Love Doesn't Pay The Bills: Highlighting the Value of Family Caregiving

In this re-launch of the podcast, we talk data around caregiving.   Denise Brown is with us to talk about data, why it matters and her tool to help you view some of your own numbers.  Why do we need the numbers around care?  We have some compelling reasons.  

Explore your own caregiving stats
The Data Story of Caregiving event registration

Denise supports individuals managing difficult life experiences with coaching, planning and training. Through her work, Denise helps clients find hope, possibilities and a path forward. Denise began helping individuals who care for a family member in 1990 and launched a business to help them in 1995. She created one of the first online caregiving communities in 1996 which she managed until its sale in 2020.

Denise now develops and delivers training programs for the workplace and for individuals who want to coach family caregivers. More than 400 individuals from eight different countries have enrolled in her training programs offered through her company, The Caregiving Years Training Academy.

Denise began helping her parents in 2004 after her father’s bladder cancer diagnosis. Her mom, who had Parkinson’s disease, died in August 2022, one year to the date after Denise’s brother died. Her father died in July 2023.

You can connect with Denise via her community, CaringOurWay.com.

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Kitty Eisle, executive producer for podcasts with Texas Public Radio and NPR, as well the host of Twenty-Four Seven: A podcast about caregiving, joins us to discuss caregiving for parents, how to prepare ahead of time for caregiving needs, and why it's important to know your neighbors.

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We're joined by Emily Kenway, the author of "Who Cares: The Hidden Crisis of Caregiving, and How We Solve It". "Who cares" is a very loving memoir of Emily's own caregiving experience. It also is a great work of advocacy by imagining the changes that would happen throughout our world if we started from the default assumption that all people will be caregivers at some time in their lives.

https://www.emilykenway.com/about

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Connie Siskowski, President of the American Association of Caregiving Youth, joins us to discuss youth caregivers. Her program recognizes and supports young people who are caregivers

Find out more about the American Association of Caregiving Youth

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Melinda Kavanaugh describes what her organization YCARE does to support young caregivers. Young caregivers are very frequently overlooked, yet perform many of the same tasks as adults with many of the same responsibilities. Hear how Melinda brings youth caregiving education and a chance to connect to same age peers with similar experiences.

https://uwm.edu/ycare/

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We're joined by Kim Evon to discuss California caregivers and the large gap in staffing that leads to reliability issues in caregiving. We discuss why family caregivers may have difficulties working full-time and what happens when there's not enough care to go around to those who need it.

transcript

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transcript

Elise's letter on healthcare workforce shortages

ANCOR's report "The State of America’s Direct Support Workforce Crisis 2022"

Elise Augilar, Director of Federal Relations at ANCOR discusses the shortage of (non family) direct support providers. We discuss the need for DSP jobs to be properly recognized and paid.

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Maressa Brown joins us to discuss possible ways that some family caregivers may be able to get paid for work.

read the full article on care.com

https://maressabrown.com/

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Calli Ross is back to discuss the current state of the movement in OR to allow parent paid caregivers through Medicaid Home and Community Based Services. Just in time for mother's day, hundreds of mothers in Oregon lost their income for meeting the extraordinary needs of their children as the state of emergency which temporarily allowed parent paid caregivers expires without a permanent replacement yet in place.

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Nicole Jorwic, chief of advocacy and campaigns at Caring Across Generations, discusses the personal cost borne within families for providing care when there aren't enough care workers for hire, as well as what it would mean to make more of that cost public.

https://thehill.com/opinion/congress-blog/3980173-the-care-tax-the-cost-of-the-lack-of-care-for-caregivers/

transcript

#family #caregivers #support #DSP #careworkers #carecrisis

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