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In this episode, we sit down with Spoony’s founder, Nicholas Carlton, to hear the story behind Spoony. From his own experience with chronic illness to building one of the world’s largest communities for neurodivergent, chronically ill, and disabled people—Nicholas shares what inspired him to start Spoony, the highs and lows along the way, and his hopes for the future of the platform. A little BTS of Spoony, if you will! ✨
Transcripts available here. 💜
We’re also on YouTube!
Find our recommendations here:
'Late Bloomer' By Clem Bastow 📚
‘Autistic In a Non-Autistic World’ - Podcast Episode 🎙️
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Want to keep up to date with what's happening in the Spooniverse? Subscribe to our newsletter here to receive exclusive app updates, helpful tips and tricks, event invites, and recommendations for our fellow spoonies. 💌
When Jane was diagnosed with cancer, she quickly discovered how limited clothing options were for people undergoing treatment and living with a chronic illness. Each day brought countless decisions—and choosing what to wear shouldn’t have to be one of them. She needed clothes that were comfortable, treatment-friendly, and still made her feel like herself.
So, she set out to change that, and Brighter Day was born: adaptive clothing that offers choice, autonomy, and a way to reclaim dignity—one bright outfit at a time.
Transcripts available here. 💜
We’re also on YouTube!
Find our recommendations here:
‘I’ll let myself in’ by Hannah Diviney 📚
ADHD section of the ‘Calm’ App 📱
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Want to keep up to date with what's happening in the Spooniverse? Subscribe to our newsletter here to receive exclusive app updates, helpful tips and tricks, event invites, and recommendations for our fellow spoonies. 💌
Want more of Jane & Brighter Day? We’ve got more!
Brighter Day’s website
Follow Brighter Day on Instagram
When Claire Jensz was diagnosed with Multiple Sclerosis (MS) at just 28, it was a life-changing moment she never saw coming—let alone something she'd one day turn into a hit Netflix film.
This week, we sat down with Claire to talk about her MS journey, from the early days of diagnosis to navigating friendships, rediscovering love, and channelling it all into her powerful film Take My Hand.
Claire opened up about the reality of living with a chronic illness, the importance of surrounding yourself with the right people, and what it was like to reflect on her experience through the lens of filmmaking—and so much more.
Transcripts available here.
We’re also on YouTube!
Find our recommendations here:
‘I Hope This Finds You Well’ by Natalie Sue 📚
Sitting Pretty by Rebekah Tausigg 📚
Find us at:
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LinkedIn
Want to keep up to date with what's happening in the Spooniverse? Subscribe to our newsletter here to receive exclusive app updates, helpful tips and tricks, event invites, and recommendations for our fellow spoonies. 💌
Want more of Claire? We’ve got more!
Follow Claire Jensz on IG.
Check out Claire’s film ‘Take My Hand’
‘A Thousand Little MS Things’ Podcast & Community
This week on the pod, we had the absolute pleasure of chatting with the lovely Carly Findlay. Carly is an appearance activist, writer, speaker, disability advocate, Spoony ambassador and all ‘round wonderful human (with the most wonderful and colourful wardrobe!). Carly shared her experiences of growing up disabled in a small country town, the importance of finding community, navigating a recent cancer diagnosis, and all things authenticity and advocacy.
Transcripts available here. 💜
We’re also on YouTube!
Find our recommendations here:
‘Thunderhead’ by Sophie Beer
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Want to keep up to date with what's happening in the Spooniverse? Subscribe to our newsletter here to receive exclusive app updates, helpful tips and tricks, event invites, and recommendations for our fellow spoonies. 💌
Follow Carly on IG here.
You can also connect with Carly via her website.
Ever wondered how Spoony transformed from just an idea into the brand it is today? Meet Anja & Emma from Shadowboxer—the powerhouse duo who helped shape our early thoughts and concepts into the vibrant identity you see now.
From day one, they’ve been behind the scenes, co-building Spoony alongside our community—listening, documenting feedback, ensuring accessibility needs are considered, and leaning into what people truly love.
If you’ve been part of this journey, this episode is for you. And if you’re new here, it’s the perfect introduction to the ‘why’ behind our brand and platform, plus all the small but meaningful details that make Spoony so special.
Transcripts available here. 💜
We’re also on YouTube!
Find our recommendations here:
'Social Queue' by Kay Kerr
'The Year I Met My Brain' by Matilda Boseley
Find us at:
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LinkedIn
Want to keep up to date with what's happening in the Spooniverse? Subscribe to our newsletter here to receive exclusive app updates, helpful tips and tricks, event invites, and recommendations for our fellow spoonies. 💌
This week on the pod, we’re joined by Hayley and Kate—the dynamic duo from Melba Support—who are leading the charge in person-led disability support services across regional Victoria.
We dive into Melba’s human-rights framework, the importance of disability-led services, and the crucial role of intimacy and connection. Hayley and Kate also share how Melba stays at the forefront of innovation and what still needs to change in the disability support space.
It’s a conversation you won’t want to miss!
Find out more about Melba Support here.
Transcripts available here. 💜
We're also on YouTube!
Find our recommendations here:
'Year of the Tiger: An Activist's Life' by Alice Wong
'How to Endo' by Bridget Hustwaite
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Want to keep up to date with what's happening in the Spooniverse? Subscribe to our newsletter here to receive exclusive app updates, helpful tips and tricks, event invites, and recommendations for our fellow spoonies. 💌
Growing up as a neurodivergent child comes with challenges. So does raising one and advocating for their needs. But what if it didn’t have to be so overwhelming?
Meet Laetitia Andrac, founder of Understanding Zoe - an app designed to help parents navigate the flood of information, emotional overwhelm, and daily challenges of raising a neurodivergent child.
We chat with Laetitia about her lived experience as a neurodivergent parent, how she worked alongside other parents to co-design Understanding Zoe, and the profound impact an app like this can have on neurodivergent children, families, and their support networks.
Find out more about Understanding Zoe here.
Transcripts available here.💜
Watch us on YouTube here
Find our recommendations here:
'Psychology of your 20's podcast'
'Breath' by Carly Jay-Metcalfe
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Want to keep up to date with what's happening in the Spooniverse? Subscribe to our newsletter here to receive exclusive app updates, helpful tips and tricks, and be on the invite list to our community events. 💌
Tired of adaptive clothing that feels medical, boring, or outdated? So were Emma and Molly - founders of JAM The Label, an adaptive fashion brand redefining accessibility with on-trend designs for the disabled, neurodivergent, and chronically ill community.
We chat with them about how they saw the need for JAM, who benefits from adaptive fashion, and how their clothing is making a real difference in people’s daily lives. It’s a goodie, so tune in!
Transcripts available here.💜
Find our recommendations here:
The Remarkable Life of Ibelin
You Can’t Ask That (free on ABC iview) or also available on Netflix
Find us at:
Website
TikTok
YouTube
Want to keep up to date with what's happening in the Spooniverse? Subscribe to our newsletter here to receive exclusive app updates, helpful tips and tricks, event invites, and recommendations for our fellow spoonies. 💌
Find out more about JAM the Label here!
You may have seen our faces around the Spoony community - but we thought we should sit down and share our story! In this episode, Larissa and Maddy from the Spoony community team chat all things lived-experience, employment, and life as a Spoony.
Transcript available here. 💜
Find our recommendations here:
'Take my Hand'-https://www.msaustralia.org.au/takemyhandthemovie/
Body Friend -https://www.goodreads.com/book/show/200206811-body-friend
Find us at:
Website -https://www.spoony.app/
TikTok -https://spoony.link/tiktok
Instagram -https://spoony.link/instagram
YouTube -https://spoony.link/youtube
Facebook -https://spoony.link/facebook
LinkedIn -https://spoony.link/linkedin
Welcome to our brand new podcast - launching on February 12th, 2025.
Stay tuned!
Find us at:
Website - https://www.spoony.app/
TikTok - https://spoony.link/tiktok
Instagram - https://spoony.link/instagram
YouTube - https://spoony.link/youtube
Facebook - https://spoony.link/facebook
LinkedIn - https://spoony.link/linkedin
From the publisher's feed