PeDRA Pearls

Dr. Yvonne Chiu discusses the findings of her collaborative study – Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations. Learn about the different morphea categories, and whether or not certain locations of linear morphea are risk factors for extracutaneous involvement. This webinar originally aired in 2021. To view the video version of this presentation, please click here.

Dr. Streicher is an Assistant Professor at Indiana University School of Medicine. She’s currently co-chairing PeDRA’s Birthmarks Focused Study Group*. She became interested in pediatric dermatology while in medical school at Indiana University after completing a peds derm rotation with Dr. Anita Haggstrom. Her training took her to Georgia and Pennsylvania, and she’s come full circle back to Indiana to work alongside Dr. Haggstrom. Learn more about her work with the Birthmarks Focused Study Group and why she’s been reading so much by Julia Donaldson lately.

*This episode originally aired in May of 2021. The Birthmarks Focused Study Group is now chaired by Denise Metry, MD and Maria Buethe, MD, PhD. For more information please visit www.pedraresearch.org.

In this episode, PeDRA Pub Club host, Donglin Zhang and guest panelists, Christina Boull, MD, Diana Reusch, MD, and Cristina Foschi, MD discuss a recent PeDRA publication, Clinical Characteristics of Infantile Hemangiomas with Aggressive, Persistent, and Destructive Ulceration. This collaborative, multi-site, retrospective study was originally published on October 16, 2023, in Pediatric Dermatology and was supported by a 2016 PeDRA Team Research Grant and a 2021 PeDRA Study Support Grant. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology, this podcast is for you. In an approachable roundtable discussion, listeners will gain insight into publications relating to pediatric dermatology and learn what the research means for patients and providers.

Hidradenitis Suppurativa (HS) expert, Haley Naik, MD of the University of California, San Fransisco joins Drs. Cotton and Lara-Corrales for a comprehensive discussion about diagnosis and treating early onset HS in the clinic and highlights the specific research taking place globally to help change outcomes for pediatric patients suffering from this devastating condition.

Welcome to "How We Made it Count," a special podcast that takes you behind the scenes of the Eczema Counts project. This collaborative effort, fueled by an engagement award from the Patient Centered Outcomes Research Institute also known as PCORI, aimed to educate and inspire caregivers, patients, and researchers alike. Through a series of virtual games and in-person sessions, Eczema Counts went beyond conventional approaches and brought a unique blend of gamification and patient-centered outcomes research to the forefront. Listen as key members of the project reflect on its impact, share their thoughts for the future, and dive into the fascinating world of pediatric dermatology research and the innovative partnership between the Pediatric Dermatology Research Alliance and the National Eczema Association.

For more information visit PeDRA, the National Eczema Association, or Eczema Counts.

In case you missed it, PeDRA produced two sponsored webinars with Novan in the Spring of 2023. If you would like to view the video versions of these presentations, please click here. For more resources about molluscum, please click here.

As we gear up to release the first episode of our new Hidradenitis Suppurativa Podcast series, we dipping into the archives for a publication presentation from Dr. Irene Lara-Corrales about this international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in diagnosis, and that HS patients are likely to suffer from other comorbidities. Learn more about the study, recommendations for managing patients with HS, and recommendations for future research. To view the video version of this presentation, please click here. Stay tuned for the upcoming HS series!

Dr. Markus Boos discusses the influence of gender and sexual identity in adolescent skin health. His findings reiterate the importance of recognizing implicit bias and ensuring sexual/gender minority (SGM) children are being treated with the same holistic, respectful care as non-SGM children. Watch to learn more. To view the video presentation of this program, please click here.

Season four of Getting to Know You shakes up our format with a new twist. This season, we are getting to know the amazing research that PeDRA members are doing. In our first episode, nurse practitioner, Emily Croce, PhD, MSN, APRN, CPNP-PC talks us through her 2022 Childhood Eczema Challenge grant, The Role of Outdoor Air Pollution on Disease Burden and Racial Ethnic Disparities. Learn how this project made use of existing data to reveal some key findings, the tools and methodology used in this study, and how this project is going to fuel future research into the intersection of atopic diseases and racial and ethnic disparities. You can view Emily's collaborative publication here.

Lisa Arkin, MD presents the findings of a PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis. This program originally aired in May of 2020. To view the video version of this presentation, please click here.