Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.
In 2006 Tom Ferguson, MD asked Plutopia’s Jon Lebkowsky to attend a retreat with a group of physicians and others. This group, referred to as the e-Patient Scholars Working Group, had been working with him on a white paper, published in 2007 as “e-Patients: how they can help us heal healthcare.” Tom died not long after that retreat, and Jon continued to meet with that group. They went on to found the Journal of Participatory Medicine and the Society for Participatory Medicine. The group continued to meet regularly over the years, and to stay in touch via an email list. Plutopia News Network invited several members of the group to introduce themselves and talk about how they became involved with participatory medicine. We also talked about participatory medicine in the era of Covid-19.
Society for Participatory Medicine Founder’s Circle
Cast of Characters
Joe Gradeon, President at Graedon Enterprises, Inc. and Cohost of The People’s PharmacyTerry Graedon, Treasurer at Graedon Enterprises, Inc. and Cohost of The People’s PharmacyGilles Frydman, Chief Strategy Officer at American Sleep Apnea Association, founder of the Association of Cancer Online ResourcesJohn Grohol, Psy.D., Founder of PsychCentral.comAlan Greene, Pediatrician, Author, and Speaker Co-founder at DrGreene.comCheryl Greene, Co-founder & Executive Producer at DrGreene.comCharlie Smith, MD, Dr. Smith Direct Care Danny Sands, MD, MPH, CMO, Backpack Health at Invicro, A Konica Minolta CompanyDave deBronkart, Chief Patient Officer at PocketHealth; Keynote SpeakerNotes
Dave deBronkart : Tom Ferguson’s trianglesDave deBronkart: patient researcher Hannah Wei kicks off FHIR DevDaysJohn Grohol : Also 60 Minutes on Covid Long HaulersPhoto by Jon Lebkowsky: Tom Ferguson with Danny Sands at a the 2006 retreat and meeting of the e-Patients Scholar Working Group.
The post Participatory Medicine and Covid-19 first appeared on Plutopia News Network.