Lymphedema Podcast

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Summer is fast approaching and in some places, like Texas, it seems to have already arrived. Longer days, endless sunshine, and cold beverages are sure to be in your future but what does that mean for those living with Lymphedema?

Today’s episode covers all things summer with my new friend, Cameron Ayala. He is the newest LE&RN Ambassador who knows a thing or two about living with Lymphedema. As a Texas native he shares his personal tips for beating he summer heat.

LE&RN Ambassadors Kathy Bates and Cameron Ayala

Cam Ayala, LE&RN Ambassador, shares his lymphedema story in great detail. His shocking story is going to have you on the edge of your seat! As a fellow Texan he knows a thing or two about complications related to summer and shares great tips on how to beat the summer heat when living with Lymphedema.

https://lymphedematreatmentact.org/

Earlier this month advocates from all over the United States arrived in Washington DC with a story and purpose…Pass the Lymphedema Treatment Act! I was honored for the third year to advocate for this bill I believe in along side patients, product reps and other therapists.

If you are not familiar with the purpose of the Lymphedema Treatment Act please listen to Episode 9 featuring Judy Woodard. She is a board member of the Lymphedema Advocacy Group and leader of the Texas team.

In this episode I lay out three action steps you can take to support the LTA.

1: Call or email your state senators and representatives.

2: Join your state team.

3: Share your Lymphedema story.

You can complete all three of these action steps by visiting the LTA website. On the website you will find a wealth of knowledge pertaining to the bill and how to become and advocate.

This episode provides an update on the current status of the Lymphedema Treatment Act as well as three action steps you can take to support our bill!

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Tammie Luthringer is a Physical Therapist who specializes in Pelvic Floor Dysfunction, also known as Women’s Health. Pelvic floor therapy applies to men as well as women, and often has an impact on ones “sex life.” Having worked with Tammie in the past I knew she would be a great source of information on this topic.

Many of you submitted personal stories and specific questions to have featured in this episode. I hope you hear your question and get some good advice from us!

Warning: This episode discusses sex and intimacy. Use caution when listening, more over where and who you listen with. Not a good time to invite your mother in law over...

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Many women dream of becoming a mother. As I write this post it is Mother’s Day 2019 and I am reminded of this desire that I carry myself. But for many it isn’t as easy an just deciding “Okay, it’s time to make a baby.” Women who have lymphedema face a unique set of difficulties when considering or navigating pregnancy.

My guest Sarah Buller, developed lymphedema during her first pregnancy in 2013. Since she has become an advocate for lymphedema care and is an inspirational member of the lymphedema community. In addition to discussing pregnancy Sarah and I discussed intimacy struggles related to lymphedema as a preview to the next episode on Sex and Intimacy related to Lymphedema.

Visit Sarah’s website if you want to learn more about her or follow her on Instagram @Lymphosaurus_Rex

If you enjoyed this episode or think it will be helpful to someone else please share or leave a comment to encourage others to listen.

Many women dream of becoming a mother. As I write this post it is Mother’s Day 2019 and I am reminded of this desire that I carry myself. But for many it isn’t as easy an just deciding “Okay, it’s time to make a baby.” Women who have lymphedema face a unique set of difficulties … Continue reading "Episode 17: Pregnancy and Intimacy Related to Lymphedema"

This week many of us are in Washington DC for lymphedema lobby days to advocate for the lymphedema treatment act.

If you are not familiar with the Lymphedema Treatment Act listen to this interview with Judy Woodward, board member of the Lymphedema Advisory Group and primary lymphedema patient.

Visit the LTA website to find information specifically for your state and local district. Call your Senator and Representatives to express your support. The website makes it simple to send an email or fax in support of this bill.

Share on Facebook, Twitter, and Instagram your support for the Lymphedema Treatment Act!

This week many of us are in Washington DC for lymphedema lobby days to advocate for the lymphedema treatment act. If you are not familiar with the Lymphedema Treatment Act listen to this interview with Judy Woodward, board member of the Lymphedema Advisory Group and primary lymphedema patient. Visit the LTA website to find information … Continue reading "Episode rewind: Lymphedema Treatment Act and Advocacy"