Myeloma - The Bloodline with Blood Cancer United Podcast

Myeloma - The Bloodline with Blood Cancer United Podcast

Download on the App Store

Myeloma - The Bloodline with Blood Cancer United Podcast episodes

  • Myeloma, Fatherhood, and Moving Forward
    Brice Davis

    After being diagnosed with multiple myeloma at age 31, Brice Davis faced challenges that extended far beyond treatment alone. Join us as he talks about balancing fatherhood, navigating mental health struggles, rebuilding after setbacks, and adjusting to life with a chronic blood cancer. Brice reflects on the importance of community, resilience, and focusing on what matters most while creating a fulfilling life after diagnosis.

    DOWNLOAD TRANSCRIPT
    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • Multiple myeloma
    • Autologous stem cell transplant
    • CAR T-cell therapy
    • Lessons in Blood Cancer: How Far We Have Come – Myeloma
    • Unite to Nourish: Dietary, Microbiome and Metabolism Evidence in Blood Cancers (Focus on Myeloma) Webcast
    • Young Adult Resources
    • Young Adult Online Chat
    • Additional Blood Cancer United Support Resources: 

      • Information Specialists 
      • Free Nutrition Consultations
      • Nutrition Handbook for Parents Free telephone/web patient programs 
      • Clinical Trial Support Center
      • SHARE web series
      • Online videos
      • Free booklets 
      • Caregiver support
      • Caregiver Workbook
      • Support groups 
      • Patient Community
      • Medical Debt Case Management Program
      • Financial support
      • Survivorship Workbook
      • Advocacy and Public Policy
      • Mental Health Resources
      • Episode supported by Adaptive Biotechnologies Corporation; GSK plc; and Johnson & Johnson.

        The post Myeloma, Fatherhood, and Moving Forward first appeared on The Bloodline with Blood Cancer United Podcast.

        44 min
      • Facing Multiple Myeloma: A Guide to Choices, Care, and Confidence
        Andrew Yee, MD

        Multiple myeloma can feel unfamiliar and overwhelming at first, but today’s advances tell a much brighter story.

        In this episode, Dr. Andrew Yee of Massachusetts General Hospital explains what myeloma is, how it’s diagnosed, and why new treatment options, from four-drug regimens to CAR T-cell therapy and bispecific antibodies, are transforming patient outcomes. With enthusiasm and relatable analogies, he highlights how patients may progress from periods of significant challenges to reaching a level of stability and well‑being that allows them to live fully. This conversation offers clarity, confidence, and real optimism for anyone navigating myeloma.

        DOWNLOAD TRANSCRIPT
        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Multiple myeloma
        • Amyloidosis
        • Autologous stem cell transplantation
        • CAR T-cell therapy
        • Immunotherapy fact sheet
        • Clinical Trial Support Center
        • Additional Blood Cancer United Support Resources: 

          • Information Specialists 
          • Financial support
          • Online Chat
          • Free Nutrition Consultations
          • Free telephone/web patient programs 
          • Free booklets 
          • Young Adult Resources
          • Support groups 
          • Caregiver support 
          • Caregiver Workbook
          • Survivorship Workbook
          • Advocacy and Public Policy
          • Patient Community
          • Mental Health Resources
          • Episode supported by AbbVie Inc.; Bristol Myers Squibb; Genentech, A Member of the Roche Group; GSK plc.; Johnson & Johnson.

            The post Facing Multiple Myeloma: A Guide to Choices, Care, and Confidence first appeared on The Bloodline with Blood Cancer United Podcast.

            51 min
          • MRD Explained: What it Means for You and Your Care
            John Burke, MD

            MRD (minimal/measurable residual disease) testing is changing the way doctors understand and monitor blood cancers.  In this episode, we talk with Dr. John Burke of the Rocky Mountain Cancer Center about how MRD testing works, what the results mean to patients and their care teams, and how ongoing clinical research is helping shape more personalized and hopeful approaches to treatment. 

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Minimal/Measurable Residual Disease (MRD) fact sheet
            • Minimal/Measurable Residual Disease (MRD) chart
            • CAR T-cell therapy
            • Additional LLS Support Resources: 

              • Free Nutrition Consultations
              • Information Specialists 
              • Free telephone/web patient programs 
              • Clinical Trial Support Center
              • Advocacy and Public Policy
              • Free booklets 
              • Financial support
              • Young Adult Resources
              • Support groups 
              • Survivorship Workbook
              • Community
              • Caregiver support 
              • Caregiver Workbook
              • Mental Health Resources
              • Supported by Adaptive Biotechnologies Corporation and Allogene Therapeutics.

                The post MRD Explained: What it Means for You and Your Care first appeared on The Bloodline with Blood Cancer United Podcast.

                36 min
              • Hope in Myeloma: The Road to Long-Term Survival
                Cesar Rodriguez, MD

                In this episode, we sit down with Dr. Cesar Rodriguez of Mount Sinai Hospital in New York, NY to discuss the evolving landscape of myeloma treatment. Groundbreaking innovations are bringing new hope to patients and caregivers. Dr. Rodriguez breaks down the latest advancements in immunotherapy, including CAR T-cell therapy and bispecific antibodies. Hear how researchers and physicians are working to make myeloma into a manageable, long-term disease, while ultimately searching for a cure.

                DOWNLOAD TRANSCRIPT
                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Myeloma
                • Monoclonal Gammopathy of Undetermined Significance (MGUS) and Related Conditions
                • Amyloidosis
                • Revised International Staging System (R-ISS)
                • LLS Clinical Trial Support Center
                • Autologous stem cell transplantation
                • Autologous stem cell transplant animated video
                • CAR T-cell therapy
                • Bispecific antibodies – Immunotherapy fact sheet
                • Additional LLS Support Resources: 

                  • Free Nutrition Consultations
                  • Information Specialists 
                  • Financial support
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Young Adult Resources
                  • Online chats 
                  • Support groups 
                  • Caregiver support 
                  • Caregiver Workbook
                  • Advocacy and Public Policy
                  • Survivorship Workbook
                  • LLS Community 
                  • Mental Health Resources
                  • Supported by Abbvie Inc.; Genentech, A Member of the Roche Group; and Johnson & Johnson.

                    The post Hope in Myeloma: The Road to Long-Term Survival first appeared on The Bloodline with Blood Cancer United Podcast.

                    50 min
                  • Family Ties: Navigating Multiple Myeloma Together
                    Ashlie D’Andrea
                    Emma D’Andrea
                    Lynn Steele, LSW, OSW-C

                    In this episode, we speak to a myeloma patient and her teenage daughter about the impact that myeloma had on her family. Lynn Steele, a social worker and Information Specialist at LLS, then joins us to share tips and resources on how families can navigate a cancer diagnosis together. 

                    DOWNLOAD TRANSCRIPT
                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Multiple myeloma
                    • Talking to children and families about cancer
                    • Parenting with cancer
                    • Caregiver support 
                    • Caregiver Workbook
                    • Online chats 
                    • LLS Community 
                    • Patti Robinson Kaufmann First Connection Program®
                    • Pickles Group
                    • Additional LLS Support Resources: 

                      • Information Specialists 
                      • Free Nutrition Consultations
                      • Financial support
                      • Clinical Trial Support Center
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Young Adult Resources
                      • Advocacy and Public Policy
                      • Survivorship Workbook
                      • Support groups 
                      • Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.

                        The post Family Ties: Navigating Multiple Myeloma Together first appeared on The Bloodline with Blood Cancer United Podcast.

                        35 min
                      • How New Therapies Are Changing The Future of Myeloma
                        Nishi Shah, MD, MBBS

                        Remarkable progress has been made in the treatment of myeloma over the past decade, giving patients and families much hope for the future. In this episode, we speak to Dr. Nishi Shah of Montefiore Einstein Comprehensive Cancer Center in New York City. While the wide variety of therapies available to patients are discussed, this episode also focuses on the newest, cutting-edge therapies for myeloma, such as CAR T-cell therapy and bispecific antibodies.  

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Multiple Myeloma
                        • CAR T-cell Therapy
                        • Bispecific Antibodies – Immunotherapy Booklet
                        • Stem Cell Transplant
                        • Multiple Myeloma and Agent Orange
                        • Additional LLS Support Resources: 

                          • Information Specialists 
                          • Financial support
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Clinical Trial Support Center
                          • Young Adult Resources
                          • Caregiver support 
                          • Caregiver Workbook
                          • Survivorship Workbook
                          • Online chats 
                          • LLS Community 
                          • Support groups 
                          • Patti Robinson Kaufmann First Connection Program 
                          • Free Nutrition Consultations
                          • Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.

                            The post How New Therapies Are Changing The Future of Myeloma first appeared on The Bloodline with Blood Cancer United Podcast.

                            32 min
                          • Mission To Complete Remission: Utilizing MRD Testing In Blood Cancer
                            Adriana Rossi, MD

                            Testing for minimal or measurable residual disease (MRD) in blood cancer has transformed the way we look at remission and treatment planning.

                            In this episode, we speak to Dr. Adriana Rossi of Mt. Sinai Hospital in New York about how MRD testing is being utilized for blood cancer patients. Join us as we explore minimal/measurable residual disease (MRD) testing for blood cancer and its role in guiding treatment decisions and predicting relapse and prognosis.   

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Minimal/Measurable Residual Disease
                            • Minimal/Measurable Residual Disease Chart 
                            • Tests (FISH, Flow Cytometry, Next-generation Sequencing)
                            • The Revolution of Genomics: How Testing Leads to Individualized Treatment
                            • Multiple Myeloma
                            • Acute Lymphoblastic Leukemia
                            • Additional LLS Support Resources: 

                              • Information Specialists 
                              • Financial support
                              • Free telephone/web patient programs 
                              • Free booklets 
                              • Clinical Trial Support Center
                              • Young Adult Resources
                              • Caregiver support 
                              • Caregiver Workbook
                              • Survivorship Workbook
                              • Online chats 
                              • LLS Community 
                              • Support groups 
                              • Patti Robinson Kaufmann First Connection Program 
                              • Free Nutrition Consultations
                              • Support for this episode provided by: Adaptive Biotechnologies

                                The post Mission To Complete Remission: Utilizing MRD Testing In Blood Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

                                30 min
                              • Community Outreach in The Field: Red, Bred & Led Houston
                                Mia Johnson

                                Please join us for the latest episode of our Community Outreach In The Field series, where our field correspondents, comprised of LLS Staff, will be on the ground interviewing health advocates, patients, caregivers and healthcare professionals in the communities in which they serve. These episodes will make listeners feel like they are right in the middle of the action!

                                In this episode, Mia Johnson, the National Community Outreach Manager for LLS’s Myeloma Link program, hosted an event curated for Black women called “Red, Bred & Led” in Houston, TX. This weekend-long event consisted of a Sip and Paint Party, a Luxe brunch, and Sunday worship, all with an educational overview of multiple myeloma. This event heightened awareness of how myeloma disproportionately affects Black communities.  A heavy focus was given on female caregivers, and how they can spread awareness and share resources available to them within their families and communities if a loved one is diagnosed with a blood cancer. 

                                DOWNLOAD TRANSCRIPT
                                CLICK HERE to participate in our episode survey.

                                Mentioned on this episode: 

                                • Myeloma Link
                                • Multiple Myeloma
                                • Community Outreach In The Field: Blood and Chess Atlanta
                                • Additional LLS Support Resources: 

                                  • Information Specialists 
                                  • Free telephone/web patient programs 
                                  • Free booklets 
                                  • Financial support
                                  • Caregiver support 
                                  • Young Adult Resources
                                  • Survivorship Workbook
                                  • Clinical Trial Support Center
                                  • Online chats 
                                  • LLS Community 
                                  • Support groups 
                                  • Patti Robinson Kaufmann First Connection Program 
                                  • Free Nutrition Consultations
                                  • Support for this episode provided by: Bristol Myers Squibb; Eli Lilly and Company; GSK and Pharmacyclics, An AbbVie Company & Janssen Biotech.

                                    The post Community Outreach in The Field: Red, Bred & Led Houston first appeared on The Bloodline with Blood Cancer United Podcast.

                                    28 min
                                  • Making The Decision To Live: A Myeloma Story
                                    Tim Cooper

                                    Join us as we speak to Tim Cooper, a multiple myeloma patient and caregiver. In this episode, Tim discusses how he was diagnosed with myeloma after sustaining a neck fracture. Unlike many patients, he was familiar with myeloma, as his mother had been diagnosed with myeloma years prior.  

                                    After multiple treatments, including chemotherapy and stem cell transplantation, Tim is doing well and enjoying life. He finds that sharing his story is therapeutic and encourages other patients to keep pushing forward and find hope after a blood cancer diagnosis.  

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • Multiple Myeloma
                                    • LLS Financial Assistance Program
                                    • Autologous Stem Cell Transplantation
                                    • Beating Incurable podcast episodes
                                    • Caregiver support 

                                    Additional LLS Support Resources: 

                                    • Information Specialists
                                    • Financial support
                                    • Free telephone/web patient programs 
                                    • Free booklets 
                                    • Patti Robinson Kaufmann First Connection Program
                                    • Clinical Trial Support Center
                                    • LLS Community 
                                    • Online chats 
                                    • Support groups 
                                    • Caregiver Workbook
                                    • Free Nutrition Consultations 
                                    • LLS Advocacy
                                    • Survivorship Workbook

                                    Support for this episode provided by: Bristol Myers Squibb; GSK plc.

                                    The post Making The Decision To Live: A Myeloma Story first appeared on The Bloodline with Blood Cancer United Podcast.

                                    32 min
                                  • Community Outreach In The Field: Blood and Chess Atlanta
                                    Bryon Daily

                                    Please join us for a brand new series called, Community Outreach In The Field, where our field correspondents, comprised of LLS Staff, will be interviewing health advocates, patients, caregivers and healthcare professionals in the communities in which they serve. These episodes will give the listener the feel that they are right in the middle of the action.

                                    In the first episode, Bryon Daily, the National Community Outreach Manager for LLS’ Myeloma Link Program, explored one of the newest outreach settings called Blood and Chess. This chess event took place in Atlanta, Georgia, at The Anguished Barber and is designed as an off shoot of the barbershop model, where advocates can spread blood cancer awareness in comfortable community settings and help to decrease healthcare disparities of underserved communities.

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • Myeloma Link
                                    • Multiple Myeloma
                                    • Acute Lymphoblastic Leukemia (ALL)
                                    • Stem Cell Transplant
                                    • Understanding Racial and Ethnic Disparities in Healthcare
                                    • Health Advocates in Reach and Research (HAIR)
                                    • Additional LLS Support Resources: 

                                      • Information Specialists
                                      • Financial support
                                      • Free telephone/web patient programs 
                                      • Patti Robinson Kaufmann First Connection Program
                                      • Free booklets 
                                      • LLS Public Policy & Advocacy
                                      • Online chats 
                                      • Caregiver support 
                                      • Support groups 
                                      • Free Nutrition Consultations 
                                      • LLS Advocacy
                                      • Survivorship Workbook
                                      • Support for this episode provided by Genentech, Inc. and Biogen

                                        The post Community Outreach In The Field: Blood and Chess Atlanta first appeared on The Bloodline with Blood Cancer United Podcast.

                                        34 min

                                      About Myeloma - The Bloodline with Blood Cancer United Podcast

                                      From the publisher's feed

                                      A podcast for patients and caregivers