Cameron Nix joined the podcast for Episode 21 and talked about navigating the first year of his daughter's diagnosis.

Madelynn Joan passed away on August 30, 2023. Many of you reached out to us to convey that you would like to be there but could not make the prayer service or funeral. This was Adam's eulogy that he read at the prayer service.

Having an Angelman Syndrome diagnosis can be a lonely process. I've found that sharing Maddie's story has opened the hearts and minds of many people outside of our family.

Maddie went through her first IEP meeting. Since Maddie has Angelman Syndrome, these Individualized Education Plans will be updated year after year. Hear how our first one went.

A quick preview of episode 18 will be all about Maddie's first IEP meeting. I'll go over how it went, how I prepared, and what I wish I would have done differently.

Having a child with multiple specialists is hard. It's even harder when you have to adapt to a new provider who doesn't know all of the ins and outs of Angelman Syndrome or your child.

In episode 16 of Maddie's Joy: An Angelman Journey, I discuss how a new phrase caused me to look inward. Being a parent to an Angelman Syndrome child can be hard. I discuss some of my shortcomings as a parent and how I have worked to resolve them.

Aaron Ferguson was kind enough to share his experience as a sibling of an Angelman individual. We discuss how he maintains a strong relationship with his brother as well as some of his experiences along the way. Aaron also has written about his experience in the Wisconsin State Journal. If you have not read his opinion piece, please check it out below.

Due to some audio issues, I recycled a vlog post that I recorded before the podcast was even released. I talk about my transition from being a newly diagnosed Angelman father to accepting Maddie's diagnosis.

I just give a quick update on what has been happening with our family and when you can expect the next blog and podcast.