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Long Covid Hope Podcast
By Sarah, Long Haul YogiHealth & Fitness
Long Covid Hope Podcast episodes
- BONUS - International Long Covid Awareness Day - 15th March 2023
Happy International Long Covid Awareness Day! This is a brief bonus episode to discuss the International Long Covid Awareness Day on 15th March 2023. Sarah reads the UK Press Release for the LC Awareness Day and discusses the various events that are taking place on this day worldwide. Please do take part in any way that you can - whether it is attending a Twitter Space, wearing the Awareness colours, educating a friend, family member or coworker about Long Covid, marching on Downing Street with the Key Worker's Petition, writing to your MP or government official with one of the prepared letters, posting on social media with the hashtags #LongCovid and #LongCovidAwarenessDay - whatever action you are able to take all helps to raise our voices and demand recognition, research and treatment for this chronic condition. Sarah the Long Haul Yogi will be hosting a short Instagram Live at 10am Pacific / 1pm Eastern / 5pm UK / 6pm Europe in support of the Long Covid Awareness Day and offering a short live 'Release Fear' relaxation practice.
Links:
Official website with links, merchandise - www.LongCovidAwareness.life
Long Covid Awareness Twitter Space - live from 9am Pacific / 12pm Eastern / 4pm UK / 5pm Europe for several hours - https://twitter.com/i/spaces/1OwxWwAdMapxQ?s=20
Long Covid Twitter Space hosted by LCAP - live from 4pm Pacific / 7pm Eastern / 11pm UK / 12pm Europe - https://twitter.com/i/spaces/1djxXlAWnzExZ?s=20
Sarah, the Long Haul Yogi on Instagram, short Instagram Live with 'Fear Release' Relaxation Practice at 10am Pacific / 1pm Eastern / 5pm UK / 6pm Europe - www.instagram/longhaulyogi
21 min - Stephanie
In this episode of the Long Covid Hope Podcast, the podcast that aspires to shine a light on the more hopeful stories of Covid 19 Long Haulers, Sarah is talking with Stephanie from Los Angeles, an International relations professional, writer, linguist and all around very creative person. Stephanie discusses her first wave Long Covid story, her bedrest, Long Covid symptoms such as neurological and POTS, having to go through multiple surgeries during her long covid recovery including an emergency surgery for appendicitis. Stephanie describes how getting back in touch with her roots as an Asian American helped her during her Long Covid journey, how Eastern modalities of wellness contributed to her healing, including receiving mentorship from a Buddhist monk and the progression she experienced back to a state of full wellness.
Disclaimer: **Please note that we are not medical professionals and this does not constitute medical advice. The Long Covid Hope Podcast or Sarah, Long Haul Yogi does not endorse any treatments described in the podcast episodes. Always speak to your doctor or medical practitioner before starting any new treatments, supplements or beginning a new exercise routine.**
Trigger Warnings: Emergency surgery, traumatic experiences, suicidal references
Time stamps:
Links mentioned (A-Z):
1 hr 1 min - AnnaIn this episode of the Long Covid Hope Podcast, the podcast that aspires to shine a light on the more hopeful stories of Covid 19 long haulers, we are joined by Anna, a former business owner, mum to two kids and a fellow Yorkshire lass, about her first wave LC story. She is one of the many, many long haulers who also came down with Covid on Friday the 13th 2020 (very unlucky for some). Anna describes her prior experience with chronic pain through costochondritis prior to Covid, and then how her Long Covid has centred around ME/CFS. She explains how she turned to a fatigue health coach online to help her manage her fatigue and extensive symptoms, and the large improvements she has made over that time through pacing, rest breaks, some supplements and a lot of positive thinking affirmations and yoga nidra. Here are Anna’s wonderful healing affirmations from her Instagram page @healingishappeningHealing is HappeningHealing is Happening for MeRest / Pacing is Good, Healing is HappeningToday is a good day, Healing is HappeningEven if I can’t see it right now, Healing is HappeningI’m on the right track, Healing is HappeningI’m improving, Healing is HappeningI trust in my journey, I know that Healing is Happening for me todayDisclaimer: **Please note that we are not medical professionals and this does not constitute medical advice. The Long Covid Hope Podcast or Sarah, Long Haul Yogi does not endorse any treatments described in the podcast episodes. Always speak to your doctor or medical practitioner before starting any new treatments, supplements or beginning a new exercise routine.**Trigger Warnings: references to suicide, medical gaslighting, traumatic experiencesTime stamps:(00:00) Introduction(2:24) Interview with Anna(6:00) Anna’s acute Covid infection and initial post-acute recovery period(10:00) Anna’s Long Covid story(30:30) Recovery journey - beginning to work with Pamela Rose(48:45) Anna’s Instagram @healingishappening and advocacyLinks mentioned (A-Z):Anna’s Instagram - https://www.instagram.com/healingishappening/Long Covid Affirmations Instagram - https://www.instagram.com/longcovidaffirmations/Pamela Rose Fatigue Coach (UK) - https://www.pamelarose.co.uk/1 hr 5 min
- AngelaIn this episode of the Long Covid Hope Podcast, the podcast that aspires to shine a light on the more hopeful stories of Covid 19 Long Haulers, Sarah speaks with the wonderful Angela, or Lady with Long Covid / @theextrafiles on Twitter, who lives in the Pacific Northwest of the USA with her two kids and partner. Angela has done an amazing thing: she has selflessly and tirelessly created a grassroots awareness movement from her couch. We discuss how the Long Covid awareness colours and day were democratically polled across all Long Haulers in all different online communities. She also explains how her efforts have been in collaboration with many long haulers who have helped with design work, the website, coming up with the wonderful merchandise and everything else involved in setting up a brand-new Awareness Day.I want to shine a strong spotlight on The International Long Covid Awareness Day on 15th March and you can find out all about it on the website, which is in the show notes. Long Haulers have been speaking for years now about how we need an awareness day or month like so many other conditions, and also awareness ribbon and colours. Now we have it! Speaking of the Long Covid awareness colours - Grey, Teal and Black - I really love what they represent, and how represented everyone who cast a vote is in their existence.Last but by no means least, Angela briefly shares her own Long Covid story with us, which actually began back in December 2019 - speaking of first wave pioneers! Angela describes her Long Covid experience, and how certain medications such as Acyclovir for epstein barr and Pavlovid for a reinfection helped her to ‘level up’, as she puts it. She also describes her experience as a mother homeschooling her children through the pandemic and Long Covid, and how helpful the community online and through the Open Zoom Rooms have been in her journey with Long Covid.Disclaimer: **Please note that we are not medical professionals and this does not constitute medical advice. The Long Covid Hope Podcast or Sarah, Long Haul Yogi does not endorse any treatments described in the podcast episodes. Always speak to your doctor or medical practitioner before starting any new treatments, supplements or beginning a new exercise routine.**Trigger Warnings: references to suicide, medical gaslighting, traumatic experiencesTime stamps:(00:00) Introduction(4:30) Interview with Angela(7:30) How the Long Covid Awareness Day and Colours happened(18:30) Long Covid Awareness Colours - Grey, Black and Teal(27:00) How to take part in Long Covid Awareness Day(40:00) Discussing support resources available for Long Haulers - and Hope(49:00) Angela’s Long Covid experience1 hr 1 min
- TheresaIn this episode, Sarah speaks with Professor Theresa Levitt, Professor of History at the University of Mississippi in the US. Theresa spent a long time struggling with Chronic Fatigue Syndrome (ME/CFS) post-Covid and was mainly bed-bound. She explains how she got from bed-bound back to being healthy and active, back to running, and even writing a book! Theresa’s book, Elixir: A Parisian Perfume House and the Quest for the Secret of Life Hardcover is available from April 2023. We discuss our shared love of Ed Yong, a writer for the Atlantic, and the Body Politic Slack group, antihistamines, and her experiences taking Paxlovid and a possible turning point around that -- although she is keen to caveat by saying she doesn’t believe Paxlovid to be a ‘magic bullet’.Disclaimer: **Please note that we are not medical professionals and this does not constitute medical advice. The Long Covid Hope Podcast or Sarah, Long Haul Yogi does not endorse any treatments described in the podcast episodes. Always speak to your doctor or medical practitioner before starting any new treatments, supplements or beginning a new exercise routine.**Time stamps:(00:00) Introduction(2:24) Interview with Theresa(6:00) Her acute Covid infection(10:00) Theresa’s Long Covid story(30:30) Recovery journey - breathing exercises, sleep, meditation(48:45) When Theresa felt fully recovered - PaxlovidLinks mentioned (A-Z):Paxlovid for Long Covid article: https://time.com/6237201/can-paxlovid-treat-long-covid/Theresa’s book: Elixir: A Parisian Perfume House and the Quest for the Secret of Life: https://www.amazon.com/Elixir-Parisian-Perfume-House-Secret/dp/0674250893 Hardcover.Ed Yong article in The Atlantic: https://www.theatlantic.com/health/archive/2020/06/covid-19-coronavirus-longterm-symptoms-months/6126791 hr 4 min
- RoweenaIn this episode, Sarah talks with Roweena, a community organiser in North East England, UK, about her first wave Long Covid story. Roweena shares her story with us today but also shares her poetry that she wrote through this experience. Roweena describes having a horrendous time with swallowing disorders, which led to an inability to eat and losing a great deal of weight. Roweena and I discuss her experiences with inability to eat and retain food, having a feeding tube and time spent back and forth to hospital. She shares how taking amitriptyline off-label significantly helped her fatigue, and how deep-thinking visualisation exercises helped her get back to cycling and indeed cycling with her electric bike 20 miles a day back and forth to work. **Please note that we are not medical professionals and this does not constitute medical advice. The Long Covid Hope Podcast or Sarah, Long Haul Yogi does not endorse any treatments described in the podcast episodes. Always speak to your doctor or medical practitioner before starting any new treatments, supplements or beginning a new exercise routine.**Trigger Warnings: severe illness, weight loss, difficulty receiving healthcare, UK public health policiesTime stamps:(00:00) Introduction(1:52) Interview with Roweena(11:40) Her acute Covid infection(16:00) Swallowing disorder and Achalasia diagnosis(32:00) Recovery journey - ‘Deep-thinking’ visualisation exercises into cycling to work(43:00) Discussion of movement alongside ME/CFS(49:00) Roweena’s message to listenersLinks mentioned (A-Z):Achalasia - rare swallowing disorder: https://www.nhs.uk/conditions/achalasia/Amitriptyline for CFS (off-label): https://www.verywellhealth.com/amitriptyline-for-fibromyalgia-mecfs-715765Visualisations for Athletes: https://www.peaksports.com/sports-psychology-blog/sports-visualization-athletes/53 min
- DaveIn this episode of the Long Covid Hope podcast, Sarah speaks to Dave in San Diego, USA, about his Long Covid journey from bedbound to planning to hike the Pacific Crest Trail - yes, all of it! In this interview, Dave shares his experiences of his acute and Long Covid phases of illness, and how audio books and the Long Covid open Zoom Room helped him in the early days of Long Covid. We go on to discuss how Dave believes that Hyperbaric Oxygen Therapy (HBOT), the chicken soup diet, fasting and cleanses helped him to recover his health. He is keen to stress that when he got well, it happened suddenly and quite dramatically, after over two years of Long Covid.Disclaimer: **Please note that we are not medical professionals and this does not constitute medical advice. The Long Covid Hope Podcast or Sarah, Long Haul Yogi does not endorse any treatments described in the podcast episodes. Always speak to your doctor or medical practitioner before starting any new treatments, supplements or beginning a new exercise routine.**Time stamps:(00:00) Introduction(1:30) Interview with Dave - his acute Covid infection and Long Covid story(17:00) Movement discussion - Graded Exercise Therapy setback(30:00) Recovery journey - chicken broth diet and cleanse protocols(1:00:00) Dave’s message to listenersLinks mentioned (A-Z):CHOP Protocol for POTS: https://www.dysautonomiainternational.org/pdf/CHOP_Modified_Dallas_POTS_Exercise_Program.pdfGraded Exercise Therapy (GET): https://me-pedia.org/wiki/Graded_exercise_therapyHBOT: https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/hyperbaric-oxygen-therapyLono Diet: https://lonolife.com/Mary Ruddick ‘Soups saved my life’: https://www.youtube.com/watch?v=QJnwraXVmX4Pacific Crest Trail Association: https://www.pcta.org/1 hr 6 min
- Sarah, Long Haul YogiIn the first episode of the Long Covid Hope podcast, Sarah introduces the show and her hopes and aspirations in creating it. Sarah shares her own Long Covid story, which took her from highly fit and active to bedbound, and later diagnoses of ME/CFS, fibromyalgia, POTS and B12 Deficiency. She discusses how she got ill on Friday the 13th March 2020, her struggles with getting care and the impact Covid had on her family life as a new Mum. In her story, Sarah shares what wasn’t helpful (GET) but what did help her on her recovery journey: pacing using guided meditation, the Dr Myhill protocol of d-ribose, paleo-keto, food-based probiotics and prebiotics, as well as B12 deficiency and supplementation. And how returning to mindful, careful movement with walking and restorative yoga allowed Sarah to overcome her exercise intolerance and expand her ‘energy envelope’, to the extent where she is now back to full health, and working hard to help other Covid long haulers.Disclaimer: **Please note that we are not medical professionals and this does not constitute medical advice. Always speak to your doctor or medical practitioner before starting any new treatments, supplements or beginning a new exercise routine.**Trigger Warnings: discussion of severe acute Covid illness, weight gain and loss, medical gaslighting, traumatic experiencesTime stamps:(00:00) Introducing the LC Hope Podcast(10:00) My story - acute Covid infection(18:00) Long Covid begins(30:00) Recovery journey - pacing with meditations, Dr Myhill - d-ribose, paleo keto, food based probiotics and prebiotics(50:00) back to movement- mindfully working within energy envelope not GET(58:00) What full recovery / remission looks likeLinks mentioned (A-Z):Body Politic Support Group: https://www.wearebodypolitic.com/covid-19B12 Deficiency Awareness: https://www.b12deficiency.infoB12 Deficiency Support Group: https://www.facebook.com/groups/174928999276739Long Haul Yogi: https://linktr.ee/longhaulyogiInsight Timer free meditation app: https://insighttimer.com/ME/CFS Parents UK: https://www.facebook.com/groups/723681451020085Raelan Agle: www.youtube.com/c/RaelanAgleDr Sarah Myhill: https://www.drmyhill.co.uk/Yoga for Long CovidJoin Sarah, Long Haul Yogi, for her Thursday Zoom Yoga for Long Covid classes, Monday in-person class in Sheffield, UK or her OnDemand Series on Subkit and Insight Timer. All links can be found here: https://linktr.ee/longhaulyogi1 hr 4 min
- Introducing the Long Covid Hope Podcast! (Music-free Trailer)Introducing the Long Covid Hope podcast, the podcast that tells the more hopeful stories from people with Long Covid and related conditions, by Sarah, the Long Haul Yogi. In Season 1, we are shining the light on the First Wavers and their experiences of getting sick with a novel coronavirus and then simply not recovering. The first wave of Long haulers, of which your host Sarah is one, had a very particular experience of having to fight for any help at all and also fight for Long Covid to be recognised as a condition. The First Wavers led the way with patient advocacy, patient research, patient support groups. We were the unfortunate and unwilling pioneers, and now we are the veterans! And, of course, none of this is new to the ME/CFS and other related chronic condition communities, who have given invaluable support and wisdom to long haulers.
In Season 1, we will be hearing from several people like Sarah, who were very sick for many months and years, but have managed to regain their health. Also, we will be interviewing first wavers who are still on their recovery journey, symptomatic but gaining a place of greater stability, sharing their stories and perspectives. There is a huge variety of people and perspectives, from all over the world and with the full spectrum of long covid symptoms. It’s going to be a bit of a wild ride through the wild west of supplements, alternative medicine, adjunct therapies, functional medicine and much, much more. Subscribe and join us!
Find out more about Sarah, the Long Haul Yogi, and the Yoga for Long Covid open-access Zoom classes here: https://linktr.ee/longhaulyogi
3 min - Introducing the Long Covid Hope Podcast! (Trailer with Background Music)
Introducing the Long Covid Hope podcast, the podcast that tells the more hopeful stories from people with Long Covid and related conditions, by Sarah, the Long Haul Yogi. In Season 1, we are shining the light on the First Wavers and their experiences of getting sick with a novel coronavirus and then simply not recovering. The first wave of Long haulers, of which your host Sarah is one, had a very particular experience of having to fight for any help at all and also fight for Long Covid to be recognised as a condition. The First Wavers led the way with patient advocacy, patient research, patient support groups. We were the unfortunate and unwilling pioneers, and now we are the veterans! And, of course, none of this is new to the ME/CFS and other related chronic condition communities, who have given invaluable support and wisdom to long haulers.
In Season 1, we will be hearing from several people like Sarah, who were very sick for many months and years, but have managed to regain their health. Also, we will be interviewing first wavers who are still on their recovery journey, symptomatic but gaining a place of greater stability, sharing their stories and perspectives. There is a huge variety of people and perspectives, from all over the world and with the full spectrum of long covid symptoms. It’s going to be a bit of a wild ride through the wild west of supplements, alternative medicine, adjunct therapies, functional medicine and much, much more. Subscribe and join us!
Find out more about Sarah, the Long Haul Yogi, and the Yoga for Long Covid open-access Zoom classes here: https://linktr.ee/longhaulyogi
3 min
About Long Covid Hope Podcast
From the publisher's feed
Welcome to the Long Covid Hope podcast: the podcast that tells the more hopeful stories of people with Long Covid. The Long Covid Hope podcast is created by a former Long Covid sufferer, for people…
with Long Covid, and hears from the true experts: those with lived experience of the condition. Each episode features an interview with a Long Hauler guest, who has either fully recovered from Long Covid or is still on the recovery journey with an optimistic story to tell. Season 1 tells the stories of the First Wavers, the unfortunate pioneers and now the veterans.