Katie's SupportNow Registry:https://www.supportnow.org/lewis-laczko-family

When Katie Lewis’s son Leo began having seizures at just six months old, her world changed overnight. In this heartfelt episode of Moms Like Me, host Jordan Arogeti talks with Katie about navigating Leo’s rare brain disorder (PMG – polymicrogyria), the decision to travel cross-country for a life-changing brain surgery, and how their family stayed connected through it all.

🎧 Katie opens up about:
– Receiving a rare disease diagnosis
– Leo’s seizure treatment and UCLA frontal lobectomy
– The emotional toll and hidden grief of parenting a medically complex child
– How she and her husband stayed strong as a team
– Helping her daughters process uncertainty and fear
– Reclaiming her identity after years of survival mode This episode is a raw, inspiring reminder of the strength found in motherhood, marriage, and community support.

📌 Don't forget to like, subscribe, and share this episode to support more moms navigating medical challenges. #RareDisease #MedicalMom #SeizureAwareness #MotherhoodJourney #Polymicrogyria #FamilyResilience #ParentingThroughCrisis #SupportNow #MomLifePodcast

What happens when life prepares you for something you never expected? Monica Gellinas—mom of quadruplets, caregiver, life coach, and now Executive Director of CC4C—opens up about her family’s journey through rare disease, personal transformation, and the power of listening and showing up. In this heartfelt conversation, Monica shares: 💡 What it was like to walk with her niece through a mysterious and painful illness 🌱 How she cultivated emotional resilience while raising four children as a single mom 🧡 Why listening, not fixing, is the most powerful act of support 🌳 Her practical “gratitude hacks” that help shift from anxiety to peace 👨‍👩‍👧‍👦 And how CC4C is wrapping arms around the entire family, not just the child Whether you’re supporting a loved one through crisis or navigating your own uncertainty, Monica’s story will leave you with perspective, peace, and purpose.

What happens when one child life specialist decides families deserve more than overstretched hospital staff can offer? Meet Katie Taylor (IG - https://www.instagram.com/childlifeoncall/) —CEO of Support Spot and host of Child Life On Call—who’s reimagining how hospitals and parents care for children through trauma, diagnosis, and recovery.

In this powerful conversation, Katie shares:

- What a child life specialist actually does (it’s not what most people think)
- The real reason she started Support Spot—with her dad as co-founder!
- Why redefining success as a mompreneur matters more than metrics
- What hospitals and caregivers alike can learn from empowered parents
- Whether you’re a caregiver, medical professional, or entrepreneur, this episode is packed with heart, wisdom, and a bold vision for what pediatric support could—and should—look like in today’s world.

👉 Watch now to hear how Katie is building tech-enabled, trauma-informed care for families—one app and one story at a time.

When Paige Bautz’s daughter Presley was diagnosed with cerebral palsy, autism, ADHD, and anxiety, life took a turn she never expected. In this raw and uplifting episode, Paige—author, empowerment coach, and mom—shares how she transformed fear into fierce advocacy. From NICU to spinal surgery, from ableism to empowerment, Paige opens up about what it really means to parent a child with disabilities.

Host Jordan Arogeti sits down with Paige for a conversation about grief, grit, and growth—including the surprising power of social media, the challenges of caregiving, and the hidden ways communities can truly show up.

👣 Topics include:

The moment Paige learned about cerebral palsy

Processing complex diagnoses as a parent

Ableism, advocacy, and finding hope in unexpected places

How caregivers can ask for and receive support

Building true community through SupportNow

🎧 Listen in and be reminded: everyone’s carrying something—and with the right circle, we don’t have to carry it alone.

🔗 Learn more about Paige: https://paigebautz.com
📷 Follow Paige on Instagram: @paigebautz

#CerebralPalsy #DisabilityAwareness #CaregiverSupport #SupportNow #MomsLikeMe

Sara Valenzula’s journey to motherhood started with heartbreak: multiple battles with cancer and a devastating NICU loss. But her story didn’t stop there. In this episode of Moms Like Me, Sara shares how she became a fierce advocate for her son Kenny — born at 25 weeks and later diagnosed with cerebral palsy and epilepsy — and how discovering the Trexo robotic gait trainer changed everything.

🎙️ You’ll hear:
- How Sara defied the odds to become a mom
- What it’s like parenting a child with profound disabilities
- The moment she first saw her son walk using the Trexo
- Real talk about the guilt, grief, and courage behind asking for help
- Practical advice on funding life-changing equipment through platforms like SupportNow
- If you’ve ever wondered how far a mother’s love can go — this is it.

🔗 Learn more about Trexo: https://trexorobotics.com
🔗 Explore medical grants and fundraising support: https://supportnow.org

In this episode of The Moms Like Me podcast, Jordan interviews the inspiring Katherine Wolf, who shares her powerful story of resilience, faith, and advocacy. Katherine suffered a near-fatal brainstem stroke at 26, which dramatically changed her life, leading her to become a prominent advocate for the disabilities community. She co-founded Hope Heals, a nonprofit focused on supporting families with disabilities, and discusses the importance of radically accepting life's challenges to move forward. Katherine also shares personal insights into how her marriage and family life have adapted and thrived despite her disabilities. Learn about her upcoming projects, the role of community in her journey, and the importance of dreaming new dreams despite life's setbacks. Katherine's insta: https://www.instagram.com/hopeheals/ 00:00 Introduction and Guest Overview 01:26 Katherine Wolf's Life-Altering Stroke 04:12 Journey to Acceptance and Advocacy 09:03 The Role of Community and Caregivers 18:17 Parenting and Family Dynamics 21:52 Finding Joy and Purpose in Disability 23:49 Exciting Future Endeavors 27:40 Closing Remarks and Gratitude

In this powerful episode of Moms Like Me, host Jordan Arogeti sits down with Scarlett Lewis, whose 6-year-old son Jesse was tragically killed in the Sandy Hook Elementary School shooting. But rather than spiral into despair, Scarlett made a bold decision—to lead with love. Scarlett shares: - The story of Jesse’s heroic final moments - How she found strength in his message: "Nurturing, Healing, Love" - Why focusing on prevention, not just protection, is the real answer to school safety - The incredible work of her nonprofit: The Choose Love Movement This is a story about resilience, purpose, and the power of emotional intelligence in healing communities. 👉 Learn more and support the movement: https://chooselovemovement.org #ChooseLove #ScarlettLewis #SandyHook #MomsLikeMe #SchoolSafety #EmotionalIntelligence

In this heartfelt episode of Moms Like Me, host Jordan Arogeti sits down with Ashlyn Burger—wife of MLB player Jake Burger and mom to two beautiful children, including baby Penelope, who was born with Down Syndrome. Ashlyn shares the emotional story of receiving Penelope’s diagnosis, navigating uncertainty during pregnancy, and embracing the unexpected with grace, courage, and joy.

She opens up about:
- The moment they found out via email
- Jake’s calm and grounding reaction
- Advocating for Penelope amid medical bias
- Launching the Burger Family Foundation & Lucky Ranch
- The power of representation in the Down Syndrome community

This episode is a must-watch for parents, advocates, and anyone who believes in the beauty of every life and the strength of family.

📍 Learn more or donate: https://burgerfamilyfoundation.org

When Kristin Johnston saw a Facebook post about an old high school friend battling stage 4 colon cancer, she did something extraordinary—she volunteered to be his liver donor. Despite not speaking in over 20 years, Kristin followed a series of small nudges that led to a life-altering decision. In this deeply moving conversation, she shares how her faith, family, and fierce sense of purpose guided her through the process. 🎙️ Hosted by Jordan Arogeti on The Moms Like Me Podcast, this episode explores the power of community, faith, and what it means to show up in someone else’s darkest hour. 👩‍👧‍👦 Kristin is also a mom of three, making her decision even more remarkable. Read more at https://www.supportnow.org/the-register-family

⚠️ Trigger warning: child loss / SIDS When Martha dropped 16-week-old Everly at daycare, she never imagined the phone call that would shatter her world. In this powerful conversation, Martha shares how she and her family moved from unimaginable grief to founding Just Enduring, a nonprofit that now walks with other parents through their darkest days. 👇 Keep watching if you need: • Real-life insight on surviving the loss of a child • Practical ways to support grieving families • Inspiration to turn pain into purpose ⏱️ Chapters 00:00 Welcome & show intro 01:05 Meet Martha — mom of three from St Louis 03:12 The day everything changed (Everly’s story) 05:26 Hospital nightmare & unanswered questions 07:20 SIDS vs. suffocation ― understanding the diagnosis 09:18 What actually helps a grieving family 12:35 Telling a 3-year-old her sister died 15:48 Children’s grief: honesty, language & healing 17:55 Choosing to try again — pregnancy after loss 20:21 NICU scare & postpartum reflections 23:18 Birth of Just Enduring — mission & resources 25:10 Where to find help + closing thoughts 🔗 Links & resources 🌐 Just Enduring – immediate support & resources for bereaved parents https://www.justenduring.org 👍 Support the show • Subscribe for new episodes