Living with FASD

By Patricia Kasper

The biggest hidden-in-plain sight epidemic we face is FASD, Fetal Alcohol Spectrum Disorders, affecting 1:14 people to varying degrees and in differing ways.

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FAQs about Living with FASD:

How many episodes does Living with FASD have?

The podcast currently has 146 episodes available.

Living with FASD episodes:

April 15, 2024 Refracted Realities: Exploring FASD Across Generations with Neil Turley
In this profound episode of Living with FASD, host Patti
Kasper is joined by Neil Turley, a cherished member of the FASD community and an active participant on the Flying with Broken Wings Facebook page. Neil, like Patti, discovered his FASD later in life, and in this candid conversation, he shares the complexities of living with this diagnosis and the impact it has had on his family dynamics.
Neil opens up about his family's history with alcohol, the
stigma surrounding FASD, and the challenges he faced in seeking understanding and acceptance from his loved ones. He delves into his personal journey of self-discovery, including his realization during an ayahuasca healing circle
that he was living with FASD, and the subsequent struggles with suicidal ideation as he reframed his life around this new understanding.
Listeners will be moved by Neil's reflections on the role
alcohol played in his family across generations and his hypothesis on being a second-generation individual with FASD. He discusses the barriers to acknowledgment within his own family and the broader community, highlighting the pervasive stigma that often silences those affected.
As Neil prepares for a comprehensive FASD assessment and looks forward to connecting with others at an upcoming conference in Seattle, he shares his insights on the importance of embracing one's dysmaturity as a
representation of innocence and beauty. His message is one of hope, encouraging listeners to be open, transparent, and to find safe spaces where they can be
warmly received and grow.
For anyone touched by FASD, Neil's story is a testament to
the resilience and courage it takes to live authentically and to seek light amidst the shadows. Share your thoughts and questions at [email protected] and you can also reach me there if you are interested in FASD training or coaching.
Remember to subscribe and share this episode to support the journey of understanding FASD. If this episode was meaningful to you, I would invite you to consider becoming a member of the Living with FASD Podcast
community at patreon.com/LivingWithFASDPodcast. Membership is free, but you will have the opportunity
to support the costs of producing this podcast by joining on a paid level, either $5, $10 or $15/month; all of which is less than the cost of a weekly cup of coffee, and any level of support helps spread this podcast out into the world!
Tune in next time for another engaging conversation that
promises to enrich your perspective on life with Fetal Alcohol Spectrum Disorders.
Until next time,
Patti, Your FASD Coach

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56min
April 08, 2024 FASD Service Dogs with Donnie Winokur & Jodee Kulp
In this heartwarming and educational episode of Living with FASD, host Patti Kasper is joined by two remarkable guests, Jodee Kulp and Donnie Winokur, to explore the transformative impact of FASD service dogs.
Donnie, the parent of the first child to receive an FASD service dog, shares her family's touching journey, from the challenges of raising a child with FASD to the incredible support and companionship provided by their service dog.
Listeners will be treated to an in-depth discussion about
the comprehensive training these dogs undergo, the profound connection they share with their handlers, and the life-changing benefits they bring to families affected by FASD.
The episode delves into the nuances of service dog assistance, from sensory regulation and emotional support to practical interventions like tracking and preventing elopement.
Jodee Kulp, an expert in the field, illuminates the process
of training and matching service dogs with children and adults with FASD, emphasizing the significance of building trust and understanding the unique needs of each individual. The conversation also touches on the financial
aspects and community involvement in acquiring a service dog, offering valuable insights and advice for those considering this path.
Don't miss the inspiring stories, laughter, and a few
surprising moments that highlight the incredible bond between service dogs and their handlers. Whether you're a parent, caregiver, or individual living with FASD, this episode is sure to open your eyes to the potential of service dogs as a life-enhancing tool.
For more information on obtaining a service dog for FASD, be sure to reach out to Patti at [email protected]. And remember to subscribe, share, and join us next Monday for another enriching episode of Living with FASD.
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53min
April 01, 2024 From Misunderstood to Mentor with RJ Formanek
Join us on a profound journey in this episode of Living with FASD, where host Patti Kasper sits down with the remarkable Mr. R.J. Formanek, a cherished figure in the FASD community. R.J., a man who has walked the path
of self-discovery and triumph, opens up about his late diagnosis at age 47 and how it reshaped his understanding of his past struggles and behaviors.
R.J. delves into the intricacies of brain function, the
phenomenon of myelination, and the ongoing development of the brain in individuals with FASD. His insights challenge the status quo, offering hope to young adults on the spectrum that growth and learning continue well beyond what is typically expected.
Listeners will be captivated by R.J.'s tales of resilience,
from his tumultuous childhood through foster care to his eclectic professional life, which spans from television production to long-haul truck driving. His experiences underscore the importance of patience, self-forgiveness, and the power of a supportive community.
R.J. also shares his involvement with the initiative
"Never Too Late," aiming to ease the transition for young adults aging out of the system, and his role in the symbolic Red Shoes Rock campaign, which brings visibility and awareness to FASD.
This episode is a treasure trove of wisdom, encouragement, and a testament to the strength that lies within the FASD community. R.J.'s message is clear: individuals with FASD are not defined by their challenges,
but by their potential and the unique perspectives they bring to the world.
For anyone touched by FASD or seeking a deeper understanding of this often-misunderstood spectrum, this conversation with R.J. Formanek is a must-listen. Tune in, share, and help us spread the word about the realities of
living with FASD. Together, we can illuminate the path forward and celebrate the diverse voices that make our community shine.
Remember to subscribe to Living with FASD for more inspiring stories and insights, and join us next week for another enriching episode.
Until then, keep learning, keep sharing, and keep believing in the incredible potential of those living with FASD.
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56min
March 25, 2024 Parenting Your Porcupine, Part 1, with Antonia Rathbun Lindsey
Living with FASD is an educational and human interest show for those living with the effects of prenatal exposure to alcohol, their loved one and anyone interested in learning more about Fetal Alcohol Spectrum Disorders, brought to you by someone with both professional and living experience with FASD.

Antonia Rathbun Lindsey is a retired Registered Art Therapist, Board Certified Child and Family Therapist, and credentialled Disabilities and Minorities Specialist who has written a book for professionals and parents called Parenting Your Porcupine: A Toolkit for Working with Children with FASD, other Drug Effects & Neurodiversity. She discusses a diathesis stress approach to attunement, authenticity and attachment, using art therapy and sensory-based, communication and interactive repair strategies gleaned from 30 years work in the first wave of research and clinical intervention with foster, adoption, kinship and recovering birth families of young children to young adults with neurotoxin exposure and trauma in treatment, outpatient mental health and culturally-based community programs. She was Late Deafened and physically disabled by a progressive genetic condition 25 years into her career, has lived experience with neurodivergence and invisible difference; she joins us from her studio in France where she paints, writes and provides consultation by Zoom in English, German, French, ASL “and bad Dutch.”

If you would like to suggest topics of the show or just to say hello, you can reach me at [email protected].

If you would like to become part of the podcast community, hop on over to Facebook and join our group “Living with FASD Podcast.” Another excellent supportive community is “Flying with Broken Wings,” also on Facebook.
To order a copy of my book, Sip by Sip: Candid Conversations with People Diagnosed as Adults with Fetal Alcohol Spectrum Disorders (FASD), the Amazon link is: https://www.amazon.com/dp/B0CGMQLBLH.
As soon as Parenting Your Porcupine is out, I will
share ordering information; I have previewed it and it is AMAZING!

I am a Certified Facilitator of FASCETS Neurobehavioral
Model. If you would like information about the neurodevelopment model and would like to book a training for agencies or community groups, please reach out to me here: https://calendly.com/kaspertrainingandcoaching/consultation
If you would like to talk with me about coaching services,
either as a parent of a child with FASD, or as a neurodivergent adult (perhaps by listening you’ve begun to question if prenatal alcohol exposure could explain some of your struggles in life), please reach out to me here for a complimentary consultation: https://calendly.com/kaspertrainingandcoaching/introductory-chat-with-patti

As always, thank you for tuning in this week. Please
consider liking/subscribing/sharing this podcast. Have a wonderful week and stay tuned for Parenting Your Porcupine, Part 2!
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59min
March 18, 2024 Decoding Alexithymia: a Guide for FASD Families with Dr. Jerrod Brown
In this insightful episode of Living with FASD, host Patti Kasper,
your FASD coach, welcomes back Dr. Jerrod Brown for a deep dive into the world of alexithymia and its intersection with FASD. Alexithymia, often described as emotional blindness, is a complex condition that affects an individual's ability to process, label, and understand emotions. Dr. Brown elucidates the multifaceted nature of alexithymia, detailing how it can manifest as empathy
deficits, limited imagination, and concrete thinking, often leading to challenges in personal relationships and social interactions.
Listeners will learn about the prevalence of alexithymia in
various populations, including those with conditions similar to FASD, and the importance of awareness and education in managing this challenge. Dr. Brown emphasizes the role of psychoeducation, not only for those living with alexithymia but also for their loved ones, as a means to foster compassion and
patience.
The conversation also explores a range of therapeutic
interventions, from mindfulness and yoga to group therapy and creative arts, highlighting the potential of movement and expression in unlocking bottled-up emotions. Dr. Brown and Patti discuss the significance of cultivating self-awareness and the impact of cultural and familial factors on emotional
development.
For anyone seeking to understand the nuances of emotional
processing challenges within the FASD community, this episode is a treasure trove of knowledge and practical advice. Share your thoughts and questions at [email protected] and join us for more enlightening discussions on Living with FASD.
Remember to subscribe and share this episode to support the
journey of understanding FASD. Tune in next time for another engaging conversation that promises to enrich your perspective on life with Fetal Alcohol Spectrum Disorders.
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37min
March 11, 2024 The Superpower Within: FASD and Embracing Inner Strengths with Emily Hargrove
In this invigorating episode of Living with FASD, host Patti
Kasper welcomes back the insightful and dynamic Mrs. Emily Hargrove from the adult leadership collaboration of the FASD change makers. Emily, a vibrant advocate and mother-to-be, returns to share her latest ventures and the ongoing mission to amplify the voices of adults with Fetal Alcohol Spectrum Disorders (FASD).
Emily updates us on her life as a soon-to-be mom of two, her
involvement with the FASD change makers, and the group's efforts to influence research and policy. She emphasizes the importance of holistic perspectives in understanding FASD, not just as a developmental issue but as a condition affecting the entire body.
Listeners will learn about the upcoming FASD conference in
Seattle, where Emily and her colleagues will present their groundbreaking work on quality of life for adults with FASD. They'll discuss the urgent need for supports that extend beyond childhood and how the lack thereof contributes to continued adverse experiences.
Furthermore, Emily gives us a sneak peek into her upcoming
children's book, "FASD is My Superpower," designed to help kids
understand and embrace the strengths of their diagnosis. This interactive book with journal prompts is a beacon of hope and empowerment for young readers and their caregivers.
Delving into her academic pursuits, Emily shares her PhD
research project at Walden University, which explores the spiritual experiences and faith formation of adults with FASD. This unique study seeks to understand how abstract reasoning, often a challenge for those with FASD, impacts spiritual expression and connection.
As we gear up for the Seattle conference, Emily also teases
a documentary in collaboration with Dr. Christy Petrenko and training footage with the CDC, showcasing the ALC's commitment to making a real social change.
For those interested in participating in Emily's research,
volunteering for it while at the conference, or simply seeking resources and support, this episode is packed with information and inspiration. Emily's message is clear: it's time for the FASD community to speak up, challenge stigma, and pursue advocacy with fervor.
To connect with Emily about participating in her research,
email her at [email protected]
To be kept abreast on the exact launch date of her book, FASD is My Superpower, Helping Kids Understand the Strengths of Their Diagnosis, check out her webpage. https://www.emilyhargrovefasdcounselingandconsulting.com
or email Emily at [email protected]
To watch the video Emily referenced on the ALC-FASD
Changemakers presentation to the CDC, go to https://youtu.be/PNVH3Rhr3Wg?si=W20hpc6RKIhwX0ji
To listen to the FASD Family Life episode with Emily Hargrove, CJ Lutke and Myles Himmelreich, go to https://open.spotify.com/episode/3zKpMbRFu1UAQCvqw0j0I0?si=b9b64a9804ea41da
Don't forget to subscribe, share, and join us for the next
enlightening episode of Living with FASD. Together, we can cultivate understanding and strengthen the voices of individuals living with FASD.

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52min
March 04, 2024 Beyond the Diagnosis: Danielle’s Quest for Understanding and Advocacy in FASD
In this compelling episode of Living with FASD, join host
Patti Kasper as she continues the series on adults living with FASD, offering a window into their unique experiences. Today's guest, Danielle Finnegan, shares her journey from British Columbia, discussing the personal impact of FASD and
the path to her diagnosis at age 33.
Danielle's story is one of resilience and self-discovery, as
she recounts the anger and frustration she felt upon learning of her condition, and how it explained the challenges she faced throughout her life, particularly with reading, writing, and math. Her candid conversation with Patti delves into the difficulties of maintaining employment and the constant judgments she
endures due to the invisible nature of her disability.
Listeners will be inspired by Danielle's tenacity and her
creative approach to advocacy, including her work on a documentary film titled "FASD Glimmers," which has garnered widespread positive feedback and increased awareness of FASD. To see her video on YouTube, go here: https://youtu.be/nWI2zM46F60?si=biv3WEnUvBHMJq_N
Patti and Danielle also explore the importance of humor,
family support, and community in navigating life with FASD. They touch on the pitfalls of societal expectations and the need for grace and understanding rather than judgment.
As an advocate for the FASD community, Danielle shares her
involvement in raising awareness through social media and potential speaking engagements, highlighting the significance of visibility and education in combating the stigma associated with FASD.
For an enlightening and thought-provoking discussion that
sheds light on the diversity and complexity of living with FASD, tune in to this episode of Living with FASD. Remember to share this podcast to spread awareness and support those affected by prenatal alcohol exposure. If you have suggestions for future topics or guests, reach out to [email protected].
You can join the conversation in the Living with FASD Podcast Facebook group, the Saltspring and Gulf Islands FASD Facebook Group or the Flying With Broken Wings Facebook Group.
Stay tuned for more insightful episodes every Monday, and in
the meantime, keep learning and advocating for a better understanding of FASD.
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34min
February 26, 2024 The Mosaic of Mind: Josh Bechtel on the Art of Navigating FASD
In this heartfelt episode of Living with FASD, join host
Patti Kasper as she engages in an intimate and enlightening conversation with Josh Bechtel, an adoptee, poet, author, artist, and editor. With his creative spirit and candid reflections, Josh shares his journey of discovery and understanding of living with Fetal Alcohol Spectrum Disorders (FASD).
Josh grew up in Oregon, but moved to Virginia, where he worked for several years at a children's home and then at a men's rehab. He has written several books, which you can find on his Amazon author page, at https://www.amazon.com/stores/Joshua-Bechtel/author/B00J9XEEJC?ref=ap_rdr&isDramIntegrated=true&shoppingPortalEnabled=true
You can also request signed editions by ordering directly from Josh at [email protected] . The art gallery's website is
www.whiterabbitgalleries.org and Josh's website is
www.findingmyvoice.us.
Josh opens up about the moment he realized that FASD was a
part of his life, and how that knowledge transformed his self-perception. He sheds light on the challenges he faces, such as spatial relation difficulties and struggles with math, and how these impact his daily life, including his decision not to drive. His story is a testament to the unique experiences of those living with FASD and the importance of recognizing and respecting these
differences.
Throughout the episode, Josh and Patti discuss the complexities of adaptive functioning versus intellectual ability, the therapeutic role of art in self-expression, and the power of community support.
They also touch on sensitive topics like spiritual abuse and the journey t owards self-acceptance and grace.
Listeners will be inspired by Josh's resilience and his
unconventional approach to advocacy through his art and writing. Patti reminds us that each person's experience with FASD is as unique as their fingerprint, and that understanding and grace are key in supporting individuals and families affected by FASD.
For a dose of encouragement and a glimpse into the life of a
successful adult living with FASD, don't miss this episode. And remember, every story shared is a step toward greater awareness and compassion.
These are the links to Josh's books and his art studio, White Rabbit Galleries:

If you have topics to suggest, questions, or would like to
recommend guests for future episodes, reach out at
[email protected]. Help us spread the word by liking, sharing, and subscribing to the podcast.
Join us next Monday for another insightful installment of Living with FASD. Until then, take care and keep learning.
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1h 1min
February 19, 2024 FASD, Foster Care & Future Generations, with Dr. Susan Rich
Welcome back to Living with FASD, the podcast that shines a
light on the complexities of life with Fetal Alcohol Spectrum Disorders (FASD). I'm your host, Patti Kasper, your FASD coach, and this week, we're diving deep into the intersection of FASD and the foster care system with the return of Dr. Susan Rich, a child psychiatrist whose expertise in FASD has transformed the
lives of many.
In this compelling episode, we tackle the staggering
prevalence of Neurodevelopmental Disorder from Prenatal Alcohol Exposure (ND-PAE) within foster care and question the efficacy of current social services. Are we truly aiding these children, or are we exacerbating their struggles? Dr. Rich brings her forensic experience to the forefront, discussing the often overlooked role of prenatal alcohol exposure in the lives of those
entangled within the legal system.
It is important to remember that FASD is often unidentified
because it presents differently in each and every individual it affects.
We also explore the groundbreaking work being done in
transitional housing for women in recovery, like Grace Court, which offers a beacon of hope for families affected by substance use. Dr. Rich and I discuss the importance of education, early intervention, and the need for a paradigm shift in how we support affected individuals—starting with the recognition of FASD as a national public health and national security crisis.
This episode is a must-listen for anyone involved in foster
care, adoption, social work, or public health, as well as individuals and families living with FASD. We invite you to join us in this eye-opening conversation as we challenge societal norms and advocate for change.
I am a Certified Facilitator of FASCETS Neurobehavioral
Model. If you're seeking resources, support, or training on FASD, please reach out to me for professional development opportunities at https://calendly.com/kaspertrainingandcoaching/introductory-chat-with-patti.
To connect with our community and continue the conversation, join our "Living with FASD Podcast" Facebook group or the Flying With Broken Wings Facebook Group.
To order a copy of Susan’s book, The Silent Epidemic: A Child Psychiatrist’s Journey beyond Death Row, Understanding, Treating & Preventing Neurodevelopmental Disorder Associated with Prenatal Alcohol Exposure… go here: https://a.co/d/1gNqDu4
To order a copy of my book, Sip by Sip: Candid Conversations
with People Diagnosed as Adults with Fetal Alcohol Spectrum Disorders (FASD), the Amazon link is: https://www.amazon.com/dp/B0CGMQLBLH
Thank you for tuning in to this important discussion. Remember to like, subscribe, and share this podcast to help us spread awareness and foster understanding. Together, we can make a difference in the lives of those affected by FASD.
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55min
February 12, 2024 FASD & Education: Beyond Diagnosis in IEP Meetings, with Kelly Rain Collin
In this insightful episode of Living with FASD, we delve into the
complexities of navigating the education system for children with Fetal Alcohol Spectrum Disorders. Join host Patti Kasper as she welcomes Kelly Rain Collin, founder and director of Healthy Minds Consulting, for a deep dive into the world of Individualized Education Programs (IEPs) and the unique challenges faced by families and educators in supporting students with FASD.
Her academic background encompasses degrees in Child
Development/Child Mental Health, Psychology, and Education with a specialization in Risk and Prevention. With over three decades of experience working with high-risk children and a focus on child mental health and FASD advocacy, Kelly brings a wealth of knowledge to the table. She sheds light on the importance of brain-based approaches in education and offers practical advice for parents dealing with the stress and anxiety surrounding IEP meetings.
This candid conversation explores the significance of
acknowledging FASD as a physical disability that affects learning and behavior, and how this understanding can transform the support provided to students. Kelly's expertise in educational advocacy shines as she discusses strategies for effective collaboration between families and schools, despite systemic
challenges and financial constraints.
Whether you're a parent feeling dismissed at IEP meetings, an educator seeking to understand FASD better, or simply someone interested in child mental health, this episode is packed with valuable insights and actionable tips.
Learn how to advocate for the needs of children with FASD and create more inclusive, accommodating educational environments.
You can reach Kelly at the following links:
website HealthyMindsConsulting.com
Twitter.com/HealthyMindsNow
Facebook.com/HealthyMindsNow
Instagram.com/Healthy_Minds_Now
LinkedIn.com/Company/Healthy-Minds-Consulting
linkedin.com/in/kellyraincollin

FASD & the IEP Mentorship Coalition:
https://www.healthymindsconsulting.com/fasd-iep-mentorship-coalition/
Kelly's Template letter for requesting special education/IEP assessment of a student with FASD:
https://www.healthymindsconsulting.com/request-assessment-fasd/
For Information about Healthy Minds' trainings:
https://www.healthymindsconsulting.com/trainings/

For Educators interested in trainings on FASD:
https://www.fasdnow.org/webinar-registration

To order a copy of my book, Sip by Sip: Candid Conversations with People Diagnosed as Adults with Fetal Alcohol Spectrum Disorders (FASD), the Amazon link is: https://www.amazon.com/dp/B0CGMQLBLH

I am a Certified Facilitator of FASCETS Neurobehavioral Model. If
you would like information about the neurodevelopment model and would like to book a training for agencies or community groups, please reach out to me here:
https://calendly.com/kaspertrainingandcoaching/consultation
If you would like to talk with me about coaching services, either
as a parent of a child with FASD, or as a neurodivergent adult (perhaps by listening you’ve begun to question if prenatal alcohol exposure could explain some of your struggles in life), please reach out to me here for a complimentary consultation: https://calendly.com/kaspertrainingandcoaching/introductory-chat-with-patti
Remember, you can always reach out to me for topic suggestions or just to say hello at [email protected]. And if you're looking to make a difference, consider liking, subscribing, and sharing this podcast.
Until next time, take care and keep advocating for a better
understanding of FASD.

Show notes created by https://headliner.app
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57min

FAQs about Living with FASD:

How many episodes does Living with FASD have?

The podcast currently has 146 episodes available.