In this special episode, Dan reflects on the recent European Cystic Fibrosis Society conference (ECFS) with Bethinn Evans, PhD student at Queen’s University Belfast, who also has cystic fibrosis and is doing research in cystic fibrosis.
You can find out more about Bethinn’s research here & follow the study on Instagram.
For reference, the study reporting on behavioural issues in children on modulator therapy that Bethinn refers to is available here.
You can join the Cystic Fibrosis Qualitative Research Network here.
Do you have a lived experience journey to share?
Get in touch at danbeever.co.uk
Music by Ivan Luzan, www.ivanluzan.com