Myeloma Voices

A Day in the Life of Mindy Fast & Mike Kastner | Navigating the Multiple Myeloma Journey by International Myeloma Foundation

A day in the life of Donna Kidder by International Myeloma Foundation

A Day in the Life of the Weintraub Family by International Myeloma Foundation

In this episode of "A Day in the Life," Jason Hendler and Chad Billmyer, a married patient and care partner duo, share their journey of Jason's multiple myeloma diagnosis. Jason encourages patients to find a myeloma specialist they trust, become informed, advocate for oneself, and remain vigilant about their health due to increased vulnerability.

In this episode of "A Day in the Life," Jason Hendler and Chad Billmyer, a married patient and care partner duo, share their journey of Jason's multiple myeloma diagnosis. Jason encourages patients to find a myeloma specialist they trust, become informed, advocate for oneself, and remain vigilant about their health due to increased vulnerability.

In this episode of "A Day in the Life", Adrienne and Chad Moore, a patient and care partner duo, share their journey of Adrienne's multiple myeloma diagnosis and treatment at 42 amid the COVID-19 pandemic. Adrienne emphasizes the importance of self-advocacy and seeking support from the myeloma community while Chad highlights the significance of being proactive and informed in the caregiving journey.

In this episode of A Day in the Life podcast, Rebecca Zeiter, an oncology social worker, discusses the role of social workers in supporting cancer patients and their caregivers/care partners. She highlights the importance of eliminating barriers to care, providing emotional support, and helping patients navigate their treatment journey.

Facts

Oncology social workers are part of the healthcare team and play a crucial role in supporting cancer patients and their care partners.

They help eliminate barriers to care, such as transportation issues and emotional barriers, and provide general support and a safe space for patients to express their feelings.

Oncology social workers assist patients in finding transportation options to get to appointments, including public transportation, taxis, or arranging for family support.

They also explore funding options for patients, such as grants for gas cards or assistance with car maintenance.

Social workers coordinate appointment schedules with care partners and facilitate communication between the healthcare team and patients.

Caregivers or care partners may face stressors related to the diagnosis, treatment uncertainties, and coordinating care.

Shared decision making involves including the patient and their family in the decision-making process, considering their values, and respecting their dignity.

Care partners play a significant role in supporting patients, providing transportation, emotional support, and being part of the decision-making process.

Different care dynamic relationships, such as spouse, child, or sibling, can present unique challenges. It is important to have open communication, respect each other's perspectives, and advocate for the patient's wishes.

In this episode of the 'A Day in the Life' podcast, Jill Shook shares her journey as a myeloma care partner, navigating the challenges of her husband Jerry's disease and finding strength in her role. Gain insights into adapting to life's unexpected twists, maintaining a strong support system, and embracing the hand you're dealt. Explore the triumphs, setbacks, and unwavering determination that define their fight against myeloma. Listen now for uplifting stories, expert advice, and a reminder that together, we can overcome any obstacle.

In this episode of the “A Day in the Life” podcast, myeloma patient and support group leader Carl Burgman discusses his myeloma journey with the IMF.

In this episode of the A Day in the Life Podcast, 7-year multiple myeloma survivor and support group leader Valarie Traynham discusses her myeloma journey with the IMF.