Parenting - The Bloodline with Blood Cancer United Podcast

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this second episode of the series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the treatment stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 
• Medical Power of Attorney
• Ulman Foundation

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In the first episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the diagnosis stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Meredith Hemphill Ruden, who had an informative session at CancerCon on Parenting with Cancer. Meredith is a licensed clinical social worker, 13-year Melanoma cancer survivor and Executive Director of the Feather Foundation. In this episode, Meredith dives into the challenging topic of being a parent while dealing with a cancer diagnosis and treatment. After becoming a social worker following treatment, she started to notice that there weren’t as many resources to help parents who had cancer. To combat this shortfall, she started The Feather Foundation, a nonprofit organization dedicated to supporting parents throughout their cancer journey. This episode highlights the importance of making self-care a priority and how to find hope as a family while dealing with cancer.

Mentioned on this episode:

• The Feather Foundation
• Caregiver Support
• Support Groups
• Managing Your Cancer

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• LLS Community
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

The post Strap on your Oxygen Mask First: Being a Parent with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Alicia speaks with Jason Khalipa. Jason is a devoted father, world champion, and global businessman.  Jason is a force of nature in the fitness world whose life was turned upside down when his daughter, Ava, was diagnosed with leukemia in 2016 at the age of 4.  Jason and his wife, Ashley, dedicated themselves to the fight armed with a positive mindset and an emphasis on physical and mental strength. Join Jason and Alicia as he shares more about how Ava was diagnosed, what their cancer journey taught him not only as a person, but as a father, and how his passion for fitness helped him remain strong and disciplined throughout this new journey. 

Mentioned on this episode:

• Acute Lymphoblastic Leukemia
• Leukemia
• The Emperor of All Maladies
• LLS Community
• Ava’s Kitchen
• JasonKhalipa.com
• Jason Khalipa Instagram
• Patti Robinson Kaufmann First Connection Program

Additional LLS support resources:

• Information Specialists
• Free telephone/web patient programs
• LLS Community
• Free booklets
• Financial support
• Online chats
• Caregiver support
• Support groups

Support for this episode provided by Amgen and Takeda Oncology.

The post Training for the Unknown: Jason’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

As a junior in college and an intramural volleyball player who attributed the increasing pain in her right arm to the sport, Dawn Scott was forced to take notice when she woke up one day and realized that her arm was so swollen that she could not bend it. Although blood clots run in her family, there was a small voice that told her that it was something else. During her three-week admission time, she received her diagnosis of epithelioid hemangioendothelioma (EHE). Join in as Shona sits down with Dawn to discuss Dawn’s story and why Dawn believes fertility should be discussed between every patient and physician, even if the odds are slim. Although having a child naturally seemed unlikely, Dawn explored her other options and chose to pursue adoption. She shares her experience, advice she received from those around her, questions to ask, the differences she experienced between local and national adoption agencies, and how this experience has shaped her outlook on life. Hear Dawn’s story about how her and her husband, Brent, created the family they envisioned.

Mentioned on this episode:

• CancerCon
• Epithelioid hemangioendothelioma
• Adoption
• The Oncofertility Consortium
• Young adult information
• Fertility
• Relationships

Additional LLS support resources:

• Young adult videos
• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups

The post Adopting After Cancer: Dawn’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Twenty-three years old and living in New York City, Glamour magazine Editor Erin Zammett Ruddy finds herself writing her biggest story yet when she is diagnosed with chronic myelogenous leukemia. Upon diagnosis, this writer, author, blogger and survivor, along with her husband Nick, make the brave decision to stop treatment three times in hopes of expanding their family. Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Erin and Dr. Michael Mauro, hematologist at Memorial Sloan Kettering Cancer Center. Dr. Mauro has treated Erin since her diagnosis, going on 16+ years, and is a strong advocate for women and fertility within the cancer realm. You’ll hear about Erin’s journey, fertility preservation, questions patients can ask their healthcare team when considering fertility, and how patients are not only ‘patients’ but people seeking to live the life they’ve always envisioned for themselves.

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Mentioned in this episode:

Additional LLS Support Resources:

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The post Stopped Treatment, Started a Family first appeared on The Bloodline with Blood Cancer United Podcast.