PeDRA Pearls

The Down syndrome sub-group presents a discussion on the use of immune modulators in children with Down syndrome. Moderated by Dr. Jillian Rork, Drs. Emily Gurnee, Kristen Holland, and Kishore Vellody take a deep dive into skin conditions and treatments for children with Down syndrome and highlight exciting new research on the horizon. This program originally aired in February of 2022.

So you’ve got the funding, now how do you make the research happen? Hear from three funded PeDRA investigators and learn how they assembled their teams, tackled the paperwork, and got their projects off the ground. Don’t miss this great opportunity to learn from their experiences! This program originally aired in April of 2021. View the video version of this presentation here.

Join Jennifer Schoch, MD as she discusses the successes of the research program at the University of Florida Dermatology and the importance of funding. This program originally aired in July of 2020. To view the original webinar, please click here.

Listen as Dr. Jen Schoch moderates a podcast discussion on the pros and cons of sunscreen use in children under the age of 6 months. Joined by two esteemed guests, Dr. Irene Lara-Corrales, and Dr. Jeannette Jakus, this conversation identifies not only the pros and cons, but offers sunscreen alternatives, and discusses future potential research projects. This program originally aired in December of 2021.

Season three concludes with an interview featuring Sonal Shah, MD. Dr. Shah is the Director of Pediatric Dermatology at University Hospitals Rainbow Babies & Children’s Hospital and holds the position of Associate Professor of Dermatology at Case Western Reserve University School of Medicine. Alongside Dr. Leah Lalor, she is a co-founder and co-leader of PeDRA’s newest Focused Study Group (FSG) – Education. Tune in to discover more about Dr. Shah’s research and ways to get involved in the Education FSG.

This is part two of a two-part miniseries about the importance and value of patient partners. Learn how to engage patients as research and data strategy partners with Suz Schrandt.

This program originally aired as a webinar in the spring of 2020. To view the webinar, click here.

This is part one of a two-part miniseries about the importance and value of patient partners. Learn how to engage patients as research and data strategy partners with Suz Schrandt.

This program originally aired as a webinar in the spring of 2020. To view the webinar, click here. Part two is up next!

The group discusses the current research and what the next steps are to better define these lesions, and when and how to treat them. They also answer questions from our live studio audience.

To learn more about current PeDRA studies, please click here.

Dr. Berrebi discusses her parameters for monitoring vs. excision and Dr. Gerami discusses how to uncover the true nature of the lesion through a variety of testing options.

The group discusses the ever-changing terminology and why it matters. Listen as episode one lays the foundation for a great discussion on genomics.