Today’s guest is another incredible scleroderma warrior, Evamarie Cole. Eva was diagnosed 20 years ago, and like many people living with scleroderma, she was initially diagnosed with lupus. When Eva later questioned that diagnosis, she turned to her physician for guidance, only to be dismissed and told he knew better. What ultimately helped save Eva was the strength of her scleroderma community, the support she found in patient groups, and her passion for advocacy. Her story is one of resilience, empowerment, and perseverance — and I know you’re going to love hearing it.

Today’s guest is Dr. Kimti Kumar, a rheumatologist living in New Zealand and completing her PHD at the University of Adelaide. Dr. Kumar’s research caught my attention for its focus on non-drug strategies to address the significant challenges faced by scleroderma patients with Raynaud’s. As many of you know, I’m always drawn to more holistic approaches to health, and I think you’ll find this conversation very insightful. 

Today’s guest is Sundar Balasubramanian  Sundar is internationally recognized for his pioneering research on how yogic breathing and chanting practices can enhance overall well-being. His work highlights a powerful connection: good health begins with proper circulation—and that starts with effective breathing. Sundar also brings a fascinating personal and professional background, which made this conversation especially engaging. Be sure to stay until the end of the episode, where he’ll guide us through some of his breathing techniques so you can experience the benefits for yourself.

I’m excited to welcome back Dr. Elizabeth Volkmann. Dr. Volkmann takes a truly holistic approach to care, focusing on the whole person rather than just the disease. She also has a wonderful new Instagram page filled with helpful, informative content that you won’t want to miss. As always, it was an absolute delight talking with her.

I’m pleased to welcome back Yoga for Scleroderma and Cheryl Albright. Yoga for Scleroderma was one of my very first podcast episodes. At that time, Lori—who has since passed—graciously joined us and was deeply grateful for the work being done. Her presence and spirit remain an important part of this story. I want to thank Cheryl for taking the time to return and share updates on what’s happening with Yoga for Scleroderma today. Cheryl’s mission is simple yet powerful: helping people feel the most comfortable in the body they were given. That statement speaks volumes about who she is and the work she does.

Today’s guests are Cheryl Ferguson and Trish Markey, two women connected by their experiences with scleroderma. Cheryl is the mother of a daughter with scleroderma, and Trish is a scleroderma warrior herself. Each chose to explore an antibiotic-based approach and became involved with the Road Back Foundation along the way. This episode is meant to share personal experiences, not medical advice—so please check with your physician before making any changes to your care. Now, let’s hear their stories.

Today’s topic is one I’ve wanted to discuss for a very long time and one that’s particularly troubling to me: calcinosis. I was absolutely thrilled when Dr. Ariane Herrick agreed to join me for this conversation. She is incredibly knowledgeable on the subject and shared such valuable insight and information about this challenging condition. I’m so grateful for her time and expertise

Today, I’m joined by two incredible guests: Ted Haugh, who was finally diagnosed with systemic sclerosis in 2022 after symptoms began back in 2016 and five doctors later; and his wife, Erin, who not only cares for Ted but also lost her mother to scleroderma when she was just 17.

Together, they share their powerful journeys and perspectives. Let’s listen to their stories.

Today’s guest is Dr. Kathryn Torok, a pediatric rheumatologist at the University of Pittsburgh and UPMC Children’s Hospital of Pittsburgh, where she directs the Pediatric Craniofacial Scleroderma Clinic. Scleroderma in children is rare, about five in 100,000 develop localized disease, and only about one in a million develop systemic disease. It's crucial to treat to target as early as possible. I learned so much from Dr. Torok about how scleroderma affects children and the best approaches to care.

Today’s guest is Dave Hanson, who shares his journey from his first confusing symptoms to finally receiving a diagnosis. It all began in the fall of 2019, when Dave started experiencing unusual symptoms — painful cramps and a vague but unsettling feeling that something wasn’t right. By early 2020, just before the pandemic, he noticed swelling in his hands and went to the ER. With no signs of Raynaud’s, doctors initially diagnosed him with psoriatic arthritis.

It would take another year before he received the correct diagnosis: diffuse cutaneous scleroderma.