My Cancer Story

My Cancer Story

By Jess Thomas NelsonSociety & Culture
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My Cancer Story episodes

  • S2 E14 - Morgan Gaynor - Stage IV Ovarian Cancer

    This week you meet Morgan.  September 2019, Morgan was diagnosed with low-grade serous ovarian carcinoma, after an ultrasound to investigate her fertility to freeze her eggs. Low-grade serous ovarian carcinoma is a rare, slow-growing cancer that tends to be more prevalent in younger women when compared to more common forms of ovarian cancer.


    May 8th is World Ovarian Cancer Day

    Established in 2013 by a group of leaders from ovarian cancer advocacy organizations around the world, May 8 – World Ovarian Cancer Day, is the one day of the year we globally raise our voices in solidarity in the fight against ovarian cancer.

    While the World Ovarian Cancer Coalition works on many fronts, World Ovarian Cancer Day is our flagship awareness-raising initiative, and is the key date in our calendar. Supported by over 170 organizations from around the world, our social media reach grows exponentially every year, with 2020 numbers at over three million up from one million the previous year. Organizations as small as kitchen table-based patient advocacy groups in rural communities, to national healthcare associations based in major metropolitan areas, all come together as one to raise awareness about the disease.

    https://worldovariancancercoalition.org/


    STAAR

    STAAR exists to raise critical funds for life-saving research for those with low-grade ovarian cancer.

    STAAR was co-founded by three low-grade ovarian cancer thrivers in early 2020. The foundation exists to fund research for better treatment options for low-grade serous carcinoma, a rare (less than 10% of ovarian cancer cases) and extremely underfunded subtype.


    Low-grade serous carcinoma is often labeled as a "tricky opponent" by clinicians because it acts differently than more common subtypes - it grows slower and is often chemo-resistant, leaving fewer treatment options. The average age of diagnosis is 18 years younger than ovarian cancer overall, meaning that many diagnosed are young moms or never got a chance to have children. Research dedicated to low-grade ovarian cancer is desperately needed to give women a chance at longer lives.

    ​For more information on low-grade serous carcinoma, please visit our friends at Cure Our Ovarian Cancer, the leading global charity dedicated to low-grade research.


    May 6th is Conquer Cancer Day

    find out how you can make a difference and donate here


    41 min
  • Exciting Announcements!

    We Have Cancer Podcast

    https://wehavecancershow.com/


    Donate for Conquer Cancer Day

    https://conquer.org/

    www.conquer.org/jess


    World Ovarian Cancer Day is May 8th!

    https://worldovariancancercoalition.org/biggerpicture/


    New episode of My Cancer Story Podcast airs tomorrow!!!

    ---
    Support this podcast: https://anchor.fm/mycancerstorypodcast/support
    3 min
  • S2 E13 - Rachel Engstrom - Author and Caretaker "Wife, Widow, Now What?"

    This week you will be meeting Rachel.  She is telling her caregiver story as well as her late husbands cancer story and his fight against Acute Lymphoblastic Leukemia.  Rachel is the Author of "Wife, Widow, Now What?" in which she chronicles her and her husbands journey through his cancer diagnosis.  Her book is based on her own personal experience as a cancer wife then widow that is an invaluable resource to anyone going through the cancer process/journey whether patient, caregiver, or supporter. Rachel wrote this book to help others along the way with a fresh, witty and authentic narrative.

    In this episode, you will laugh, you will cry and you will hear this amazing woman's story as she navigated through her husbands cancer diagnosis, journey, and her life after his passing.  Her book details in live action what she was going through; Physically, emotionally, spiritually, and even talks about things you don't necessarily think about or prepare such as finances, schedules and more.  She is so unbelievably inspirational and you will come away from this conversation with a whole new appreciation on life.

    Links from our chat:

    Facebook

    IG- wifewidownowwhat

    Twitter @wifewidownowwh

    To learn more about Rachel and her journey visit:

    https://linktr.ee/wifewidownowwhat


    To purchase Rachels book, "Wife, Widow, Now What?"

    https://www.amazon.com/Wife-Widow-Now-What-Navigated/dp/B08KBV5DBL/ref=nodl_#immersive-view_1601477867868

    Cancer Con

    Rachel's Leukemia Woman of the Year Fundraiser

    1 hr 3 min
  • S2 E12 Lauren Tarpley - Breast Cancer
    Listening to this episode, you will feel like you are hanging out with your best 2 girl friends!  This episode is longer than my usual episodes, but it is soooooo worth the listen!  You will meet Lauren, she is a Wife and Mother and also a breast cancer survivor.  She talks about her diagnosis, being her own advocate as well as dealing with future fertility.  
    Follow Lauren and her Podcast at:
    IG
    @typeaguidetocancer
    Lauren's Podcast:2
    @blended_kidz
    www.blendedkidz.com 
    April is National Minority Cancer Awareness Month & 4/5 is National Young Adult Cancer Awareness Week
    2 hr 19 min
  • S2 E11 - Brodi Nicholas - Campaign One At a Time

    This episode you will meet Brodi Nicholas.  He is the CEO and founder of a non profit called Campaign One At a Time where their mission is to ensure that no child battling a severe illness ever feels alone.  Brodi talks about his inspiration behind this non profit, how it has grown and the several programs and campaigns they consistently have going on.  Brodi is a true inspiration with the purest of intentions, you WILL NOT regret listening to this episode!

    To learn more about Brodi and Campaign One At a TIme:

    To get involved/make a contribution: campaignoaat.org/changemaker

    If there are any families that currently have a child battling a life threatening illness, they can apply to become an OAAT kid by visiting

    https://oaat.typeform.com/to/Y4sS8y

    Campaign OAAT also have an online web series called The Spread Good Squad people can watch by visiting https://youtu.be/JWBfFVOrXhg

    Corporate sponsors are:Hounds Town USA, Hamilton & Associates, MyBooks.Pro, & Spread Good Productions

    If you are interested in making a donation and/or joining our community of SoCal #ChangeMakers, you can do so by visiting campaignoaat.org/changemaker

    By becoming a monthly #ChangeMaker, you’d get access to our online community & exclusive volunteer opportunities! Please let me know if you have any other questions or if there’s anything I can do to help.

    26 min
  • S2 E10 - Isabelle Bart - Breast Cancer

    Isabelle is sharing her breast cancer story with us this week.  Her journey began not long ago (1 year from when we recorded this episode).  She shares her story of her breast cancer diagnosis and treatment during a pandemic.  Her mindset and outlook on her experience is truly inspiring.  What she has done since her diagnosis with her life and life's purpose is truly impressive and she gives wonderful advice including : 

    "Don't wait until you get cancer to make a difference."

    and

    "Just start somewhere"

    Find Isabelle at:

    www.isabellebart.com

    IG: @isaquamaid

    Clubhouse: @coachisa


    42 min
  • S2 E9 - Staci Bellinger - Ovarian Cancer

    This episode you meet Staci.  She is a Ovarian Cancer - Small Cell Carcinoma of the Ovary Hypercalcemic Type (SCCOHT) Survivor.  Staci was diagnosed at the age of 38, yet the average age of diagnosis is typically early to mid 20's.  Staci shares her journey through diagnosis, treatment and after cancer.  She shares how she navigated through this experience as a mother of 2 small children and the loving support of her husband and family and how they got through it together.  

    To learn more about Staci and to check out what she referenced in our talk:

    Small Cell Ovarian Cancer Foundation:

    smallcellovarian.org

    Ovarian Cancer Research Alliance (OCRA):

    ocrahope.org

    National Ovarian Cancer Coalition

    ovarian.org

    The Clearity Foundation

    clearityfoundation.org


    Better Together by Jessice Walker book, that I contributed my experiences and advice:

    Better Together: Navigating the Cancer Experience: Walker, Jessica: 9798696855110: Amazon.com: Books

    https://www.betterandcompany.com

    1 hr 2 min
  • S2 E8 - Allie Morgan - Osteosarcoma - Confidence Coach

    Meet Allie.  She is an osteosarcoma cancer survivor as a teen and took her experience into adulthood and became a one on one coach and confidence coach.   She was diagnosed as a teen but not until she was in her early 20s did she realize the importance of confidence.  Both in herself and in her skills, but the importance of others to have confidence in themselves.  She is your biggest cheerleader and helps you find the confidence to do that thing you’ve always wanted to do. Whether it’s showcasing your art skills in an exhibition, asking that person you like on a date or returning to work after cancer treatment, I’m here to help you get back out there and live your life to the full.

    Because life really is too short to keep playing it safe. You need to believe in yourself enough to go for the things you really want. And Allie will be by your side, every step of the way.

    https://whatcomesnextcoaching.com/

    IG: @allmorgancoaching

    Allie has also contributed in books:

    Eat Better With Cookbook

    Live Life Now Project

    -@livelifenowproject

    32 min
  • S2 E7 - Brandi Benson - Ewing Sarcoma

    Today's episode you meet Brandi Benson.  She is a Ewing Sarcoma Survivor, Veteran, Author, Speaker, Brand Ambassador and Entrepreneur.  You will hear her talk about her journey to Iraq, finding her tumor, being diagnosed and surviving cancer.  Brandi is now 12 years cancer free and has been thriving post cancer.  Listen to the whole podcast, she shares so much of herself and gives incredible advice.


    Cites from this episode:

    Website: www.brandilbenson.com

    Social media: @brandil.benson

    Brandi's Book : The Enemy Inside Me

    Brand Ambassador for The Sarcoma Alliance

    Speaker for TLC Lions

    Business owner of Resume Advantage


    Thank you to our sponsors of this episode:

    Farmacy - Get 15% off your first purcase!

    Anchor.fm

    & 

    ShareASale

    1 hr 2 min
  • S2 E6 - Lauren Nelson - Wilms Tumor

    Today's episode you will hear Lauren tell her cancer story.  She has a unique story about both herself and her sisters' surviving a fairly rare tumor most seen in children called a Wilms tumor.   Lauren talks about celebrating her 20 year Cancerversary, her involvement in Make A Wish Foundation, and her new foundation called Roar Philanthropy.  She touches on full circle moments, small actionable things, and we talk about other topics other than just being cancer survivors.

    Find Lauren on IG:

    @lorquelnelson

    @roarphilantropy

    Lauren's Organization:

    https://roarphilanthropy.org/

    Other Organizations mentioned in the podcast:

    https://www.headbandsofhope.com/

    https://wish.org/

    https://wish.org/wisconsin/young-wishmakers-wisconsin-milwaukee#:~:text=You%20can%20grant%20life%2Dchanging,philanthropic%20members%20of%20their%20community.

    1 hr 3 min

About My Cancer Story

From the publisher's feed

Everyone has a cancer story. Whether its affected us directly or to a family member, a friend, or anyone that we love. Each story is different but equally so important. Some stories include pee your…