Lymphedema Podcast

Episode 12 is short, sweet and to the point. Don’t let the short episode fool you though, it is packed with 5 tangible steps to take to help you manage your lymphedema. None of them cost money (other than step two which involves seeking treatment) or have special requirements. Give it a listen and if it helped you pass it along to someone who could use some encouragement, too!.

Episode 12 is short, sweet and to the point. Don’t let the short episode fool you though, it is packed with 5 tangible steps to take to help you manage your lymphedema. None of them cost money (other than step two which involves seeking treatment) or have special requirements. Give it a listen and if … Continue reading "Episode 12: Five Steps to Help You Manage Lymphedema"

http://www.mldherts.com/lymphoedema/

To keep the momentum going for Lymphedema Awareness month, I am highlighting two patient stories on this episode. Amanda Sobey and Jennifer Bunch both courageously agreed to share their personal story of how they developed secondary lymphedema. This disease does not discriminate against age, gender or race. Anyone is at risk of developing lymphedema after any injury to the lymphatic system.

I hope you enjoy this episode. Please keep in mind both of the women volunteered to share their story. Just because it isn’t exactly like your experience, doesn’t mean it’s better or worse than your story.

If you are enjoying Lymphedema Podcast please leave a comment or review to help others find the podcast. Also, if you have suggestions on how to make it better, email me at [email protected]

To keep the momentum going for Lymphedema Awareness month, I am highlighting two patient stories on this episode. Amanda Sobey and Jennifer Bunch both courageously agreed to share their personal story of how they developed secondary lymphedema. This disease does not discriminate against age, gender or race. Anyone is at risk of developing lymphedema after … Continue reading "Episode 11: Secondary Lymphedema"

Hopefully you were able to join us for our exclusive Facebook Live hangout last night! If not you still have time to go back and watch it.

This mid week episode completes my interview with Vern on Primary Lymphedema. I truly hope you are encouraged by her story and find community in one of her many Facebook support groups.

Hopefully you were able to join us for our exclusive Facebook Live hangout last night! If not you still have time to go back and watch it. This mid week episode completes my interview with Vern on Primary Lymphedema. I truly hope you are encouraged by her story and find community in one of her … Continue reading "Episode 10.5: Primary Lymphedema, Verns’ story continued…"

https://staylymphiestrong.com/about/

Primary Lymphedema is caused by a developmental malformation of the lymphatic system and is often hereditary or genetic. Families for generations did not know there was a genetic link to lymphedema only the physical resemblance from one generation to the next. With the advances in science and technology we now know of specific gene mutations that occur in familial primary lymphedema.

Vern Seneriz is a woman who wears many hats. Daughter, wife, mother, friend, lymphie, encourager, and advocate to name a few. Her and her father, Pete, shared their lymphedema journey for years thinking they were the only two living with this disease, of which they did not know the name. Her blog Lymphie Strong has since informed, encouraged, and connected people from all around the world.

This is her story.

Primary Lymphedema is caused by a developmental malformation of the lymphatic system and is often hereditary or genetic. Families for generations did not know there was a genetic link to lymphedema only the physical resemblance from one generation to the next. With the advances in science and technology we now know of specific gene mutations … Continue reading "Episode 10: Primary Lymphedema featuring…"

https://www.facebook.com/lymphedematreatmentact/

Champion. Advocate. Ambassador. Representative. No matter your preference we need your help to be an advocate for yourself and others. March is Lymphedema Awareness Month with March 6th being World Lymphedema Day. There is something transformative about using your voice to support and promote the well being of a community in such need of recognition.

Today’s episode spotlights the history and current state of The Lymphedema Treatment Act, also referred to as Senate Bill 518, as well as the ways you can become involved in making history. Almost 10 years in the making, this year could be the year the hard work of so many finally pays off, not just for a few but for MILLIONS of Americans. Doesn’t that sound like something you want to be apart of?!

Judy Woodward, Texas Team Leader, Lymphedema Advocacy Group Board Member and National Lymphedema Networks’ Lymph Science Advocacy Program shares insight on SB518 while detailing upcoming events and opportunities to be an advocate.

Check out https://lymphedematreatmentact.org/ for more information on how to become an advocate, learn the current state of the bill, and stay informed on upcoming opportunities to use your voice as an advocate for MILLIONS of Americans just like you or someone you love with Lymphedema.

https://lymphaticnetwork.org/documents/World_Lymphedema_Day_Flyer_2019.pdf is another great resource with information on how you can be involved on March 6, 2019 as an advocate for world lymphedema day.

For anyone who would like to learn more about Judys’ personal story of Primary Lymphedema it can be found in the Episode Transcripts link.

Champion. Advocate. Ambassador. Representative. No matter your preference we need your help to be an advocate for yourself and others. March is Lymphedema Awareness Month with March 6th being World Lymphedema Day. There is something transformative about using your voice to support and promote the well being of a community in such need of recognition. … Continue reading "Episode 09: Lymphedema Advocacy: The Lymphedema Treatment Act and How You Can Be An Advocate on World Lymphedema Day March 6th."