Enjoy Living Our Breast Lives' last podcast episode of the year!

Join Wren Morrobel, founder of the Living Our Breast Lives podcast, and Caroline Johnson, the founder of Twisted Pink, a nonprofit dedicated to funding critical research for Metastatic Breast Cancer! Together, they delve into the nonprofit's framework, the impact of allyship in advocating for the MBC community as an early-stage survivor, and their shared takeaways from the 2024 San Antonio Breast Cancer Symposium!

Caroline Johnson—a patient advocate, wife, mom of three, and an 11-year stage three breast cancer survivor—shares her inspiring mission to direct critical funding toward Stage IV Metastatic Breast Cancer research. Her passion for advocacy stems from years of championing her son, born with a rare genetic deletion called BBSOAS. These profound medical and healthcare experiences not only shaped her advocacy journey but also empowered her to navigate her own breast cancer diagnosis with strength and determination.

Caroline’s unwavering dedication to supporting the MBC community shines through every time she speaks. She remains a passionate advocate for improved healthcare systems and policies benefiting individuals with rare diseases and cancer. As an early-stage survivor, she feels grateful to continue preventative treatment to this day, stay informed about clinical trials, and emphasize the vital role research plays in advancing cancer care.

Living Our Breast Lives Information:

Email: [email protected]

Instagram: @livingourbreastlives

Founder: Wren Morrobel

Personal Instagram: @wren_morr

Caroline Johnson’s Contact Information:

Email: [email protected]

Website: twistedpink.org

Instagram: @twistedpinkorg

Facebook: Twisted Pink

Linkedin: linkedin.com/company/twisted-pink-inc

Youtube: youtube.com/@TwistedPink

Join Living Our Breast Lives founder, Wren, and special guest, Tami Eagle Bowling, the creator of LightUpMBC Live, for this powerful and uplifting episode as they discuss Tami's continued efforts for funding Metastatic Breast Cancer research, helping to create a better future for all diagnosed!

With no family history, at the age of 41, Tami Eagle Bowling was diagnosed with ER+ HER2- Metastatic Breast Cancer. Seemingly healthy, doing cardio kickboxing one day, and being told she had a 2-3 year life expectancy a few weeks later was a diagnosis she never would have anticipated. She had to adapt to this unexpected bombshell in her life when her children were just two and four years old. In order to thrive, she began to embrace the uncertainty of her daily life. She has now been living with Metastatic Breast Cancer for nine years and shares her story to inspire others!

About our Guest Speaker, Tami Eagle Bowling:

Tami, the creator and co-host of LightUpMBC Live has been featured on The TODAY Show, Good Morning America, NY1, News12, Fox5, CBS NY, Comcast Newsmakers, Glamour Magazine and more for her steadfast dedication to helping others survive and thrive! Her message of resilience and passion for life resonate loud and clear to all who hear her speak, so get ready for a powerful conversation between Tami and Wren where we’ll get the inside scoop of what true advocacy really looks like and how much it benefits the MBC community!  

Her mantra is "Make Each Day Meaningful." Upon diagnosis, she decided to turn her energy towards advocacy. As a result of her tireless dedication, she has led efforts that have raised over $2 million in funding for MBC research grants! Tami is the Global Campaign Director of #LightUpMBC, a global campaign that shines a light on the disease to benefit METAvivor by illuminating landmarks in the MBC colors around the world. She is also the Creator of #LightUpMBC Live, a virtual benefit that provides a platform for patients to share their stories while also featuring musical performances for inspiration.

Not only did Tami create the framework, The Eagle Method, in order to help those cope with the uncertainties of life, she was also the recipient of a Play for P.I.N.K. Humanitarian Award and has been using her voice for the last several years to advocate for better laws for Metastatic Breast Cancer patients nationwide, as well as in her home state of New Jersey, through METAvivor's Stage IV Stampede.

Tami is passionate about inspiring others and enjoys sharing her insights on embracing uncertainty. Thank you for listening!

Living Our Breast Lives Information:

Instagram: @livingourbreastlives

Founder: Wren Morrobel @wren_morr

Instagram Segment: Nothing Pink found on Instagram

Tami Eagle Bowling Contact Information:

Email: [email protected]

Instagram: @eaglemethod/ @lightupmbc

Facebook: Tami Eagle Bowling

Website: eaglemethod.com

Connect on LinkedIn!

Donate to Wren's Personal Fundraising Page as the LightUpMBC NC State Captain:

https://donate.metavivor.org/wrenmorr24

Donate to Stage Four MBC Research:

donate.metavivor.org

Don't forget to tune into LightUpMBC Live on October 13th, 2024 at 8PM EST! Links provided on both social media platforms: @lightupmbc and @metavivor

Join Living Our Breast Lives founder, Wren, for this fierce solo episode as she delves into the significance of her 5 YEAR MBC Anniversary as a 35 year old mTNBC Thriver! Hear her compelling diagnosis story and engage in an empowering conversation about advocacy and the critical importance of continued funding for Metastatic Breast Cancer research!

Wren is currently 4.5 years No Evidence of Disease (NED) and 5 years living with MBC when the statistics said only 12% of women with the Triple Negative subtype will make it to that five year mark. In this episode she talks about her current immunotherapy, the power behind science, research, and funding, and continuing to advocate for herself as a patient advocate.

Five years of pure hardship, but more importantly, five years of growth and beauty. Although Wren's journey comes with scars, trauma, and grief, she is a beautiful, yet imperfect work of art, and reminder that we must have hope that there are better days to come.

**This episode is a tribute to all the MBC Thrivers out there who we’ve lost along the way, and to the people who doubted I’d still be here five years later.**

Understanding Triple Negative Breast Cancer:

As breast cancer affects an increasing number of women under 50, more attention has turned to TNBC, an aggressive subtype that disproportionately affects younger women. TNBC is defined by what it lacks. While 85% of breast cancers are classified by three common markers—markers that give treatments a target to attack—TNBC has none of those, meaning it has fewer treatment options making it harder to treat.

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Living Our Breast Lives:

Instagram: @livingourbreastlives

Founder: Wren @wren_morr on Instagram

LightUpMBC Personal Fundraising Page:

donate.metavivor.org/fundraiser/5564372

METAvivor Research & Support:

Instagram: @metavivor

Donate to Stage IV Research: donate.metavivor.org

Diagnosed at only eighteen years old, join Living Our Breast Lives founder, Wren, for this special episode with AYA Thriver, Brittney Beadle, as they dive deep into her incredible journey of advocacy as a Metastatic Breast Cancer Thriver!

After countless run-ins with progression during her nine years living with MBC, Brittney remains a beacon of positivity and love for life! Her infectious spirit uplifts everyone around her, and her social media account touches and educates the lives of countless people around the world. 

Boundless Love for Life: having an endless and limitless passion and enthusiasm for living. It conveys a deep appreciation for life, regardless of the challenges or difficulties faced. 

Listen to this heartfelt conversation as Wren and Brittney delve into Brittney's boundless love for life, the many challenges both thrivers face as AYA (adolescent young adult) cancer patients, and of course, the daily strategies and coping mechanisms they use to help overcome these struggles each day.

Don’t forget to also tune into the Instagram segment on the Living Our Breast Lives IG Platform!

Living Our Breast Lives Information:

Instagram: @livingourbreastlives

Founder: Wren Morrobel @wren_morr

Brittney Beadle's Information:

Instagram: @brittneybeadle

Book: Info: A Peace of Hope: Finding Inner Peace and Healing Through Stage IV Cancer: https://a.co/d/f72J8CB

Documentary: Thriver: A Survivor Story

Available on Amazon Prime, YouTube, and Vimeo where all proceeds earned from Amazon Prime will be donated to Metastatic Breast Cancer research!

Where you can Donate:

Donate to Wren’s personal #LightUpMBC fundraising page as the NC State Captain: 

https://donate.metavivor.org/wrenmorr24

Every day 117 people in the U.S. die of metastatic breast cancer (MBC), also known as Stage 4, where the breast cancer has spread to other parts of the body. 100% of net proceeds from the #LightUpMBC campaign benefit METAvivor to fund MBC research.

METAvivor Research & Support:

Instagram: @metavivor

Facebook: METAvivor Research & Support Inc.

Donate to Stage IV Research: donate.metavivor.org

Welcome to the first episode of 2024!

Join LOBL founder, Wren, for this special episode with guest speaker, Adiba Barney, as they discuss a miraculous journey through surrogacy, a nine year thrivership having Metastatic Breast Cancer, the challenges of divorce post-diagnosis, METAvivor insights, and the empowering tale of starting a new life as a single mother. This episode is packed with passion, knowledge, experience, vulnerability, thrivership, and so much love! 

ALSO! Living Our Breast Lives’ upcoming instagram segment, featuring Adiba herself, is underway! It’s time to Pay it Forward! Beginning March 1st, LOBL’s newest segment, Pay it Forward, will take the stage as 31 Metastatic Breast Cancer Thrivers who’ve gained valuable lessons over the years share their wisdom, advice, and most importantly, their firsthand experience living with MBC. All in hopes to making the beginning stages of coping with this disease easier for those newly diagnosed. It takes a village! 

Thanks for listening, and remember; when life hands you cactuses, make margaritas, and ALSO, don’t forget to live your breast lives! ————————————————————————

Living Our Breast Lives Information:  

Instagram: @livingourbreastlives

Founder: Wren @wren_morr on instagram

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METAvivor Research & Support:

Instagram: @metavivor

Facebook: METAvivor Research and Support Inc.

Donate to Stage IV Research: donate.metavivor.org

MBC Travelers Group: 

Instagram: @mbc_travelers

Facebook: MBC Travelers Nonprofit Participants

Adiba Barney’s Information: 

Email: [email protected]

Instagram: @adibabarney

Facebook: Adiba Barney

Book: When Life Hands You Cactuses, Make Margaritas - can be found and purchased on Amazon today!

Welcome to the first episode of 2024!

Join LOBL founder, Wren, for this special episode with guest speaker, Adiba Barney, as they discuss a miraculous journey through surrogacy, a nine year thrivership having Metastatic Breast Cancer, the challenges of divorce post-diagnosis, METAvivor insights, and the empowering tale of starting a new life as a single mother. This episode is packed with passion, knowledge, experience, vulnerability, thrivership, and so much love! 

Founder: Wren @wren_morr on instagram

It's the holiday season again, friends! Join Wren for this solo episode as her feelings and emotions take center stage, survivors guilt is prevalent, gratitude is beaming, and she holds nothing back in addressing the heartache that accompanies every piece of bad news for the Metastatic Breast Cancer community.

We must remember and continue to tell ourselves, THEIR STORY IS NOT OUR STORY.

Be very grateful for those sitting around your Thanksgiving and/or Christmas tables this 2023 holiday season... not everyone is experiencing this same gift

Living Our Breast Lives Info:

Instagram:

@livingourbreastlives

Where can I Donate?

Donate to Stage IV Research:

donate.metavivor.org

It's the holidays again! Join Wren for this holiday solo episode as her feelings and emotions take center stage, survivors guilt is prevalent, gratitude is beaming, and she holds nothing back in addressing the heartache that accompanies every piece of bad news for the MBC community.

Join Living Our Breast Lives founder and host, Wren, for another solo episode as she discusses how she is feeling during the 2023 holiday season. Feelings and emotions are running rampant, survivors guilt is in full swing, gratitude is very much so present, and Wren certainly does not hold back as she discusses the heartache she feels each and every time there is another loss in the MBC community. We must remember, THEIR STORY IS NOT OUR STORY.

Resources:

Instagram: @livingourbreastlives

Join Living Our Breast Lives founder and host, Wren, for another solo episode as she discusses how she is feeling during the 2023 holiday season. Feelings and emotions are running rampant, survivors guilt is in full swing, and Wren certainly does not hold back as she discusses the heartache she feels each and every time there is another loss in the MBC community.

We must remember, THEIR STORY IS NOT OUR STORY.

Resources:

Instagram: @livingourbreastlives