Kitty Murphy who is the National Special Events Director for the Angelman Syndrome Foundation joined the podcast to discuss the upcoming 2023 Angelman Syndrome Foundation Walk. Kitty touches upon what to expect from the ASF's biggest fundraiser of the year, and also how some of your donations are changing lives of individuals with Angelman Syndrome.

Being a special needs parent can be difficult. Over the past few weeks I've been feeling especially frustrated by Maddie's Angelman Syndrome diagnosis. I do some reflection on the things that frustrate me the most about this syndrome.

Micah Huegel joined the podcast for episode 11. Micah is a pediatric physical therapist with Mary Free Bed in Grand Rapids who is certified in neurodevelopmental techniques. He touches on best therapy practices and gives some advice to parents who are struggling to navigate the healthcare system.

In Episode 10 we discuss what keeps me up at night. There are major hurdles that we will have to overcome, especially in regards to Maddie's future. 

The Medicaid redetermination moratorium is set to expire on April 1st. We talk about what this means and how you can prepare.

Episode 8 focuses on what Angelman Syndrome is. We go into the genetics of Angelman Syndrome and some common symptoms of Angelman Syndrome. We also discuss how rare Angelman Syndrome is compared to other syndromes.

Maddie's Joy: An Angelman Journey podcast is back on February 3rd. We'll be going back to basics and talking about what Angelman Syndrome is, and how rare it is compared to other syndromes. 

Sleep issues affect 20-80% of children with Angelman Syndrome. Based on my experience, that number is on the higher side. See some simple tips that can make a world of difference in your child's life.

On today's episode I build upon last week's episode and talk about caregiver burnout. I talk about the article "Why Self-Care Is Essential to Parenting" by Juliann Garey. I hope you enjoy this episode. Don't forget to subscribe, comment, and rate the podcast

In Episode 5 I describe how I built a community of support around our family.