Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote about IPF-related pressures, following a recent conversation she had with her Rheumatologist. Following a medical leave of absence, Charlene was encouraged to create a list of other areas in her life where she feels stress or pressure. Unfortunately, many of these pressures are unique to living with IPF.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a study on patient perceptions of Ofev and Esbriet. More specifically, a Medical Center in the Netherlands evaluated the expectations and experiences of people with IPF who are taking either Ofev or Esbriet. The study revealed there was a similar satisfaction among IPF patients taking either of these medications.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote about mitigating risk as a patient living with a chronic lung disease. Charlene frequently weighs out all her options when trying to make a decision, and she’s currently toying with something that presents some level of risk. However, she’s beginning to think that mitigating risk entirely as a patient living with IPF is just not possible.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article announcing a Phase 3 trial examining the effectiveness and safety of Ofev for children with fibrosing interstitial lung diseases (ILDs). Currently, Ofev has been approved for multi-purpose usage in adults with fibrosing ILDs, but this study will look at its effectiveness in children.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote recently following a string of summer thunderstorms that left many PF patients along the US Eastern Seaboard without power. She discusses some tips to proactively help PF patients proactively prepare for power outages, especially those requiring supplemental 02.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a poster presented at the virtual American Thoracic Society (ATS) conference earlier this month. The poster captures data from a recent trial showing the effectiveness and benefit(s) of using Ofev to preserve lung function and help manage various forms of progressive interstitial lung diseases (ILDs).

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall shares tips on how she’d made extended time in quarantine a little easier amid the COVID-19 pandemic. In particular, she finds gentle exercises at home and maintaining a regular sleep schedule helpful to her physical, mental and emotional health during this difficult time.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a study that examined the cancer incidence and risk factor of those living with IPF. Unfortunately, the study reveals that IPF might be an independent risk for cancer development and recommends healthcare professionals be aware of this when treating patients with IPF.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a recent column from Christie Patient, co-columnist for PF News and caregiver to her Mom, Holly, who had a successful double lung transplant. Christie recounts some of the hardest days as her Mom’s caregiver, and highlights that caregiving remains ever-so important in the recovery phase post-lung transplant.

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Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a case study on a 56-year old lung transplant recipient undergoing pulmonary rehabilitation. The case study reveals that a tailored exercise program can help patients with IPF during the presurgical period, as they await lung transplantation and that pulmonary rehabilitation benefits the patient post-surgically as well.

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