PeDRA Pearls

Monday Re-release continues with the second webinar in the Emerging Therapies for Moderate to Severe Atopic Dermatitis in Children series – Pediatric Atopic Dermatitis: Algorithms for the Future. Featured guests offer presentations and discussions on emerging topical therapies, new and traditional systemics, considerations when choosing the right treatment for the right patient, and hot research topics for moderate-to-severe atopic dermatitis in children. To view the original recording of this program, please click here.

It’s Eczema Awareness Month, so this Monday Re-release is PeDRA’s first multi-episode educational series - Emerging Therapies for Moderate to Severe Atopic Dermatitis in Children. Listen to two programs originally aired as webinars in the fall of 2020. This episode features presentations about biologics, JAK inhibitors, and allergy perspectives for the treatment of pediatric atopic dermatitis. To view the original recording of this program, please click here.

Continuing the Building a Research Survey series with part two – Designing an Online Survey. To view the original webinars, please click here.

Today’s Monday Re-Release is PeDRA’s three-part series on survey writing. Originally airing in the spring of 2021 as a webinar series, this three-part program provides a high-level overview of the design, execution, and analysis of an online research survey. Covering everything from building a survey team to sampling techniques to data collection and preparation for publication, this series will position investigators for success and protect the time and attention of busy survey respondents. To view the original webinars, please click here.

The final installment of the Building a Research Survey series is Preparing a Survey and Gathering Data. To view the original webinars, please click here.

This special episode is part of the Eczema Counts game, a collaborative education initiative between the National Eczema Association (NEA) and PeDRA. In this episode, you’ll hear from two leaders of the Eczema Counts project: Dr. Joy Wan, assistant professor of dermatology at Johns Hopkins University, and Silena Gaines, a caregiver for a child with eczema. Learn about how Dr. Wan and Silena have worked together to improve the quality of care and long-term outcomes for eczema patients, and how the Eczema Counts game has brought researchers, patients, and caregivers together to further their knowledge in patient-centered research. Click here to register for the PeDRA Conference.

Get to know the 11th PeDRA Annual Conference with special guests, Conference co-chairs Lisa Arkin, MD, and Esteban Fernandez Faith, MD. Learn more about the philosophy behind the PeDRA meetings, how to make the most of the meeting, and how patients are at the heart of our community collaboration. The PeDRA Conference is taking place in Atlanta, GA, November 9-11, 2023. Register Today!

Dr. Britt Craiglow interviews a patient family living with alopecia areata. Gracie, a 13-year-old, 8th grader shares her own alopecia areata experience with her rapid hair loss right before beginning middle school, and the importance of being involved in a clinical trial. Her inspiring story offers comfort to other children with alopecia areata and reminds us all why research is so important. Please note, this episode originally aired in September 2021.

This is the second podcast in the Monday Alopecia Areata re-release.  Dr. Leslie Castelo-Soccio and Dr. Britt Craiglow answer questions submitted by the PeDRA community. They discuss their approaches to steroids, how to talk oral systemics with patients and caregivers, and identify several research priorities for the future. If you’d like to get involved or learn more about the research ideas discussed in this episode, please send an email to [email protected] to be connected with PeDRA’s Hair Disorders Focused Study Group. Please note, this episode originally aired in August of 2021.

We’re continuing our focus on alopecia areata awareness month with the final three podcasts from the Pfizer-funded series - Emerging Mechanisms of Action in the Treatment of Moderate-to-Severe Alopecia Areata in Children. In this episode, Dr. Carolyn Goh shares her views on patient care, how to find the right treatment for each patient, and her own experience growing up with alopecia. Providing personal insights on everything from the stigma of the disease to potential future treatments, Dr. Goh offers a refreshing perspective on difficult conversations with patients and the options available to them for treating, or not treating their hair disorders. Dr. Goh is a dermatologist, and Associate Clinical Professor of Dermatology at the David Geffen School of Medicine at UCLA. Looking for patient resources? Visit the National Alopecia Areata Foundation website.

Please note this program originally aired in June of 2021.