Parenting - The Bloodline with Blood Cancer United Podcast

Parenting - The Bloodline with Blood Cancer United Podcast

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Parenting - The Bloodline with Blood Cancer United Podcast episodes

  • A Parent’s Guide to Childhood Cancer: Support, Advocacy, and Hope
    Laura DeKraker Lang-Ree

    When a child is diagnosed with cancer, parents are suddenly expected to manage medications, appointments, treatment decisions, family life, and overwhelming emotions, often all at once.

    In this episode, we speak with Laura DeKraker Lang-Ree, pediatric cancer parent, advocate, and author of The Cancer Parent’s Handbook, about the practical guidance she wishes every family received from day one. Laura shares powerful insights from her family’s journey after her three-year-old daughter was diagnosed with acute lymphoblastic leukemia (ALL). She offers actionable guidance on child advocacy, trusting parental instincts, engaging siblings, and maintaining normalcy during treatment. Additionally, Laura explores strategies for helping children thrive post-treatment, providing crucial hope and support for families facing some of their hardest days.

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    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • Dare to Dream
    • PedAL trial
    • Navigating Blood Cancer for Children and Teens
    • The Cancer Parent’s Handbook: What Your Oncologist Doesn’t Have Time To Tell You
    • Pediatric acute lymphoblastic leukemia (ALL)
    • Pediatric acute myeloid leukemia (AML)
    • Caregiver support
    • Caregiver Workbook
    • Additional Blood Cancer United Support Resources: 

      • Information Specialists 
      • Free Nutrition Consultations
      • Nutrition Handbook for Parents Free telephone/web patient programs 
      • Clinical Trial Support Center
      • SHARE web series
      • Online videos
      • Free booklets 
      • Young Adult Resources
      • Young Adult Online Chat
      • Support groups 
      • Patient Community
      • Medical Debt Case Management Program
      • Financial support
      • Survivorship Workbook
      • Advocacy and Public Policy
      • Mental Health Resources
      • The post A Parent’s Guide to Childhood Cancer: Support, Advocacy, and Hope first appeared on The Bloodline with Blood Cancer United Podcast.

        44 min
      • Family Ties: Navigating Multiple Myeloma Together
        Ashlie D’Andrea
        Emma D’Andrea
        Lynn Steele, LSW, OSW-C

        In this episode, we speak to a myeloma patient and her teenage daughter about the impact that myeloma had on her family. Lynn Steele, a social worker and Information Specialist at LLS, then joins us to share tips and resources on how families can navigate a cancer diagnosis together. 

        DOWNLOAD TRANSCRIPT
        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Multiple myeloma
        • Talking to children and families about cancer
        • Parenting with cancer
        • Caregiver support 
        • Caregiver Workbook
        • Online chats 
        • LLS Community 
        • Patti Robinson Kaufmann First Connection Program®
        • Pickles Group
        • Additional LLS Support Resources: 

          • Information Specialists 
          • Free Nutrition Consultations
          • Financial support
          • Clinical Trial Support Center
          • Free telephone/web patient programs 
          • Free booklets 
          • Young Adult Resources
          • Advocacy and Public Policy
          • Survivorship Workbook
          • Support groups 
          • Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.

            The post Family Ties: Navigating Multiple Myeloma Together first appeared on The Bloodline with Blood Cancer United Podcast.

            35 min
          • Mental Health and Myeloma: A Story of Resilience
            Damion Davis

            Join us as we speak to Damion Davis, a myeloma patient and licensed professional counselor. In this episode, Damion talks about his myeloma diagnosis and how he reached remission after a stem cell transplant. Dealing with the difficulty of a cancer diagnosis as a husband and father of young daughters, Damion knew the benefits that therapy would provide for him and his family. In honor of Mental Health Awareness Month in May, we share his story of resilience, highlighting the importance of mental health care for cancer patients and their families. 

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Multiple Myeloma
            • Stem Cell Transplant
            • Autologous Stem Cell Transplant
            • Parenting Resources
            • Mental Health Resources
            • Additional Mental Health and Crisis Resources
            • Survivorship Workbook

            Additional LLS Support Resources: 

            • Information Specialists
            • Financial support
            • Free telephone/web patient programs 
            • Patti Robinson Kaufmann First Connection Program
            • Free booklets 
            • LLS Public Policy & Advocacy
            • Clinical Trial Support Center
            • Online chats 
            • Caregiver support 
            • LLS Community 
            • Support groups 
            • Free Nutrition Consultations 
            • LLS Advocacy

            Support for this episode provided by Genentech, Inc & Biogen; GlaxoSmithKline; and Janssen Oncology.

            The post Mental Health and Myeloma: A Story of Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

            42 min
          • Cancer & Caregiving: Navigating My Child’s Cancer – Survivorship

            Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

            In the fourth episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Dave Garcia about the experience of caregiving for his young son, Andy, through the post-treatment stage of acute myeloid leukemia (AML).

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Acute Myeloid Leukemia
            • Caregiver support 

            Additional LLS Support Resources: 

            • Information Specialists 
            • Clinical Trial Support Center
            • Free telephone/web patient programs 
            • Free booklets 
            • Financial support 
            • Online chats 
            • LLS Community 
            • Support groups 
            • Patti Robinson Kaufmann First Connection Program 
            • Free Nutrition Consultations 

            Support for this episode provided by the Carolan Research Institute.

            The post Cancer & Caregiving: Navigating My Child’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

            23 min
          • Cancer & Caregiving: Navigating My Child’s Cancer – Schooling

            Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

            In the third episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the schooling stage of acute lymphoblastic leukemia (ALL).

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Acute Lymphoblastic Leukemia (ALL)
            • Caregiver support 
            • Hopecam

            Additional LLS Support Resources: 

            • Information Specialists 
            • Clinical Trial Support Center
            • Free telephone/web patient programs 
            • Free booklets 
            • Financial support 
            • Online chats 
            • LLS Community 
            • Support groups 
            • Patti Robinson Kaufmann First Connection Program 
            • Free Nutrition Consultations

            Support for this episode provided by the Carolan Research Institute.

            The post Cancer & Caregiving: Navigating My Child’s Cancer – Schooling first appeared on The Bloodline with Blood Cancer United Podcast.

            25 min
          • Cancer & Caregiving: Navigating My Child’s Cancer – Treatment

            Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

            In the second episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the treatment stage of acute lymphoblastic leukemia (ALL).

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Acute Lymphoblastic Leukemia (ALL)
            • Caregiver support 

            Additional LLS Support Resources: 

            • Information Specialists 
            • Clinical Trial Support Center
            • Free telephone/web patient programs 
            • Free booklets 
            • Financial support 
            • Online chats 
            • LLS Community 
            • Support groups 
            • Patti Robinson Kaufmann First Connection Program 
            • Free Nutrition Consultations

            Support for this episode provided by the Carolan Research Institute.

            The post Cancer & Caregiving: Navigating My Child’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

            25 min
          • Cancer & Caregiving: Navigating My Child’s Cancer – Diagnosis

            Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

            In the first episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Dave Garcia about the experience of caregiving for his young son, Andy, through the diagnosis stage of acute myeloid leukemia (AML).

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Acute Myeloid Leukemia
            • Caregiver support 

            Additional LLS Support Resources: 

            • Information Specialists 
            • Clinical Trial Support Center
            • Free telephone/web patient programs 
            • Free booklets 
            • Financial support 
            • Online chats 
            • LLS Community 
            • Support groups 
            • Patti Robinson Kaufmann First Connection Program 
            • Free Nutrition Consultations 

            Support for this episode provided by the Carolan Research Institute.

            The post Cancer & Caregiving: Navigating My Child’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

            24 min
          • Cancer & Caregiving: Navigating My Young Adult’s Cancer – Survivorship

            Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

            In this fourth episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the survivorship stage of Acute Lymphoblastic Leukemia (ALL).

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode:

            • Acute Lymphoblastic Leukemia (ALL)
            • I Will Survive: A Viral Tiktok Star’s Journey Through ALL
            • CAR T-cell Therapy
            • Young Adult Resources
            • Caregiver support 

            Additional LLS Support Resources:

            • Information Specialists 
            • Clinical Trial Support Center
            • Free telephone/web patient programs 
            • Free booklets 
            • Financial support 
            • Online chats 
            • LLS Community 
            • Support groups 
            • Patti Robinson Kaufmann First Connection Program 
            • Free Nutrition Consultations 

            Support for this episode provided by the Carolan Research Institute.

            The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

            25 min
          • Cancer & Caregiving: Navigating My Young Adult’s Cancer – Moving Home

            Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

            In this third episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the moving home stage of Acute Lymphoblastic Leukemia (ALL).

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode:

            • Acute Lymphoblastic Leukemia (ALL)
            • I Will Survive: A Viral Tiktok Star’s Journey Through ALL
            • Caregiver support 
            • COVID resources

            Additional LLS Support Resources:

            • Caregiver Workbook
            • Young Adults
            • Information Specialists 
            • Clinical Trial Support Center
            • Free telephone/web patient programs 
            • Free booklets 
            • Financial support 
            • Online chats 
            • LLS Community 
            • Support groups 
            • Patti Robinson Kaufmann First Connection Program 
            • Free Nutrition Consultations 

            Support for this episode provided by the Carolan Research Institute.

            The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Moving Home first appeared on The Bloodline with Blood Cancer United Podcast.

            25 min
          • Cancer & Caregiving: Navigating My Young Adult’s Cancer – Treatment

            Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

            In this second episode of the series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the treatment stage of Acute Lymphoblastic Leukemia (ALL).

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode:

            • Acute Lymphoblastic Leukemia (ALL)
            • I Will Survive: A Viral Tiktok Star’s Journey Through ALL
            • Caregiver support 
            • Medical Power of Attorney
            • Ulman Foundation

            Additional LLS Support Resources:

            • Information Specialists 
            • Clinical Trial Support Center
            • Free telephone/web patient programs 
            • Free booklets 
            • Financial support 
            • Online chats 
            • LLS Community 
            • Support groups 
            • Patti Robinson Kaufmann First Connection Program 
            • Free Nutrition Consultations 

            Support for this episode provided by the Carolan Research Institute.

            The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

            25 min

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          A podcast for patients and caregivers