Lupus: The Expert Series

In this episode of The Expert Series, Dr. Diane Kamen, Associate Professor of Medicine at the Medical University of South Carolina, Division of Rheumatology, will be sharing updates regarding research for treatments in lupus. She highlights the history of autoimmunity research, stem cell research and newly approved treatments for lupus.

For more research news updates, visit: Lupus.org/News

If you are interested in participating in research, visit: Lupus.org/RAY

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The Lupus Foundation of America Health Education Specialists have had increased calls and emails from people with lupus, with questions about safely returning to work. We know that this year, is a very unique one for getting back to work with the COVID-19 pandemic. But we also know that working with lupus is a very important topics for most people with lupus and one we want to make sure we cover.

Please find the links to important resources discussed in this episode:

Lupus and the workplace FAQs | Lupus Foundation of America

What you need to know about workplace accommodations | Lupus Foundation of America

Call 211 for Essential Community Services | United Way 211

COVID-19 Vaccines for Children and Teens | CDC

JAN - Job Accommodation Network (askjan.org)

ADA.gov homepage

Coronavirus Disease (COVID-19) | Occupational Safety and Health Administration (osha.gov)

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It’s Men’s Health Month and we want to discuss how lupus affects men.

In this episode of The Expert Series, Men’s Health and Special Considerations with Lupus, we answer some important questions about men’s health with Dr. Niewold, Director of the Colton Center for Autoimmunity and Judith and Stewart Colton Professor of Medicine and Pathology at New York University Grossman School of Medicine.

For more information about lupus and men, click here.

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Getting an early and accurate lupus diagnosis is critical to preventing long-term consequences of the disease.

In this episode of The Expert Series, Could It Be Lupus? we answer some important questions about labs and diagnostic assessments for lupus diagnosis with Dr. Adegbenga Bankole from Carillion Clinic in Roanoke, Virginia.

For more information about diagnosing lupus click here.

This episode is sponsored by Exagen. The need for improved lab tests prompted the Lupus Foundation of America to support early research on the development of Cell-Bound Complement Activation Products also known as CB-CAPs. CB-CAPs are now the cornerstone of Exagen’s AVISE CTD test for diagnosis and AVISE SLE Monitor used to uncover disease activity in people who have lupus. More about AVISE can be found at www.avisetest.com.

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In this episode of The Expert Series, we discuss Improving Health Visits for People with Lupus with Jillian Rose. Jillian Rose is Assistant Vice President of Community Engagement, Diversity, Research at the Hospital for Special Surgery with a Master’s in Social Work, a Master’s in Public Health and Doctorate of Education from Columbia University in New York. She is dedicated to health equality for rheumatology and orthopedic care and today, as we celebrate Minority Health Month, we share her knowledge about implicit bias and how we can work to improve health visits for people with lupus.

For more information about preparing for your health visits click here.

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In this episode of The Expert Series, we discuss Managing Your Journey with Lupus Nephritis with Wendy Rodgers. Wendy is the Senior Manager for Community Outreach and Engagement for the Lupus Foundation of America and lupus warrior. With a background in science and education, and has lived with lupus for 21 years (and counting), she provides helpful insights into managing your lupus nephritis and how to find resources along the way.

For more information about lupus nephritis click here.

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In this episode of The Expert Series, we discuss Top Questions about Skin and Hair with Fotios Kompouras, MD. Dr. Kompouras is an Assistant Professor of Medicine and Director of the Yale Lupus Program in Connecticut. He attended St. George's University School of Medicine and worked closely with Lupus Foundation of America’s Acting Medical Director, Dr. Susan Manzi, investing novel therapeutics for lupus at the University of Pittsburgh and Allegheny Clinic before moving to Yale. He has assisted in important clinical research over the course of his career that has contributed to the treatments for lupus and has developed a cohort of lupus patients for novel lupus research. He also has developed the Rheumatology/Dermatology clinic with Sarika Rama Chandra at Yale.

For more information about lupus symptoms involving skin and hair click here.

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In this episode of The Expert Series, we discuss Lupus & Physical Activity with Hazel L. Breland PhD, FAOTA, OTR/L. Dr. Breland is an Associate Professor of Occupational Therapy at the Medical University of South Carolina, doctoral capstone coordinator, and past president of the Association of Rheumatology Professionals, the interprofessional division of the American College of Rheumatology. Her academic areas of focus include diversity, equity, and inclusion; interprofessional education, community engagement, occupational therapy clinical education; and, patient-centered interventions for chronic conditions

For more information about low impact exercises and activities for people with lupus, click here.

2020 was an unprecedented year. The lupus community is strong and we helped each other through this year by sharing our wisdom and compassion. In this episode, we asked both experts in the field as well as people with lupus for advice as we approach 2021.

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In this episode of The Expert Series, we discuss Trust and Participation in Research with Dr. Owen Garrick. Dr. Garrick is the President and CEO of Bridge Clinical Research, a global clinical research and health communications firm focused on drug development, scientific advancement and patient engagement. He has helped launch multiple collaborative efforts in advancing precision medicine research and serves as an advisor to the Stanford Precision Health for Ethnic and Racial Equity Center (SPHERE). In this interview, Dr. Garrick shares more information about precision medicine, the importance of diversity in clinical trials and what participation in a clinical trial entails.

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