If you enjoy Living with FASD, please go to www.womenpodcasters.com/awards and choose Living with FASD in the Wellness category, for people’s choice award being sponsored by Women Podcasters.

Winning the competition would bring in many listeners who would learn about FASD!

In this episode of Living with FASD, host Patti Kasper engages in a deep conversation with Jake Tjapkes, who shares his personal journey with Fetal Alcohol Spectrum Disorder (FASD). They discuss the challenges faced by individuals with FASD, the impact of prenatal alcohol exposure, and the systemic issues within the foster care and justice systems.

Jake emphasizes the importance of awareness, advocacy, and the need for legislative changes to support those affected by FASD. The conversation highlights the complexities of living with FASD and the necessity for a compassionate understanding of the experiences of individuals and families impacted by this condition.

If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services through Kasper’s FASD Life Coaching & Training, LLC.

If you would like to pick up a copy of her book, Sip by Sip: Candid Conversations with Adults Living with FASD, you can easily order it at books.by/yourfasdcoach or Amazon. Both options are print on demand, but lower overhead enables books.by to pay its authors a few more dollars in royalties.

If you would prefer a male FASD life coach, or would like to reach Jake for other reasons, visit his website at www.mendingbrokenwings.com or email him at [email protected].

Chapters

00:00 Introduction to FASD and Personal Stories

02:04 Jake's Early Life and Foster Care Experience

05:59 Understanding Closed Case Adoptions

08:58 The Impact of Prenatal Exposure to Alcohol

11:46 Cultural Perspectives on Alcohol Consumption

14:57 The Journey to FASD Diagnosis

21:07 Experiences in the Juvenile Justice System

25:29 Creative Culinary Adventures

26:00 Therapeutic Approaches in Care

27:29 Understanding Behavioral Patterns in FASD

29:08 Navigating the World of FASD

30:37 Confabulation and Memory Challenges

32:20 The Importance of Fact-Checking

34:17 The Journey to Diagnosis

36:37 The Complexity of FASD

38:03 Challenges of Employment and Self-Sufficiency

39:59 Transitional Years and Life Choices

42:21 Rethinking Functionality in FASD

44:06 The 3D Model of FASD

46:40 Customization in Care

48:01 The Impact of Alcohol and Trauma

51:32 Understanding Teratogens and Their Effects

54:16 Understanding ADHD and Neurodiversity

56:40 Compassion and Acceptance in Family Dynamics

01:00:00 Fostering Awareness and Support for Foster Parents

01:02:02 The Importance of Early Identification and Testing

01:10:00 Addressing Alcohol's Impact on Pregnancy and FASD

01:17:58 Advocating for Policy Changes and Future Hope

If you enjoy Living with FASD, please go to www.womenpodcasters.com/awards and choose Living with FASD in the Wellness category, for people’s choice award being sponsored by Women Podcasters. Winning the competition would bring in many listeners who would learn about FASD!

In this episode, Patti Kasper and Barb Clark delve into the complexities of Fetal Alcohol Spectrum Disorder (FASD), focusing on the concepts of anosognosia, denial, and delayed remorse. They discuss the impact of stress and anxiety on behavior, the importance of effective communication, and the LEAP method for engaging with neurodivergent individuals. The conversation highlights the significance of timing in discussions, the role of support systems, and the challenges of labeling in educational settings. Ultimately, the episode emphasizes the need for understanding and compassion in supporting those with neurodivergent conditions.

Barb Clark , a beloved trainer & coach in the FASD community with both professional and living experience with FASD, is known for her down-to-earth style, & blend of honesty, humor, and practical wisdom, training with compassion and clarity on tough topics like raging, lying, and stealing. She has trained thousands across the U.S. and Canada. So let’s get started with this candid conversation.

As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.

Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD is available at books.by/yourfasdcoach

Barb's book, "Raising Kids and Teens with FASD," is available here: https://a.co/d/0acN3Wdb

Link to the LEAP Institute: https://leapinstitute.org/

Link to the TedTalkon anosognosia by Xavier Amador, PhD: https://youtu.be/NXxytf6kfPM?si=W3W6Y_dYD95293Ub

Chapters

00:00Introduction to FASD and Anosognosia

03:07Understanding Denial, Anosognosia, and Delayed Remorse

06:05The Impact of Safety and Delayed Remorse in Social Work

08:58Exploring the Role of Fascia and Prenatal Alcohol Exposure

11:57The LEAP Method for Effective Communication

14:55Distinguishing Between Denial and Anosognosia

18:01The Importance of Listening and Empathy

21:01Understanding Delayed Remorse and Its Effects

23:59Navigating Anxiety and Dysregulation in Medical Settings

26:27Advocacy and Self-Advocacy Skills

28:13Understanding Anosognosia in Children and Teens

30:20Anosognosia in Adults and Its Impact on Relationships

34:06Hoarding and Anosognosia: A Deeper Look

36:02Supporting Individuals with Delayed Remorse

40:06The Importance of Silence and Processing Time

44:36Neurodiversity and Anosognosia in Different Conditions

49:27Understanding Neurological Differences in Recovery

If you enjoy Living with FASD, please go to www.womenpodcasters.com/awards and choose Living with FASD in the Wellness category, for people’s choice award being sponsored by Women Podcasters. Winning the competition would bring in many listeners who would learn about FASD!

In this episode of Living with FASD, Patti Kasper interviews Jennifer Henszel, who shares her family's journey through adversity following her husband Paul's life-altering accident. The conversation explores themes of community support, resilience, and the power of storytelling in healing. Jennifer discusses how they built a network to combat isolation, the importance of staying positive amidst challenges, and the role of insurance and medical support in their recovery. The episode emphasizes the significance of creating community resources and overcoming stigma associated with FASD, ultimately inspiring listeners to connect and find hope in their own journeys.

Takeaways

Jennifer and Paul faced significant adversity after his accident.

Community support played a crucial role in their recovery.

Isolation can hinder personal and professional growth.

Building networks can lead to unexpected opportunities.

Storytelling can be a powerful tool for healing.

Staying positive is essential amidst challenges.

Insurance and medical support can be complex and frustrating.

Creating community resources is vital for those in need.

Overcoming stigma is a shared struggle for many.

Connection is key to finding hope and support.

As always, if you enjoyed today’s episode, From Tragedy to Triumph: A Journey of Resilience & Power of Community, then please remember to like, subscribe and share this podcast episode, because the more it is shared, the more people can find Living with FASD and learn more about the many and varied effects of Prenatal Alcohol Effects.

If you want to reach Patti to discuss either FASD training or life coaching, you can schedule a call using this links: https://calendly.com/kaspertrainingandcoaching/consultation . Additional training topics can be found on her website, www.patriciakasper.com .

If you want to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to either www.books.by/yourfasdcoach or Amazon (https://a.co/d/3XLnCyw ) Both are print-on-demand from a printer near you, but books.by pays its authors a few more dollars in royalties.

If you want to pick up a copy of Paul Henczel’s book, Crushed Alive: A True Story of a Journey from Tragedy to Triumph, you can find it on Amazon by using this link: https://a.co/d/fh4wg3c

If you would like to watch Paul’s TED Talk, you can find it here: https://youtu.be/9z9HUvTy6aA?si=KUpj2dlaCWQv2EuL

In this episode of Living with FASD, Patti Kasper engages in a deep conversation with Dr. Jennifer Fraser about the complexities of medical gaslighting, particularly in the context of fetal alcohol spectrum disorders (FASD). They explore the vulnerabilities of individuals with FASD, the pressures faced by medical professionals, and the importance of empathy in healthcare. The discussion also highlights the significance of brain health, the impact of bullying and abuse, and the need for systemic changes in education and healthcare. Dr. Fraser shares insights from her research and personal experiences, emphasizing the potential for cognitive improvement through tools like BrainHQ and the importance of community support.

As always, if you enjoyed today’s episode, From Tragedy to Triumph: A Journey of Resilience & Power of Community, then please remember to like, subscribe and share this podcast episode, because the more it is shared, the more people can find Living with FASD and learn more about the many and varied effects of Prenatal Alcohol Effects.

If you want to reach Patti to discuss either FASD training or life coaching, you can schedule a call using this links: https://calendly.com/kaspertrainingandcoaching/consultation . Additional training topics can be found on her website, www.patriciakasper.com .

If you want to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to either www.books.by/yourfasdcoach or Amazon (https://a.co/d/3XLnCyw ) Both are print-on-demand from a printer near you, but books.by pays its authors a few more dollars in royalties.

Jennifer Fraser is the author of 5 books that in one way or another examine how we learn. Her last two books - The Bullied Brain and The Gaslit Brain - examine the harmful impacts of false information to our brains. Most don't know that normalized bullying and gaslighting in our society can in fact cause physical damage to brains which is visible on scans. It is this research that Jennifer is harnessing to set in motion healthy change for all learners. With a PhD in Comparative Literature, Jennifer is an award-winning educator who writes a regular series, "The Bullied Brain," for Psychology Today.

LINKS:

Website

https://bulliedbrain.com/

The Gaslit Brain

https://www.amazon.com/Gaslit-Brain-Gaslighting-Institutional-Complicity/dp/1493090925

The Bullied Brain

https://www.amazon.com/Bullied-Brain-Scars-Restore-Health/dp/B09BDHVX9Q 

"Bullied Brain" series Psychology Today

https://www.psychologytoday.com/ca/blog/the-bullied-brain

Substack on Gaslighting

https://bulliedbrain.substack.com/

In this episode of Living with FASD, host and guest Tami Eller delve into the complexities surrounding fetal alcohol spectrum disorders (FASD). They discuss how a diagnosis often becomes a mere label, failing to capture the unique experiences and challenges faced by individuals with FASD, or any other given diagnosis. Tami emphasizes that understanding the nuances of each person's condition is crucial for providing effective support. The conversation highlights the importance of recognizing the brain-body connection and how various physical and mental health factors can influence the experiences of those with FASD. They also touch on the societal expectations of independence and the need for a more nuanced understanding of interdependence, especially for individuals with neurodivergent conditions.

Throughout the discussion, Tami shares personal anecdotes and insights from her experiences, illustrating the need for accommodations that consider the unique ways individuals with FASD process information and interact with the world. The episode serves as a reminder that labels can be limiting and that a deeper understanding of each person's journey is essential for fostering success and well-being.

Takeaways

A diagnosis is just a label; it doesn't define the individual.

Understanding the brain-body connection is crucial for support.

Each person with FASD has a unique experience and needs individualized accommodations.

Societal expectations of independence can be unrealistic for those with FASD.

Interdependence is vital for success, regardless of neurodiversity.

As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call.

If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.)

Chapters

00:00 Introduction to FASD and Tammy Eller

01:13 The Limitations of Labels

03:18 Understanding the Brain-Body Connection

08:36 The Importance of Individualized Support

18:25 Navigating Sensory Processing Differences

29:26 Personal Stories and Early Recognition

43:42 Challenging the Myth of Independence

In this episode of Living With FASD, host Patti Kasper speaks with Kyle Perkins about his experiences with ADHD and the broader implications of neurodiversity. They discuss the importance of community, the overlap between different neurodivergent conditions, and the challenges faced by individuals with FASD, ADHD, and autism. Kyle shares insights on task management, motivation, and his journey as a business owner, emphasizing the need for supportive environments for neurodivergent individuals. The conversation also touches on the power of fiction in understanding neurodiversity and the importance of advocacy and education in changing perceptions.

To try the app Kyle referenced to improve getting and staying on task, look for “Motion” in your app store.

As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call.

If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.)

You can support Kyle’s business while getting customized merchandise by visiting https://www.bigfrog.com/raleigh-north/

In this episode of Living with FASD, Shannon returns to share her journey over the past three years since her last appearance. She discusses her diagnosis and her active involvement in the FASD community, including serving on various boards and mentoring adolescents with FASD. Shannon highlights her work as a peer supporter and the development of her innovative program called 'Anchor,' designed to provide accessible mental health support through bite-sized information. The program focuses on self-reflection and practical tools to help individuals manage their mental health challenges without feeling overwhelmed.

Throughout the conversation, Shannon emphasizes the importance of lived experience in her work, sharing insights from her own journey with addiction and mental health. She discusses the significance of community support and the need for greater awareness of FASD, particularly in mental health and addiction circles. The episode concludes with Shannon reflecting on her ongoing commitment to helping others navigate their challenges, underscoring the power of vulnerability and connection in fostering healing and growth.

Takeaways

"I have been up to a lot actually since the last time we spoke."

"The goal was to provide just enough structure and self-reflection to not overwhelm people."

"People often feel relieved just noticing that their reactions are rooted in physiology and not personal failure."

"It's about the power of small steps, building slowly, letting things be good enough."

"I just want other people to know that it's possible as well."

As always, please remember to like, share, and follow the

Living with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call.

If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.)

 If you would like to reach Shannon, or to take her program, you can reach her at: www.instagram@shannonleebutt  or her website: www.shannonbutt.ca

Chapters

00:00 Reconnecting After Three Years

02:59 Shannon's Journey and Community Involvement

03:58 Introducing the 'Anchor' Program

12:27 Feedback and Validation from the Pilot Program

20:07 The Impact of Peer Support

23:50 Future Directions in the FASD Space

29:19 Bridging FASD and Addiction Awareness

31:27 The Importance of Community Support

In this episode of Living with FASD, host Patti Kasper welcomes Eileen Devine, a prominent figure in the FASD community and host of the Brain First Parenting podcast. They discuss the complexities of Fetal Alcohol Spectrum Disorders (FASD), focusing on cognitive rigidity, emotional regulation, and the importance of relational intelligence. Eileen shares insights from her experiences as a parent and professional, emphasizing the need for understanding and support for individuals living with FASD. The conversation highlights the challenges of navigating relationships and the significance of developing coping strategies to manage rigidity and emotional responses.

Takeaways

Eileen Devine is a key figure in the FASD community, notably for training.

Cognitive rigidity is often misinterpreted as a character flaw.

Understanding neurobiology is crucial for supporting people with FASD.

Emotional regulation skills are linked to cognitive rigidity.

Relational intelligence is essential for maintaining friendships.

Feedback from trusted individuals can help recognize rigidity.

Planning and structure can alleviate anxiety for individuals with FASD.

Support systems are vital for managing disappointments in life.

The story we tell ourselves influences our emotional responses.

Compassion and understanding are necessary for those living with FASD.

If you want to reach Patti to discuss either FASD training or life coaching, you can schedule a call using this links: https://calendly.com/kaspertrainingandcoaching/consultation . Additional training topics can be found on her website, www.patriciakasper.com .

If you want to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to either www.books.by/yourfasdcoach or Amazon (https://a.co/d/3XLnCyw ) Both are print-on-demand from a printer near you, but books.by pays its authors a few more dollars in royalties.

If you want to reach Eileen, visit her website at www.eileendevine.com.

Please remember to like, subscribe and share this podcast so that others can discover it and learn about FASD.

Chapters

00:00 Introduction to FASD and Eileen Devine

02:33 Brain First Parenting Podcast Overview

06:02 Understanding FASD Characteristics

09:21 Cognitive Rigidity in FASD

18:11 Relational Intelligence and Long-term Friendships

24:02 Recognizing Rigidity and Seeking Feedback

29:10 Dealing with Ambiguity and Planning

35:02 Emotional Regulation and Stress Recovery

41:22 Conclusion and Support Systems

In this episode of Living with FASD, host Patti Kasper and fellow author & self-advocate Helen Simpson explore their personal journeys with Fetal Alcohol Spectrum Disorder (FASD), the difference early diagnosis can make, and the importance of advocacy and community support. They share their experiences with bullying, the challenges of parenting children with FASD, and the need for more resources and understanding in the medical and educational systems. They also discuss the power of storytelling and literature in creating positive narratives for those affected by FASD, emphasizing the importance of compassion and support within the community.

Takeaways

Early diagnosis can significantly change the support and resources available to individuals with FASD.

Social challenges and bullying are common experiences for those with FASD.

Literature can empower children with FASD by providing positive narratives.

Advocacy is crucial for improving resources and support for individuals with FASD and their families.

Parenting children with FASD requires patience and understanding of their unique challenges.

Community support through social media has transformed advocacy for FASD.

There is a need for more programs focused on women in recovery from substance abuse.

Compassion and understanding are essential in addressing the challenges faced by birth mothers of children with FASD.

Self-care and finding joy are important for individuals living with FASD and their families.

If you want to reach Patti to discuss either FASD training or life coaching, you can schedule a call using this links: https://calendly.com/kaspertrainingandcoaching/consultation . Additional training topics can be found on her website, www.patriciakasper.com .

If you want to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to either www.books.by/yourfasdcoach or Amazon (https://a.co/d/3XLnCyw ) Both are print-on-demand from a printer near you, but books.by pays its authors a few more dollars in royalties.

If you want to pick up a copy of ABC’s of FASD, here is Helen’s Amazon link: https://a.co/d/fXI9grB .

Chapters

00:00 Introduction to Living with FASD

01:46 Personal Journeys: Diagnosing FASD

09:28 The Impact of Diagnosis on Life

14:22 Creating Positive Narratives through Literature

20:41 Advocacy and Community Support

25:04 Parenting Challenges and Insights

30:41 Future Aspirations for FASD Awareness

36:34 Compassion and Understanding in the FASD Community

In this episode of Living with FASD, host Patti Kasper talks with AJ Locascio, founder of Umbrella ND, about the emotional regulation challenges neurodivergent people face, including those with FASD, autism, and ADHD. They explore how sensory environments, trauma histories, & everyday microaggressions can lead to dysregulation, panic, and disconnection, and why understanding individual sensory profiles and creating supportive spaces is so important. AJ shares her journey from middle school teacher to community advocate, emphasizing the value of connection, self-advocacy, and accommodations in schools, medical settings, and public spaces.

Patti and AJ also dive into language, communication, and the role of curse words as a coping strategy for some neurodivergent individuals, explaining how the brain can retain emotionally charged words even when other language skills are compromised. They call for more nuanced, context-aware interpretations of behavior that prioritize safety, self-awareness, and emotional regulation over compliance. Throughout the conversation, they highlight how advocacy is both necessary and exhausting, reinforcing that no one should have to do it alone and that community support is essential for emotional well-being.

Takeaways:

• Emotional regulation is crucial for neurodivergent individuals.
• Microaggressions can significantly affect emotional responses.
• Supportive, sensory-aware environments help reduce dysregulation.
• Knowing one’s sensory profile allows for better support and accommodations.
• Community and connection are vital for long-term well-being and advocacy.

Memorable quotes:

• “When we are losing our ability to use language, we hang on to any words that get a big reaction from people.”
• “There’s no such thing as a bad word; it’s context specific.”
• “Connection can definitely happen even when you’re alone.”
• “Self-awareness is the key to becoming regulated when you’re dysregulated.”
• “Advocacy is exhausting; we all need advocates.”

Stay connected:

• Like, share, and follow the Living with FASD podcast to help spread awareness and understanding.
• Contact Patti: [email protected] | www.patriciakasper.com
  Schedule a complimentary call: https://calendly.com/kaspertrainingandcoaching/consultation
• Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD: www.books.by/yourfasdcoach or Amazon.
• Connect with AJ and Umbrella in D: www.umbrelland.org | All AJ’s links: https://dot.cards/ajlocashio

Recommended resources:

• Jaak Panksepp’s TED Talk: https://www.youtube.com/watch?v=65e2qScV_K8
• Burnout by Emily & Amelia Nagoski: https://a.co/d/eJaSFDR