Lupus: The Expert Series

The Expert Series is happy to have Dr. Bonnie Bermas on our episode about fertility and reproductive health.

Dr. Bermas is an internal medicine professor at UT Southwestern Medical Center focusing on rheumatology disorders. She was the Clinical Director of the Lupus Center and co-director of the Program in pregnancy and rheumatic diseases at Brigham and Women’s  and Harvard Medical School.

Her research interests include pregnancy and rheumatic diseases, systemic lupus erythematosus (SLE) and antiphospholipid syndrome (APS), and rheumatic immune checkpoint inhibitor adverse events.

Below are resources from the National Resource Center on Lupus related to this episode

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In this month’s episode, we talk about self-care/self-management with Dr. May Choi. Dr. Choi is a rheumatologist, clinician scientist, and Assistant Professor at the Cumming School of Medicine, University of Calgary.

She has a background and training that include Masters of Public Health in Epidemiology at Harvard University and a lupus fellowship. Dr. Choi is also the Associate Director of MitogenDx Laboratory for novel autoantibody and biomarker testing for autoimmune diseases and the Associate Director of Research for the University of Calgary Lupus Centre of Excellence.

Resources

Here is a resource and worksheet to help find support near you. If you want a list of program and services the Lupus Foundation of America provides, you can find information here.

Read about lupus and depression, and a coping with lupus strategies worksheet.

Depending on where you are in your lupus journey, consider signing up for Strategies to Embracing Living with Lupus Fearlessly, or SELF. This program is self-paced program and can guide someone to reach milestones that can help improve quality of life.

In this month’s episode, we speak with Dr. Jane Salmon about Antiphospholipid Syndrome, or APS. Dr. Salmon is a Collette Kean Research Professor and the director of the Lupus and APS Center of Excellence at the Hospital for Special Surgery.

Dr. Salmon shares her insight on APS how it can affect people with lupus, treatments, and more. Tune in to learn more.

For more information on APS, read here

Learn more about lupus and pregnancy

Learn more on how smoking can affect people with lupus

This episode was recorded in Spanish. Este podcast fue grabado en español.

En este episodio, nuestras especialistas en educación para la salud, Leticia Ocaña, MPH, CHES® y Guadalupe Patiño, MPH, hablan sobre los recursos financieros que pueden estar disponibles para las personas con lupus de la comunidad hispana/latina. Los recursos que comparten incluye información que se encuentra en nuestro nuevo artículo que se enfoca en brindar ayuda a la comunidad de lupus y dónde buscarla.

Para obtener más información sobre recursos de asistencia financiera, visite: https://www.lupus.org/es/resources/recursos-de-asistencia-financiera

O aquí en inglés:  https://www.lupus.org/resources/financial-assistance 

For people with lupus, help  may come in many ways – whether it’s through caregivers or organizations. While the Lupus Foundation of America doesn’t provide direct financial assistance, we have complied a resource to help people with lupus find the help they may need to keep up with the cost of their lupus care . Our Health Education Specialists Leticia Ocaña and Guadalupe Patiño share information in this resource for people with lupus, including from the Hispanic/Latino lupus community. 

For more information of financial assistance resource, visit: https://www.lupus.org/es/resources/recursos-de-asistencia-financiera

Or here, in English: https://www.lupus.org/resources/financial-assistance

In this episode of The Expert Series, we welcome Dr. Murray Urowitz, a senior staff rheumatologist at the Toronto Western Hospital and Senior Scientist at the Krembil Research Institute and Schroeder Arthritis Institute. Dr. Urowitz helps us continue the conversation on lupus and heart health. We discuss the difference between coronary artery disease and cardiovascular disease for lupus patients, how these diseases present in both men and women, and more.

Find out more information on heart health and lupus on our National Resource Center on Lupus. | En Español

You may also find our referenced heart episode with Dr. Jim Oates, here

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In this episode of The Expert Series, we are focusing on medication management. LFA talks with Dr. Marcia Mueting, CEO of Nebraska Pharmacists Association, about the importance of connecting with your local pharmacists, what questions to ask, and what to do if you experience side effects from your lupus medications. Dr. Mueting also worked as staff pharmacist, pharmacy manager in a community practice, and helps support her husband, who is a lupus warrior.

For information on lupus medications, check out these resources:

To learn more on how lupus affects the body, visit: https://www.lupus.org/resources/how-lupus-affects-the-body

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In this episode of The Expert Series, we talk with Dr. Anca Askanase, founder and clinical director of Columbia University’s Lupus Center, about winter wellness. We discuss how to stay healthy during cold and flu season, the importance of getting a flu shot every year, and more.

To learn more about flu and vaccines for people with lupus, check out our resources on our Resource Center:

Get your annual flu shot

Lupus and Vaccines

Be sure to also check out our blog discussing how to stay safe and stress-free this holiday season.

In honor of National Caregivers Month, we speak with Grace Whiting, president and CEO of The National Alliance for Caregiving, on why we should give back to those who take care of us. In this episode we discuss the caregiver role, tips to stay healthy, resources, and more.

For more information on caregiving, check out our dedicated page for caregivers.

In this episode of The Expert Series, LFA’s Senior Communication Strategist Duane Peters talks with Melanie Betz of University of Chicago. Betz, a member of the American Kidney Fund dietician advisory group, addresses the role of diet for people with Lupus Nephritis and kidney-friendly recipes.

For information on Lupus Nephritis, check out our dedicated resource page. You may learn more about how kidney disease involvement may affect someone with lupus.

For recipes, you can check out Melanie Betz’s website and American Kidney Fund’s Kidney Kitchen.

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Esta discusión se lleva a cabo en español. En este episodio de la Serie de Expertos la Gerente de Educación para la Salud y Alcance Hispano, Leticia Ocaña, habla con la Dra. Cristina Drenkard, Profesora Asociada de Medicina de la Universidad Emory en Atlanta, Georgia, sobre los mitos y realidades comunes del lupus que rodean al lupus. 

Si necesita más información y apoyo, consulte nuestro paquete informativo sobre el lupus aquí.

Información adicional está disponible en español. Visite: lupus.org/es/resources

This discussion is conducted in Spanish. In this episode of The Expert Series, Health Education Manager for Hispanic Outreach Leticia Ocaña speaks with Dr. Cristina Drenkard, Associated Professor of Medicine at the Emory University in Atlanta, Georgia about the common lupus myths and realities surrounding lupus. 

If you need more information and support, please take a look at our lupus information packet here.

More resources are available in Spanish, visit: Lupus.org/es/resources

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