
Sign up to save your podcasts
Or


Hey! Welcome!
Have you ever wondered what lube is best for Lichen Sclerosus? Perhaps you felt overwhelmed by the massive selection of lube options online and had no clue what to buy? Have you ever wondered what you should look for and avoid in a lube? If yes, this is the episode for you!
Today I am here with my amazing friend and follow LS warrior, Jaclyn, from The Lost Labia Chronicles, and we are going to be talking about lubrication, artificial lubrication, that is. But before we jump into this, click here to subscribe to The Lost Labia Chronicles, which dives into sex, mental health, and Lichen Sclerosus through blogs and YouTube videos. I’m am so happy to be here with my girl to talk with y’all about lube (what kind of lube is right for you, Jaclyn’s experience with dilators and lube, what you want to consider in choosing a lube, etc).
I want to thank our sponsor, Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupport.net.
Also, be sure to check out our membership at lssupport.net/joinwarriors.
Visit lssupport.net/lubes for full shownotes.
Mentioned in this episode:
Finally Get Clear Answers About LS, Menopause, and Your Treatment
If you’ve ever found yourself listening to this podcast searching for answers…
Today, I am here with Dr. Cynthia Wesley (aka Dr. Cyn), a board-certified OBGYN with over 16 years of experience and a vulvar skin expert. Dr. Cyn is passionate about vulvar care, hygiene, and grooming. She will share her tips on how to take care of your vulva when you have Lichen Sclerosus.
We discussed everything from using the bathroom, bathing, moisturizing, hair removal, and more. So many great tips in here.
Resources mentioned in the episode:
Dr. Cyn’s website: drcynobgyn.com
Dr. Cyn’s exclusive vulvar products waitlist: beautybelowmd.com
Pre-order Dr. Cyn’s new book here: beautybelowbook.com
Dr. Cyn’s social media: @drcynobgyn on Facebook and Instagram
For complete show notes and all the links mentioned in this episode visit https://lssupportnetwork.org/grooming.
Thank you to our sponsor, Lichen Sclerosus Support Network. Working towards getting people diagnosed earlier and getting treated better. Be sure to follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupportnetwork.org.
Also, be sure to check out our membership at https://lssupportnetwork.org/membership.
Mentioned in this episode:
Finally Get Clear Answers About LS, Menopause, and Your Treatment
If you’ve ever found yourself listening to this podcast searching for answers…
Hey welcome!
This week I'm so excited to finally publish this episode with Ashley Stump. She's a pelvic floor physical therapist who knows all about Lichen Sclerosus.
I learned so much during this episode, we talked about what pelvic floor physical therapy is, why women with Lichen Sclerosus need it, what to expect on your first visit, and we talked about lubes.
We talked about so much, so much gold and she even gave us tips on what to look for when you're looking for a new pelvic floor physical therapist, and some resources are where to find one.
For complete show notes and all the links mentioned in this episode visit lssupport.net/pfpt.
Thank you to our sponsor, Lichen Sclerosus Support Network. Working towards getting people diagnosed earlier and getting treated better. Be sure to follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupport.net.
Also, be sure to check out our membership at lssupport.net/lswarriors.
Mentioned in this episode:
Finally Get Clear Answers About LS, Menopause, and Your Treatment
If you’ve ever found yourself listening to this podcast searching for answers…
If you're seeing two of these or getting this episode really late, apologies. I realized half of my listeners didn't get the episode because I released it in video format versus audio. 🤦🏽♀️ Either way everyone should have at least one version of the episode.
Thanks for understanding.
Heeeyyy! Longtime no see. lol
Life has been busy and a bit hectic and I'm ready to let you in on everything that's been going on. And the most exciting news. You'll be getting new episodes starting Nov 5!
First off we have incorporated Lichen Sclerosus Support Network and we are an official not-for-profit! Find out what we've been doing and what our future plans are.
Want to volunteer?
lssupport.net/volunteer
Want to donate?
lssupport.net/donate
Secondly, my family caught covid and my husband and I ended up in the hospital. It's turned our world upside down. My husband, Lorenzo, still hasn't made it home.
Lorenzo was our source of income so I could concentrate on educating and supporting people with LS. With him not being able to work everything is a little up in the air.
If you would like to help us during this time we would deeply appreciate it. You can donate at
https://gofund.me/50b5eada
or
https://venmo.com/u/Kathy-Ruiz-Carter
So I hope this catches you up to speed and you're prepared for some amazing interviews.
Excited to be with you again.
Feel free to email me at [email protected].
Mentioned in this episode:
Finally Get Clear Answers About LS, Menopause, and Your Treatment
If you’ve ever found yourself listening to this podcast searching for answers…
Heeeyyy! Longtime no see. lol
Life has been busy and a bit hectic and I'm ready to let you in on everything that's been going on. And the most exciting news. You'll be getting new episodes starting Nov 5!
First off we have incorporated Lichen Sclerosus Support Network and we are an official not-for-profit! Find out what we've been doing and what our future plans are.
Want to volunteer?
lssupport.net/volunteer
Want to donate?
lssupport.net/donate
Secondly, my family caught covid and my husband and I ended up in the hospital. It's turned our world upside down. My husband, Lorenzo, still hasn't made it home.
Lorenzo was our source of income so I could concentrate on educating and supporting people with LS. With him not being able to work everything is a little up in the air.
If you would like to help us during this time we would deeply appreciate it. You can donate at
https://gofund.me/50b5eada
or
https://venmo.com/u/Kathy-Ruiz-Carter
So I hope this catches you up to speed and you're prepared for some amazing interviews.
Excited to be with you again.
Feel free to email me at [email protected].
Mentioned in this episode:
Finally Get Clear Answers About LS, Menopause, and Your Treatment
If you’ve ever found yourself listening to this podcast searching for answers…
Hey!!! Welcome! I'm so happy you're here.
I've got some AMAZING news.
We have released the searchable provider directory!
It's ready for you to explore. It's brand new so we have to work out all the kinks as we grow it but it's better than nothing.
https://lichensclerosuspodcast.com/searchable-lichen-sclerosus-provider-database/
We have some equally exciting news.
We are turning Lichen Sclerosus Support Network into an official nonprofit! Our mission will be to prevent the negative emotional and mental health effects that can come with an LS diagnosis.
That's right we are going to spread the message even further and help more people.
So if you can help, please do your part because it's going to take the whole community.
Check out our new webpage and read all about the exciting things we have coming.
https://lichensclerosuspodcast.com/nonprofit
Donate:
https://fundly.com/lichen-sclerosus-support-network#
I can't wait to hear your reaction. Let me know what you think and how you can help the community. Email me at [email protected] or DM me on IG @lichensclerosuspodcast.
Mentioned in this episode:
Finally Get Clear Answers About LS, Menopause, and Your Treatment
If you’ve ever found yourself listening to this podcast searching for answers…
Hey! Welcome! I’m so glad you are here with us today! We are going to shake this up a bit and have a live round table discussion about the concepts of acceptance and resilience with some members of the LS Warriors membership. The concepts of acceptance and resilience are critical to living with a disease such as Lichen Sclerosus. In this round table discussion, I will ask our participants a series of questions relating to these concepts and Lichen Sclerosus.
I would love to hear your thoughts on acceptance and resilience. Email me at [email protected] or DM me on IG @lichenslcerosuspodcast.
Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect.
Or join LS Warriors for 24/7 support and information. https://lssupport.net/lswarriors.
Reach out to Jaclyn by email at [email protected] or DM her on IG @thelostlabiachronicles.
Also, be sure to join her email list so you get notified when she releases a new blog post. https://lssupport.net/jointllc
Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.
Mentioned in this episode:
Finally Get Clear Answers About LS, Menopause, and Your Treatment
If you’ve ever found yourself listening to this podcast searching for answers…
I’m so glad you are here with us today. In today’s episode, we are joined by Jen, one of the LS Warriors! She is here to share the amazing story of her journey with Lichen Sclerosus. Jen’s journey involves a traumatic birth and a lot of stress to her vulva and vagina. She discusses what this process was like, how her symptoms manifested after the birth of her daughter, her diagnosis, and how she now deals with stress and Lichen Sclerosus.
If you want to reach out to Jen, you can message her on Twitter and/or Instagram @jenpatala.
Email me at [email protected] or DM me on IG @lichenslcerosuspodcast.
Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect.
Or join LS Warriors for 24/7 support and information. https://lssupport.net/lswarriors.
Reach out to Jaclyn by email at [email protected] or DM her on IG @thelostlabiachronicles.
Also, be sure to join her email list so you get notified when she releases a new blog post. https://lssupport.net/jointllc
Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.
Mentioned in this episode:
Finally Get Clear Answers About LS, Menopause, and Your Treatment
If you’ve ever found yourself listening to this podcast searching for answers…
Uncover the potential connection between your diet and long-term health with this groundbreaking research on Diet and LS.
Erica Eberl is a 23-year-old dietitian and LS warrior who was diagnosed less than a year ago. She has used her skills and resources to research LS and diet and shares her findings to help others.
After Erica Eberl was diagnosed with LS, she did extensive research on diet and LS and found three studies that she was able to share. One study from Italy found that avocado and soybean extract cream and a dietary strategy improved symptoms in women with mild to moderate LS, although it wasn't as effective as corticosteroids. A case-control study from Italy found that increased consumption of carotenoids (precursors to Vitamin A) was associated with less LS. Lastly, a study from Portugal found that 50% of the women with LS who had food triggers reported pork, spicy food, and fried food being the main triggers. Erica recommends seeing a dietitian or nutritionist to find out what food triggers are specific to you.
"It's up to you how factual you want to take this study, because obviously, it's not enough to actually form guidelines for, like, sclerosis, because it's only one study. But it's definitely something that you can start thinking about. And if you look at other studies that are on inflammation or autoimmune, it definitely seems to be a common trait. So definitely I'm always an advocate for eating more vegetables and fruits, so if that convinces you to go down that path and then."
In this episode, you will learn the following:
Resources:
Check out our LS and Diet Comprehensive Guide
https://lssupportnetwork.org/lsdiet
Download your copy of our customizable LS Symptom Tracker
https://lssupportnetwork.org/symtpomtracker
Or our 30-day Food Sensitivity Tracker PDF
https://lssupportnetwork.org/foodsensitivitytracker
Join the community at our next international virtual meetup
https://lssupportnetwork.org/connect
Search for a provider in your area on our provider directory
https://lssupportnetwork.org/providers
Other episodes you'll enjoy:
How nutrition therapy could help manage your Lichen Sclerosus?
Is the Autoimmune Protocol the Lichen Sclerosus Natural Treatment for You?
World Lichen Sclerosus Awareness Day Dr. Jill Krapf Q&A
https://youtube.com/live/cIUkX1nzjyA
Connect with us:
Instagram: https://www.instagram.com/lichensclerosussupportnetwork/
Facebook: https://www.facebook.com/lichensclerosussupportnetwork
YouTube: https://www.youtube.com/channel/UCMCwP8rMVSvZRFRyI3IChVA
Website: https://lssupportnetwork.org/
Loved this episode? Leave us a review and rating here: https://lovethepodcast.com/lspodcast
Mentioned in this episode:
Finally Get Clear Answers About LS, Menopause, and Your Treatment
If you’ve ever found yourself listening to this podcast searching for answers…
Connect with me:
Instagram: https://www.instagram.com/lichensclerosuspodcast/
YouTube: https://www.youtube.com/channel/UCQXU-nhfnn-nScR_5VyUdCQ
Website: https://lssupportnetwork.org/
Email: [email protected]
Did you love this episode? Leave us a review and rating here: https://lovethepodcast.com/lspodcast
Mentioned in this episode:
Finally Get Clear Answers About LS, Menopause, and Your Treatment
If you’ve ever found yourself listening to this podcast searching for answers…
From the publisher's feed