"Noah is the absolute joy of our lives, the fact he's still here is down to the amazing staff in Temple St."

The world changed for Cork Mother Tracy Kilgannon when her son Noah was diagnosed with one of the rarest conditions in the world.

Noah was the 24th person in the world to be diagnosed with TRMU, a rare disease with 16 survivors to date, with Noah soon becoming the 17th. Noah is the 24th known case of the disease in the world. It was the toughest start to life and Tracy spent many, many night by his bedside willing him to pull through.

LOOK AT THAT LIDDLE FACE!!!!!

He was given 6 months initially... but now he is 2 and a half! And every day he continues to surprise the doctors, nurses and especially his family with his bravery and brilliance!

As Tracy herself says:

We say every day that we feel like “the luckiest, unlucky people on the planet. That’s why Temple Street means so much to us. It gave us back our baby, it gave our girls back their brother. It put the joy back in all our lives. Noah is the absolute joy of our lives, he is the sweetest most loving little baby, full of mischief and smiles and never far from bursting out laughing.

She tells Alison Curtis her story:

[audio mp3="https://media.radiocms.net/uploads/2021/05/15120055/WB-NOAH-MUM-TRACY-TEMPLE-STREET.mp3"][/audio]

To get involved with the Great Irish Bake for Crumlin & Temple Street and DONATE: templestreet.ie/great-irish-bake-2021/