rubin: Unlocking Clitoral Fusing Through Non-surgical Lysis - https://youtu.be/F5KO5LGXRx0

Vulva Checks for Lichen Sclerosus: Everything You Need To Know - https://youtu.be/E9fnXDh5up4

Connect with me:

Instagram: https://www.instagram.com/lichensclerosuspodcast/

YouTube: https://www.youtube.com/channel/UCQXU-nhfnn-nScR_5VyUdCQ

Website: https://lssupportnetwork.org/

If this episode was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate.

Loved this episode? Leave us a review and rating here: https://lovethepodcast.com/lspodcast

Mentioned in this episode:

Finally Get Clear Answers About LS, Menopause, and Your Treatment

If you’ve ever found yourself listening to this podcast searching for answers…

In this podcast episode, Dr. Rachel Rubin sheds light on the startling truth that 23% of all women suffer from Clitoral Adhesions and how her innovative stretching procedure has resulted in a 76% decrease in pain and a 64% increase in orgasm rate for these women. "We have so much work to do because no one taught your doctor how to examine a clitoris. No one. They never learned. They feel like it's not their space and it's not their place, and they feel weird of, what am I looking for? No one ever taught me how to do this." Dr. Rachel Rubin is a urologist and specialist in sexual medicine outside of DC. She has a fellowship in sexual medicine and sees all genders, specializing in pelvic pain, vestibulodynia, hormone issues, and Lichen Sclerosus. Dr. Rachel Rubin was shocked to discover that 23% of all women have some degree of clitoral adhesions. She developed a non-surgical lysis procedure, which combined topical hormones and manual stretching to break up the tissue. Through her research, she found that this method had a 76% decrease in pain and 71% increase in sexual satisfaction. Furthermore, 64% of the women experienced improved orgasmic ability, with six of the women in the study achieving orgasm for the first time. Dr. Rubin was delighted to have found such an effective, non-invasive treatment for clitoral adhesions. In this episode, you will learn the following: 1. Discover why 23% of all women have some degree of clitoral adhesions and what symptoms this can cause. 2. Learn about a new procedure that can help 76% of women reduce pain, improve satisfaction with sex, increase sexual arousal, and even help 64% of women achieve orgasm for the first time. 3. Uncover the secrets to treating lichen sclerosus optimally before any procedure is done, including what hormones and topical treatments can be used.

Check out all the ways Lichen Sclerosus Support Network can help you at https://lssupportnetwork.org.

Read Dr. Rubin’s blog on the study of non-surgical lysis of clitoral adhesions at https://www.rachelrubinmd.com/post/new-research-on-clitoral-adhesions

Connect with Dr. Rubin

Website - https://www.rachelrubinmd.com/

Instagram - https://www.instagram.com/drrachelrubin

Twitter - https://twitter.com/drrachelrubin

Facebook - https://www.facebook.com/DrRachelRubin/

Linked In - https://www.linkedin.com/in/rachel-rubin-7433b0134/

Learn more about anatomical changes caused by Lichen Sclerosus in our blog - https://lssupportnetwork.org/architectural-changes-lichen-sclerosus/

Connect with us:

Instagram: https://www.instagram.com/lichensclerosussupportnetwork/

YouTube: https://www.youtube.com/channel/@lichensclerosussupportnetwork

Website: https://lssupportnetwork.org/

If this episode was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate.

Loved this episode? Leave us a review and rating here: 

https://lovethepodcast.com/lspodcast

Mentioned in this episode:

Finally Get Clear Answers About LS, Menopause, and Your Treatment

If you’ve ever found yourself listening to this podcast searching for answers…

Vagus Nerve and Lichen Scleorsus Workshop June 21 and 23 6-8 PM EDT - Get all the information and signup at lostlabia.com/stressworkshop.

If you are in the Philadelphia or Fl area I will be in your area soon for an in-person meetup! Signup for our newsletter at lssupport.net to get notified about dates and times.

As always feel free to email me at [email protected].

Mentioned in this episode:

Finally Get Clear Answers About LS, Menopause, and Your Treatment

If you’ve ever found yourself listening to this podcast searching for answers…

Today we talk to Shauna Farabaugh, a somatic sex educator about how it can help us have a sexual rebirth.

Shauna is one of our Holistic Healing Summit speakers. We hope you can join us. With over 30 sessions dedicated to approaching LS from a whole-body approach, there's something for every LS Warrior.

Find out more at holistichealingsummit.live

We're excited to announce the Get Your Sexy Back program! If LS has taken your mojo and you're ready to take it back this is the class for you!

Find out more at lswarrior.com/rebirth

Want to reach out to Shauna? Awesome!

Email her at [email protected].

And check out her website at

Mentioned in this episode:

Finally Get Clear Answers About LS, Menopause, and Your Treatment

If you’ve ever found yourself listening to this podcast searching for answers…

Angie Alt, a social activist and researcher, takes on the challenge of managing her Lichen Sclerosus for 9 years through the Autoimmune Protocol, an ambitious goal that leads to a journey of self-discovery and healing. Here's what Angie Alt and I cover: 1. How Angie Alt transformed the Paleo Diet into the Autoimmune Protocol to manage her Lichen Sclerosis for 9 years. 2. What is the Autoimmune Protocol and how can it help those living with autoimmune diseases? 3. How to navigate the Autoimmune Protocol in a sustainable way with the help of Angie Alt’s program. Angie Alt is an autoimmune protocol coach and social activist who has lived all over the world and managed her LS for 9 years using the autoimmune protocol.

If you want to work with Angie or become an AIP-certified trainer check out the links below.

www.autoimmunewellness.com

sadtoaip.com for AIP coaching program

www.aipcertified.com

Shout out to Lichen Sclerosus Support Network. We're currently working on our annual Holistic Healing Summit. We need volunteers. If you can donate some of your time please fill out our volunteer form at lssupportnetwork.org/volunteers.

If you're in need of support, join us in the next LS Support Virtual Meetup. Signup at lssupportnetwork.org/connect for more details.

See the video at lssupportnetwork.org/aip

Connect with me:

Instagram: https://www.instagram.com/lichensclerosussupportnetwork/

Mentioned in this episode:

Finally Get Clear Answers About LS, Menopause, and Your Treatment

If you’ve ever found yourself listening to this podcast searching for answers…

Were you given a steroid treatment for your LS but not told when or how to use it? Or were the directions unclear, but you're not sure where to turn to for information?

Don't worry because we get answers to those questions in this episode and more with Dr. Jill Krapf, leading LS researcher and specialist.

To contact and work with Dr. Krapf, go to www.cvvd.org and fill out their contact form or call them. You can also follow Dr. Krapf on Instagram and Facebook @jillkrapfmd.

Thanks to, Lichen Sclerosus Support Network (LSSN). LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Follow them on IG and FB @lichensclerosussupportnetwork and visit their new website lssupportnetwork.org.

Also, be sure to check out our membership at lssupport.net/joinwarriors.

Or join us every other Saturday in the free virtual meetups. Find out more information and signup at lssupport.net/connect.

Mentioned in this episode:

Finally Get Clear Answers About LS, Menopause, and Your Treatment

If you’ve ever found yourself listening to this podcast searching for answers…

It's a new year and a perfect time to set goals. I'm not just talking about life goals, either. I'm talking about health goals!

We set at least one life and one LS goal we want to work on inside our private membership. Every week we set mini-goals to get us to our big goals.

And let me tell you, this process WORKS. We've had so many amazing transformations working through this process.

In this episode, I walk you through why it's important to set health goals and how to start doing it.

If you're interested in working towards your goals with a group of like-minded women, join the LS Warriors today! We're just getting started. We have our first live meeting on 1/14/22. We'll be working together towards acceptance and resilience for the next five months.

Jump on the train and start making headway on your health journey. Let us support you along the way.

Go to lssupport.net/joinwarriors to get your first month free.

I can't wait to see you in the membership.

If you have any questions feel free to email me at [email protected].

Mentioned in this episode:

Finally Get Clear Answers About LS, Menopause, and Your Treatment

If you’ve ever found yourself listening to this podcast searching for answers…

Welcome. If you’ve been listening to the podcast for a while, I want to give you a shout-out and thank you for sticking with me this year. This was the year of transition, and because of that, there weren’t very many episodes published, but you kept coming back. I appreciate you so much!

If you’ve just found me, I want to thank you for listening, and I hope you get value out of it. At the very least, know that you are not alone.

Since this is the last episode of 2021, I thought it would be fun to look back at the top five episodes of the year. These are fan favorites, and I totally get why. So if you’re looking for something to keep you busy while I’m away for the next two weeks, get ready to mark these down so you can listen to them later.

In no particular order, the first episode is my interview with Dr. Jill Krapf, titled “How are reproductive age women and steroids similar, with Dr. Jill Krapf.” This episode discusses research into younger women with Lichen Sclerosus and the proper way to use ultra-potent steroids as a treatment. You can access the episode at lssupport.net/drjill.

The next episode is all about appointment anxiety. It’s titled “How to Snap Out of Appointment Anxiety.” I share a recent experience of appointment anxiety and the techniques I used to snap out of it. Go to lssupport.net/appointmentanxiety to listen to this episode and for complete show notes.

The next episode is “The Lost Labia Journey: Finding Community.” If you’re looking for inspiration and hope to get you through the tough times, this is the episode for you. Jaclyn is an LS Warrior, as well as an LS advocate. This is the second episode of a two-part series detailing her more than decade-long battle with LS. We find out how she not only learned to manage her disease but used it to better the lives of others living with LS.

She is now the author of The Lost Labia Chronicles blog, which you can find at Lostlabia.com, and has recently released her first eBook, titled “Three Key Things To Have In Place When You Have Vulvar Lichen Sclerosus,” which you can get for free at lostlabia.com/ebook.

Listen to her episode at lssupport.net/findingcommunity.

Have you listened to Ashley Stump PFPT’s episode “Pelvic Floor Physical Therapy Can Help You Feel Better”? It’s the next top five episode of 2021.

If you’ve ever wondered or thought about PFPT, this is the episode for you! Ashley shared so much amazing information on how PFPT can help those of us with LS. Check it out at lssupport.net/pfpt.

“Lichen Sclerosus And Diet? Does The Research Look Good?” rounds out the top five. Dietitian Erica Eberl did a deep dive into LS research, looking for any connection between diet and LS. You can listen to what she found and more at lssupport.net/diet.

I couldn’t leave you without mentioning an honorable mention: “How to keep your quality of life with Lichen Sclerosus.” Have you stopped doing things you loved, using your favorite products, or eating your favorite foods because you heard it wasn’t good for your LS? I’m here to ask you, “How do you know?” Before you go letting LS dictate how and what you do in your life, listen to this episode, lssupport.net/lscontrol.

I hope you have a happy new year, and I look forward to talking to you in 2022.

Mentioned in this episode:

Finally Get Clear Answers About LS, Menopause, and Your Treatment

If you’ve ever found yourself listening to this podcast searching for answers…

Today I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Sclerosus. Yes, you heard that right, Pediatric Lichen Sclerosus!

As we know, Lichen Sclerosus can affect anyone, of any age - children included. Unfortunately, there is a lack of research and resources for parents of children with Lichen Sclerosus. So, today we're going to find out about treatment, what to look for, the progression of symptoms, and how we can help our children become comfortable in their skin.

This is an important episode if you have a child with LS, or if you plan on having children (as it’s important to know some of the warning signs to be able to advocate for your child). Furthermore, because there may be a genetic component to LS, you never know who in your family you may be able to help.

I want to thank our sponsor, Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupport.net.

Also, be sure to check out our membership at lssupport.net/joinwarriors.

Or join us every other Saturday in the free virtual meetups. Find out more information and signup at lssupport.net/connect.

Visit lssupport.net/kidls for full show notes.

Mentioned in this episode:

Finally Get Clear Answers About LS, Menopause, and Your Treatment

If you’ve ever found yourself listening to this podcast searching for answers…

Hey, welcome. In this episode, I decided to take a little break from the interviews, and speak from the heart. This is something I felt compelled to speak on. I want to talk about not letting Lichen Sclerosus control your life; not letting it rob you of the vibrant and wondrous person you are.

I want to thank our sponsor, Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupport.net.

Also, be sure to check out our membership at lssupport.net/joinwarriors.

Or join us every other Saturday in the free virtual meetups. Find out more information and signup at lssupport.net/connect.

Visit lssupport.net/lscontrol for full show notes.

Mentioned in this episode:

Finally Get Clear Answers About LS, Menopause, and Your Treatment

If you’ve ever found yourself listening to this podcast searching for answers…