Myeloma - The Bloodline with Blood Cancer United Podcast

Join us as we speak to Damion Davis, a myeloma patient and licensed professional counselor. In this episode, Damion talks about his myeloma diagnosis and how he reached remission after a stem cell transplant. Dealing with the difficulty of a cancer diagnosis as a husband and father of young daughters, Damion knew the benefits that therapy would provide for him and his family. In honor of Mental Health Awareness Month in May, we share his story of resilience, highlighting the importance of mental health care for cancer patients and their families. 

Mentioned on this episode: 

• Multiple Myeloma
• Stem Cell Transplant
• Autologous Stem Cell Transplant
• Parenting Resources
• Mental Health Resources
• Additional Mental Health and Crisis Resources
• Survivorship Workbook

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Patti Robinson Kaufmann First Connection Program
• Free booklets 
• LLS Public Policy & Advocacy
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy

Support for this episode provided by Genentech, Inc & Biogen; GlaxoSmithKline; and Janssen Oncology.

The post Mental Health and Myeloma: A Story of Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

Bonus Content! Go to the Subscriber Lounge to see what Gregory has been up to since this episode in our new After the Podcast segment.

Join us as we speak to Gregory Proctor, a myeloma patient, and Erica Ali, the Senior Manager of Copay and Patient Financial Assistance Programs at The Leukemia & Lymphoma Society. In this episode, Gregory shares his story of his diagnosis with myeloma in July 2021 and how he has benefited from the LLS Copay Program, which provided financial support for his treatment. Erica discusses all of the financial programs that LLS has to support patients, what the funds cover, and how to apply for these programs. LLS Financial assistance improves patients’ access to care and is accessible to patients of all blood cancer diagnoses when funding is available.

Mentioned on this episode: 

• Multiple Myeloma
• Financial support
• Kut2ThaChase Podcast

Additional LLS Support Resources: 

• Free telephone/web patient programs 
• Patti Robinson Kaufmann First Connection Program
• Information Specialists
• Free booklets 
• LLS Public Policy & Advocacy
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy

The post LLS Financial Assistance: How We Can Help first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Peter Riedell and Dr. Benjamin Derman from University of Chicago Medicine, about the latest research coming out of the annual meeting of the American Society of Hematology (ASH). In this episode, we discuss new treatments on the horizon for lymphoma and myeloma. The doctors share how innovative therapies such as CAR T-cell therapy and new combinations of medicines are showing significant promise, providing further hope to patients.

Mentioned on this episode: 

• Lymphoma
• Myeloma
• Amyloidosis
• MGUS (Monoclonal Gammopathy of Undetermined Significance)
• Smoldering myeloma (Myeloma staging)
• Minimal/Measurable Residual Disease (MRD)
• Bispecific Antibody Therapy
• ASH Annual Meeting Highlights
• Anxiety and Hope: Living with CLL podcast episode
• Dara-KRd
• CAR T-cell Therapy
• Stem Cell Transplant
• Graft-Vs-Host Disease

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Young Adult Resources
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

Support for this episode is provided by University of Chicago Medicine.

The post Emerging Research in Lymphoma and Myeloma first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Lorna McNeill, a Professor and Associate Director for Health Disparities and Community Outreach at MD Anderson Cancer Center in Houston, TX, along with a special guest from our LLS Patient and Community Outreach team, Erika Pomares. In this episode, Dr. McNeill shares how people of color, particularly African Americans, have disproportionate rates of cancer incidence and death, but are also more likely to face racial bias in healthcare and clinical trials. She offers potential solutions to improve the healthcare outcomes for these underserved communities. Dr. McNeill and Erika also discuss the importance of community outreach, and how programs, like LLS’s Myeloma Link, have improved access to care and trust in the medical community.

Mentioned on this episode: 

• Myeloma Link
• Center for Community Engaged Translational Research
• The Black-White Gap in Blood Cancer Outcomes – Medical News Today
• National Institutes of Health Requirement for Women in Research
• Facial Racial Disparities As A Black Disabled Patient – Podcast Episode
• 100 Black Men of America organization
• Understanding Racial and Health Disparities in Healthcare (Dr. Steven Thomas)
• LLS Public Policy & Advocacy
• Clinical Trial Support Center

Additional LLS Support Resources: 

• Free telephone/web patient programs 
• Patti Robinson Kaufmann First Connection Program
• Information Specialists
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy

Support for this episode provided by Genentech, Inc. and Biogen; Pharmacyclics, An AbbVie Company & Janssen Biotech.

The post Addressing Racial Health Disparities Through Community Outreach first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the fourth episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the survivorship stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the third episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the role reversal stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Role Reversal first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the second episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the treatment stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer. In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the first episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the diagnosis stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Bryon Daily, a myeloma survivor and Dr. Scott Solomon from Northside Hospital in Atlanta, GA. Diagnosed in 2018, Bryon shares his experience living with myeloma after an autologous stem cell transplant. Bryon has also started working at LLS in our Myeloma Link Program where he is helping to close the healthcare disparity gap in communities of color. Dr. Solomon then delves deeper into myeloma treatments, and what is new on the horizon for myeloma treatments. He also discusses how clinical trials and having greater treatment options are providing hope to those diagnosed with myeloma. 

Mentioned on this episode: 

• Myeloma
• Bone Marrow Transplant
• Myeloma Link
• CAR T-cell Therapy
• Vaccines for Blood Cancer Patients
• LLS COVID-19 Antibody Research Study: Your Questions Answered

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Young Adult Resources
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

Support for this episode provided by GlaxoSmithKline and Janssen Oncology Pharmaceutical Companies of Johnson & Johnson.

The post Patient-Doctor Perspectives: Hope for Myeloma Patients first appeared on The Bloodline with Blood Cancer United Podcast.

Join this insightful conversation as Alicia, Edith and Lizette sit down to chat with Dr. Stephen B. Thomas, one of the nation’s leading scholars in the effort to eliminate racial and ethnic health disparities. Dr. Thomas is a Professor of Health Policy & Management and Director of the Maryland Center for Health Equity at the University of Maryland School of Public Health.  On this episode, Dr. Thomas explains structural determinants of health and defines ‘health disparity’ and ‘health equity’ as it relates to ethnicity and race in America. Dr. Thomas emphasizes that only together can we create lasting change and better outcomes for all people. He explains how his students and colleagues continue to think outside the box when creating ways to bring education and awareness to those within marginalized groups. Dr. Thomas shares the results of various research studies, current trends and future plans and projects that help to address racial and ethnic disparities within healthcare.

Mentioned on this episode:

• Race,

Additional LLS support resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program

The post Understanding Racial and Ethnic Disparities Within Healthcare first appeared on The Bloodline with Blood Cancer United Podcast.