PeDRA Pearls

We are rounding out EB Awareness Week with this Monday’s Podcast Rerelease. Originally airing in April of 2021, this Abeona Sponsored Webinar, Gene Therapy for Large Chronic Wounds in Recessive Dystrophic Epidermolysis Bullosa, was presented by Jean Tang, MD, PhD. Dr. Tang provided an update on the EB-101 pivotal Phase 3 VIITAL study and answered questions from the audience.

To view the original webinar, please click here.

In honor of Epidermolysis Bullosa (EB) awareness week starting today, we are re-releasing an audio version of an Amryt Pharma-sponsored webinar that originally aired in December of 2021. Listen as Dr. John Browning from Baylor College of Medicine and Dr. Lara Wine-Lee from the Medical University of South Carolina discuss a promising new treatment for wound healing in EB patients.

Click here to view the video version of this webinar.

PeDRA member, Colleen Cotton, MD, recently presented at the 2023 Symposium on Hidradenitis Suppurativa Advances (SHSA). In this episode, Dr. Colleen Cotton sits down with PeDRA to give a quick summary of the SHSA meeting and make a special announcement about an upcoming PeDRA educational initiative. SHSA is an annual meeting organized by the Hidradenitis Suppurativa Foundation (HSF) to bring experts from around the world to share their experiences with HS. ICYMI: PeDRA is thrilled to support HS Research through the 2023 Hidradenitis Suppurativa Pilot Grant! The deadline to apply is December 7, 2023 and you can learn more here.

PeDRA had the privilege of attending the Symposium on Hidradenitis Suppurativa Advances (SHSA) in Phoenix, AZ in October 2023. During the meeting, PeDRA’s Associate Director of Educational Programs interviewed three amazing presenters to discuss the incredible work being done in this space. First up is Lynn Petukhova, PhD, discussing her ground-breaking work in Hidradenitis Suppurativa (HS) genetics and how she harnesses the power of genome-wide association studies (GWAS). Following this, you’ll gain insight into more HS research through two poster interviews with MD candidates Nicholas Chiang and Sydney Dong, respectively. For more information on Dr. Petukhova’s work, or to submit a case study, please visit the Columbia University Data Science Institute.

SHSA is an annual meeting organized by the Hidradenitis Suppurativa Foundation (HSF) to bring experts from around the world to share their experiences with HS.

Get to know Cristy Garza-Mayers, MD, PhD. Dr. Garza-Mayers is an Instructor at Harvard Medical School and a pediatric dermatologist at Mass General Brigham with an interest in vitiligo. In addition to her work on PeDRA's Early Investigator Committee, she also serves as a mentor through the PeDRA Mentorship Program and has received funding for her research projects through two grant programs. Learn more about her research, what led her to pediatric dermatology, and listen to the end to hear her answer some fun, rapid fire questions.

This the final episode of the 6-part series on Emerging Therapies for Moderate to Severe Atopic Dermatitis in Children. Join Dr. Dawn Davis from the Mayo Clinic in this final episode on Systemic Therapies for Moderate-to-Severe AD in children, for a conversation with Wendy Smith-Begolka, MBS from the National Eczema Association and Korey Capozza, MPH from Global Parents for Eczema Research. Together they answer questions and discuss the importance and value of research. This program originally aired in January of 2021.

www.nationaleczema.org

www.parentsforeczemaresearch.com

www.pedraresearch.org

Our Monday Re-Release series on Emerging Therapies for Moderate to Severe Atopic Dermatitis in Children concludes with the first of two Townhall podcasts. Listen to hear distinguished faculty in pediatric dermatology and allergy/immunology answer questions about new and emerging treatments and important research issues for moderate-to-severe atopic dermatitis in children. Special guests Dr. Emma Guttman-Yassky and Dr. Eric Simpson. This program originally aired in January of 2021.

Join Dr. Dawn Davis from the Mayo Clinic for a conversation with two patient advocates as they discuss the patient experience with new and traditional AD therapies and share thoughts on how patients and providers can best work together. This program originally aired in December of 2020.

Monday Re-release continues with the first of two podcasts from the Emerging Therapies for Moderate to Severe Atopic Dermatitis in Children series. Listen as distinguished faculty in pediatric dermatology and allergy/immunology talk about new and emerging treatments and important research issues for moderate-to-severe atopic dermatitis in children. This program originally aired in November of 2020.

Industry 101 is back with Episode 3 – Working with Large and Small Pharma. In this episode, Dr. Harper Price discusses the differences between companies with special guests Dr. Michael Howell and Dr. Jim Lee. Listen to discover insightful strategies for networking with both large and small companies and learn how the differences between companies are not so vast after all. Click here to listen to previous episodes.