2020 was an unprecedented year. The lupus community is strong and we helped each other through this year by sharing our wisdom and compassion. In this episode, we asked both experts in the field as well as people with lupus for advice as we approach 2021.

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In this episode of The Expert Series, we discuss Trust and Participation in Research with Dr. Owen Garrick. Dr. Garrick is the President and CEO of Bridge Clinical Research, a global clinical research and health communications firm focused on drug development, scientific advancement and patient engagement. He has helped launch multiple collaborative efforts in advancing precision medicine research and serves as an advisor to the Stanford Precision Health for Ethnic and Racial Equity Center (SPHERE). In this interview, Dr. Garrick shares more information about precision medicine, the importance of diversity in clinical trials and what participation in a clinical trial entails.

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En este episodio de The Expert Series o la Serie de Expertos, Leticia Ocaña, MPH, CHES, Educadora de la salud de La Fundación de Lupus de América comparte más información sobre cómo nuestras educadoras de la salud pueden ayudarle a entender y manejar el lupus y los recursos que puede utilizar, incluyendo: Take Charge, LupusConnect™, y Lupus Foundation of America Caregiver Toolkit. 

In this episode of The Expert Series, we discuss The Importance of Support with Lupus Foundation of America staff: Wendy, our Community Outreach and Engagement Manager, and Lauren, our Health Education Nurse Manager. Wendy and Lauren share more information about types of support, support groups, and helpful resources for those looking to build their support system.

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In this episode of The Expert Series, we discuss Kidney Health and Lupus with Dr. Brad Rovin, Nephrologist at Ohio State University Wexner Medical Center. Dr. Rovin explains what to expect from a lupus diagnosis, lifestyle considerations for healthy living, and what exciting new treatments are on the horizon for people with lupus nephritis.

This episode is sponsored by Aurinia Pharmaceuticals. Aurinia Pharmaceuticals is committed to supporting the needs of the lupus nephritis community. That’s why they created the ALL IN program, a source of information, resources, and support for those affected by lupus nephritis, an inflammation of the kidneys caused by lupus. For more information visit www.allinforln.com. 

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In this episode of The Expert Series, The Impact of Racial Trauma on Mental Health, America Paredes from Mental Health America discusses mental health in the Black, Indigenous and People of Color (BIPOC) community as well as resources to help cope.

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About Mental Health America

Mental Health America (MHA) is an organization dedicated to addressing the needs of those living with mental illness and promoting the overall mental health of all. MHA’s work is driven by its commitment to promote mental health as a critical part of overall wellness, including prevention services for all; early identification and intervention for those at risk; integrated care, services, and supports for those who need them; with recovery as the goal.

 In this episode of The Expert Series, Reproductive Health and Lupus, Dr. Jane Salmon shares information about reproductive health, antiphospholipid syndrome (APS), challenges with pregnancy with lupus and tips on how to prepare for a having safe pregnancy.

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In this episode of The Expert Series, Telehealth and Lupus, Dr. Donald Thomas shares information about telehealth and tips on how to prepare for a virtual visit with your doctor.

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About the Presenter

Dr. Donald Thomas teaches at the Walter Reed National Military Medical Center as an Associate Professor of Clinical Medicine of the Uniformed Services University of the Health Sciences, a practicing rheumatologist in Greenbelt, Maryland and author of the” Lupus Encyclopedia: A Comprehensive Guide for Patients and Families.”

Depression and anxiety has increased among Americans as the coronavirus pandemic continues to evolve.

In this episode of The Expert Series, Mental Health and Wellness During a Time of Uncertainty, Dr. Neda Gould shares information about stress and anxiety, coping strategies and will lead a brief guided meditation practice.

In this episode of The Expert Series, Kathryn Wierenga, one of the 2019 recipients of the Lupus Foundation of America’s Gina M. Finzi Memorial Student Summer Fellowship Award, shares more information about the Importance of Fatty Acids and People with Lupus.

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About the Presenter

Kathryn Wierenga graduated with a bachelor’s in science from Michigan State University and is currently a doctorate student in their Department of Biochemistry and Molecular Biology with a dual major in Environmental and Integrative Toxicological Sciences. She is currently studying how Omega-3 fatty acids suppress lupus flaring.