Living Transplant: Patient Stories | Organ Donation | Medical Experts

In this episode of the Living Transplant podcast, host Candice Coghlan was joined by Kelsey Hannah, an OR nurse and mother who went on a journey of health and wellness to lose weight to save her mother's life by donating a portion of her liver to her. We talked about her journey of self reflection, empowerment, dedication, and what it felt like to juggle life while the clock ticked down getting closer to her mother needing that gift of life of a liver transplant.

We were later joined by Chantal Wiggins, a Transplant Coordinator at the Ajmera Transplant Centre in the Living Donor Liver Program. We spoke about the processes that donors have to go through to ensure their health and safety, memorable moments in her career, and what it feels like to get to be part of a team that truly saves lives.

The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network. 

To learn more about living liver donation, please visit https://www.uhn.ca/Transplant/Living_Donor_Program/Pages/living_liver_donor.aspx 

Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at [email protected]

Thanks for spending your time with us.

WELCOME TO SEASON 5! In this episode, host Candice Coghlan was joined by Vanessa Tait, a Cree woman from O-Pipon-Na-Piwin Cree Nation who put her heart and soul into supporting her father, Kenneth, through his kidney health journey. She uprooted their lives to move from her father's home community of O-Pipon-Na-Piwin Cree Nation, over 700km north of Winnipeg, to the city to access dialysis, as there were no hemodialysis machines and no capacity to do home dialysis, with the lack of access to large amounts of water needed. While in Winnipeg, Vanessa was his primary caregiver. We spoke about their journey together, the medical barriers they and many other First Nations patients face, and the decision for Vanessa to give the gift of life, a kidney to her father, despite his chances of survival being long so he could live his days out in community, surrounded by loved ones. 

We were later joined by Dr. Michael Anderson from the Urban Indigenous Community in Toronto. He is Mohawk Bear Clan and mixed European with family roots in Tyendinaga Mohawk Territory. He practices surgical oncology in palliative care medicine and is the strategic lead for Indigenous Health at the University Health Network. We spoke about ethical Indigenous community healthcare research partnerships, grief, healing, and Indigenous conceptualizations of death and dying.

This episode is dedicated, in loving memory to Vanessa's "daddio", Kenneth.

The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network. 

Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at [email protected]

Thanks for spending your time with us.

*** CONTENT WARNING***
 A note to our listeners, this episode comes with a content warning as we discuss death, dying, and palliative care. We also discuss barriers to care for Indigenous communities. This is simply to empower you, our audience, with the knowledge that you may need to make healthy decisions about how or if you should consume this podcast content.  If you need resources or support, you can visit the Hope for Wellness helpline, which offers immediate help to all Indigenous people across Canada, available 24/7 with immediate support and crisis intervention. You can call the toll free helpline at 1 855 242 3310, or you can connect to the online chat at hopeforwellness.ca. You can also reach out to the Bereaved Families of Ontario Organization at www.bereavedfamilies.net or call them at 416 440 0290.  

For more information about the UHN Indigenous Health Program, please visit: https://uhnfoundation.ca/stories/fostering-a-healthier-relationship-to-improve-access-to-high-quality-care-for-indigenous-communities/ 

To watch Vanessa Tait's documentary, Gift to Give please visit: https://gem.cbc.ca/gift-to-give/s01 

To watch Vanessa Tait's Great Actions Leave a Mark interview, please visit: www.greatactions.ca 

To learn more about living kidney donation, please visit: https://www.uhn.ca/Transplant/Living_Donor_Program/Pages/living_kidney_donor.aspx 

In this episode, host, Candice, is joined by Melissa Sidhu who works in healthcare, is a passionate volunteer and living liver donor to her brother over 10 years ago. We spoke about her journey as a donor, relationships with loved ones, how to find tiny moments of joy and gratitude throughout this episode.

You will also hear clips from members of the transplant community sharing their gratitude.

The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.

To learn more about living liver donation, please visit https://www.uhn.ca/Transplant/Living_Donor_Program/Pages/living_liver_donor.aspx

To listen to all of our submissions of gratitude, please visit https://drive.google.com/drive/folders/13Di_gaucmChOR7tDB873mGsCQAgh9zkD?usp=sharing 

To read messages of gratitude, please visit bit.ly/LDW23TX

In this episode, host Candice Coghlan sat down with Afsana Lallani, a cat lover and nursing graduate who made a public social appeal to find a living liver donor to save her life. They talk about being young and living with a chronic illness, facing death and how a supportive community can make all the difference. They are later joined by Dilshad Lallani, Afsana’s mother, caregiver and a pediatric nurse practitioner. She speaks about the family journey in supporting someone on the transplant waitlist, being an emotional support and what it was like being a nurse practitioner living through the process with her daughter on the verge of death. 

The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General Hospital or University Health Network.

For more information about PSC, please visit https://www.liver.ca/patients-caregivers/liver-diseases/primary-sclerosing-cholangitis/ 

For more information about finding a living donor, please join one of the Centre's free virtual Finding a Living Donor Webinars, by registering at http://givelifeuhn.eventbrite.ca 

In this episode, we're celebrating Living Donation Week. Host, Candice was joined by Sylvie Charbonneau, past president of the Kidney Foundation of Canada, advocate, change maker, and living kidney donor to her son. We were also joined by Dr. Joseph Kim, Director of the Kidney Transplant Program at the Ajmera Transplant Center. We discussed barriers and changes that need to be made to increase access to organ donation as a whole across Canada and how we can support others to receive and give the gift of life.

For more information about living kidney donation, please visit https://www.uhn.ca/Transplant/Kidney_Transplant_Program 

For more information about the ODTC Collaborative, please visit https://profedu.blood.ca/en/organs-and-tissues/practices-and-guidelines/current-projects/odtc-projects 

If you have questions, please reach out to us at [email protected]

The views and opinions in this episode do not necessarily reflect the official policy or position of Toronto General Hospital or University Health Network.

In this episode, host Candice, takes you behind the scenes of the Ajmera Transplant Centre's 2nd Annual Education and Research Conference, to hear about incredible science, clinical, and research aspects of transplantation. Hear from the following:

Samrat Ray: Expanding the transplant pancreas donor, using an ex vivo perfusion model.

Adriana Roberta: Determining the impact of certain mismatches, which are located in the DQ Loco and the development of chronic rejection.

Javier Solera: The severity of COVID 19 Omicron variant and Omicron specific immune responses in solid organ transplant patients.

Lakshmi Kugathasan: Systematic review and network meta analysis research in induction therapy in heart transplantation.

Bonnie Chao: Machine learning approaches to processing and interpreting ex vivo lung radiographs and predicting transplant outcomes.

Dr. Laura Donahoe: Improving the quality of lung transplantation through a technical skills simulation program for surgical lung transplant fellows. 

Christina Lam: Fibrinogen like protein 2 molecule and how it influences the development of thymic regulatory T cells. 

Luckshi Rajendran: The Toronto management of initially unresectable liver metastasis for colorectal cancer  in a living donor liver transplant program.

For more information about the Ajmera Transplant Centre's program, please visit www.uhntransplant.ca 

For more information about Dr. Laura Donahoe's Take-Home Surgical Anastomosis Simulation Model, please visit: https://pubmed.ncbi.nlm.nih.gov/37202320/ 

If you have questions, please reach out to us at [email protected]

The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General Hospital or University Health Network.

In this episode, host Candice Coghlan was joined by Justin Poy, a father, entrepreneur, and businessman who has lived with multiple types of renal replacement therapy since the age of 10, including three kidney transplants, hemodialysis, peritoneal dialysis, as well as home dialysis. Justin spoke about mental health, resiliency, parenting with a chronic illness, and how to appreciate each day. Later we were joined by Dr. Samantha Anthony, the first person to hold the title of Health Clinician Scientist in Canada, Transplant and Regenerative Medicine Center, Department of Social Work, Child Health Evaluative Science Research Institute at SickKids. Together, we explored the medical journey and tools to support children, youth, and families created from the perspective of those who live with it. We also spoke about post traumatic growth and the whole family journey. 

For more information about peer support, please visit https://kidney.ca/support 

For more information about living kidney donation, please visit www.livingorgandonation.ca

For more information about Dr. Samantha Anthony's work, please visit https://lab.research.sickkids.ca/anthony/anthony-lab/ 

If you have questions, please feel free to reach out to us at [email protected]

The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General Hospital or University Health Network.

In this episode, host Candice Coghlan sat down with Tara Lisabeth, who received not one, but two double lung transplants at a young age. She spoke about life with cystic fibrosis, what it felt like to take deep breaths and how transplant gave her the opportunity to walk down the aisle and get married. Later we were joined by Dr. Marcelo Cypel, the Surgical Director for the Ajmera Transplant Centre at UHN and UHN ECLS Program, among many other accolades, who also performed Tara's first double lung transplant. He spoke to us about innovations to expand the donor pool and create more viable lungs for transplant with therapies like light based therapy to inactivate hepatitis C virus, a universal blood type, lung preservation and repair with Ex Vivo, and what it is like leading and being part of a team who has now celebrated the 3000th lung transplant.

For more information about Cystic Fibrosis, please visit: https://www.uhn.ca/Transplant/Lung_Transplant_Program/Pre-Transplant/Pages/cystic_fibrosis.aspx 

For more information about the UHN Lung Transplant Program, please visit: https://www.uhn.ca/Transplant/Lung_Transplant_Program 

For more information about the Ex Vivo Lung Perfusion System, please visit: https://uhnfoundation.ca/stories/out-of-body-experience/ 

The views and opinions expressed in this episode do not necessarily relfect the official policy or position of Toronto General Hospital or University Health Network.

In this episode host, Candice Coghlan sat down with Craig Lindsay, the Senior Manager of Programs and Public Policy for the Kidney Foundation of Canada, Ontario Branch. Craig not only works tirelessly supporting this community, but he's also part of it, having lived with diabetes, which eventually caused his kidneys to fail. Craig did home dialysis for many years before receiving a kidney/pancreas transplant, curing his diabetes. Later, we were joined by Dr. Trevor Reichman, Surgical Director of the Pancreas and Islet Transplant Program and Associate Professor of Surgery at University of Toronto. He spoke to us about the life saving and life changing innovation behind pancreas and islet stem cell transplants. We hear about the minimally invasive procedure with islet stem cells, and how the end of type 1 diabetes could be in our near future, changing the quality of life for millions of Canadians.

For more information about the Kidney Foundation, please visit www.kidney.ca

For more information about the Pancreas and Islet Stem Cell Transplant Program, please visit https://www.uhn.ca/Transplant/Pancreas_Transplant_Program#:~:text=A%20whole%2Dorgan%20pancreas%20transplant,the%20cells%20that%20make%20insulin. 

For more information about Dr. Reichman's stem cell therapy work, please visit https://uhnfoundation.ca/stories/stem-cell-therapy-could-cure-diabetes/ 

The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General Hospital or University Health Network.

In this episode, host Candice Coghlan sat down with Shilpa Raju, an epidemiologist who finished her degree while battling cancer. She survived the cancer, however unfortunately the side effects from her treatment caused severe lung damage, resulting in her need for a double lung transplant. Shilpa spoke about being a young person battling illness and trying to keep a sense of normalcy and positivity through her day to day. Later, we were joined by Dr Mamatha Bhat, a staff hepatologist and clinician scientist at UHN's Ajmera Transplant Program and University of Toronto's division of gastroenterology. She speaks to us about machine learning and AI implications for health care and how it is going to revolutionize the world of transplant and beyond.

To learn more about Dr. Bhat's research in Artificial intelligence, machine learning and deep learning in liver transplant visit:  https://pubmed.ncbi.nlm.nih.gov/37208107/ 

For information about living organ donation visit www.livingorgandonation.ca or www.uhntransplant.ca 

You can also reach out to us directly at [email protected] 

The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General Hospital or University Health Network.