Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column by friend and fellow writer, Christie Patient on how she views her Mom’s successful double lung transplant. While literature and physicians state there is no cure for pulmonary fibrosis, and that a lung transplant is only a type of treatment for the disease; Christie believes different. She sees the drastic change in her Mom from lung transplantation, and believe it helped cure her Mom from IPF.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a news article summarizing an Australian study which examined both occupational and environmental hazards as they relate to IPF development. The study concludes that ~20% of IPF cases could be prevented through tighter control of workplace smoking, dust suppression and elimination of asbestos, in addition to regular personal protective equipment (PPE) use.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she recently wrote about the controversy surrounding the use of masks to slow the COVID-19 pandemic. She also shares a list of credible resources to help other patients share with those contributing to or creating this controversy. We must do our part to slow the spread of this virus by protecting ourselves and others through the use of masks.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene

Marshall reads about a new venture called the OSIC Pulmonary Fibrosis Progression Challenge. Kaggle, a data science community platform is inviting scientists, researchers and clinicians to compete in creating an algorithm for predicting lung function decline in patients with IPF. This would ultimately help improve treatment and accelerate the clinical development of novel therapies for IPF.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote recently about the COVID-19 restrictions starting to ease, and how that makes her feel. Despite her best efforts, Charlene fell ill with COVID-19 and is deeply fearful of catching the virus again. She can control her exposure to the best of her ability, but as restrictions ease and medical appointments ramp up again, Charlene worries about coming into contact with someone who is unknowingly exposed to the virus.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article examining the rate of hospitalizations and in-hospital mortality among patients with various interstitial lung diseases (ILD), including IPF. Encouragingly, the all-cause mortality rate(s) for people living with IPF decreased in the 11-year period of the study. For patients living with an ILD, this study reported that seasonal changes in weather are important factors in a patient’s well-being.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column detailing the difficulties she has faced recovering from several acute illnesses as of late. Charlene hopes this column helps others understand that recovering from being sick, especially if it is a prolonged illness, is a lot of work and oftentimes, it’s more than just the physical recovery that is challenging.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article recently published on PF News, which summarizes a study examining mortality risk of IPF patients treated with anti-fibrotic therapies vs those who aren’t. This large registry-based study revealed that patients taking either Ofev or Esbriet had a mortality risk that was 37% lower than patients not treated with such therapies.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a beautiful column by Christie Patient, on how her relationship with her Mom was strengthened as she cared for her pre and post-lung transplant. Christie talks about the reversal of roles when it comes to a child caregiving for a parent, rather than the normalized role of a parent caring for their child. Christie learnt a lot as a caregiver for her Mom’s transplant, and her words capture this experience beautifully in her column.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article recently published by the British Lung Foundation regarding air quality during the COVID-19 lockdown. It’s easy to understand that poor air quality has an impact on our lungs and overall ability to breathe.

This study revealed that 16% of people in the UK who had various lung diseases, including IPF, noticed an improved air quality during the COVID-19 widespread stay-at-home orders.

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