NDF Talks

By Neuromuscular Disease Foundation

Welcome to the Neuromuscular Disease Foundation's podcast "NDF TALKS…”

Each episode features a GNE Myopathy community member’s personal experience with GNE Myopathy.

Participants will include patient... more

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FAQs about NDF Talks:

How many episodes does NDF Talks have?

The podcast currently has 12 episodes available.

NDF Talks episodes:

April 16, 2021 NDF Talks with: GNE Myopathy Patient, Amy
“It is hard on my family, but we go on this journey together and I think it helps us. We are stronger together as a family..”
-Amy, on her and her 3 siblings all having GNEM
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.
To learn more about GNE Myopathy visit: https://www.CureGNEM.org
...more
16min
April 16, 2021 NDF Talks with GNE Myopathy Patient, Tara
"I'm so flabbergasted by GNEM in a good way in a really really good way because it has allowed me to become more of my true self" - Tara
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.
To learn more about GNE Myopathy visit: https://www.CureGNEM.org
...more
13min

FAQs about NDF Talks:

How many episodes does NDF Talks have?

The podcast currently has 12 episodes available.