Post-Exertional Mayonnaise

Dan meets rapper and hip hop artist, Mama Chill, A.K.A, Stacy Hart to discuss her recently released track, 'The ME Scandal' as part of ME awareness month.

Dov and Dan get together to review the first year of the podcast, looking back to how it all started and looking ahead to what we hope to achieve going forwards. It's been quite a year. If you have been with us since the beginning. Thanks for sticking with us. If you've just found us, welcome! 

We had technical issues on this episode, so backup video was used for the first five minutes and then quality improves.

Just to make it clear, Dan's ears don't stick out like in the image, for some reason AI decided that Dan needed them!

Unite to Fight conference site:

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www.pempod.com

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Daniel meets with Steve Topple and Nicola Jeffrey from The Chronic Collaboration. Here, they discuss how they met, their own personal values around campaigning in the areas of disability and chronic illness and the need for change with regard to how campaigning is undertaken for people with ME and other intersecting chronic illness conditions.

Ahead of world ME day 2024 Daniel spoke to Australian Actress and Activist Eliza Charley. Eliza tells her own very personal Myalgic Encephalomyelitis story and reflects on her experiences of Graded Exercise and Brain re-training programmes and stresses how ultimately these left her more ill and questioning her sense of self. We also talked about finding language to express ourselves and the importance of recognising human worth in ourselves and others.

Daniel speaks in this episode to Lia Pas, a multi-disciplinary artist and composer from Saskatoon, Canada. In this wide ranging discussion we talk about whether its possible to flourish whilst living with ME.

Daniel meets his childhood paediatrician, Dr Nigel Speight again after almost 30 years. We talk about the history of disbelief that comes with an ME diagnosis, his work with families who are accused of Fabricated or Induced Illness (FII) and his hopes and fears for the future.

Daniel chats to Becky Holmes, a British writer who lives with ME. In her book, 'Keanu Reeves is not in love with you', Becky explores 'the murky world of online romance fraud'. Becky discusses her own experience of becoming ill with ME and how she developed her book idea.

Dov and Dan catch up and talk about a range of issues relating to living with ME/CFS. We talk about how we go about explaining our chronic illness to others, the recent article in the Guardian by George Monbiot and the challenges of getting your hair cut!

Daniel is joined by Anna Redshaw, creator of Blue Sunday: Tea Party for ME. Blue Sunday takes place each year during ME Awareness month. The aim is simple - to raise awareness of ME and money for ME charities, whilst having a cup of tea and a piece of cake! Anna explains how the initiative began and grew into something that has raised over £100,000 for ME organisations over the last 12 years.