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dSavannah joins us from Georgia in the US to share her life with ME and chronic illness. She shares her history, the grief over the things she has lost to ME and practical ways of managing grief on a daily basis, such as channelling anger and utilising gratitude.
Ash lives in Sheffield in the UK. He has been living with POTs and ME for a number of years. In this episode he shares the challenges of spending the majority of his time in bed and the grief that comes with that. We discuss long distance relationships, and the benefits of having a good therapist.
In this episode we talk to Jennie Jacques who played Queen Judith in the History Channel Vikings series. Jennie talks about her experience of becoming ill with ME/CFS in 2018 and her passion for the science around the illness. Jennie asserts that this is not a mystery illness and stresses a desire to make a difference for the ME community. We also hear about her famous missing ear and related zebra print knickers!
Dov returns and we discuss the project so far and our own reflections on grief. We read three written contributions from Lydia, Kirstie and Pamela.
Colleen has been living with ME/CFS since 1989, as she says 'it's been a while'. Colleen oversees two facebook groups:
Patricia Fortlage is an award-winning photographic long-form storyteller and fine art photographer. In this episode we talk about her project 'Lemonade' which uses dramatic, personal and sometimes comical images to express her 'love letter to the chronic illness community'.
If you have the energy, we'd recommend visiting Patricia's website while you listen so that you can view her lemonade project and see the images we're discussing.
Tamara shares her experience of becoming ill with ME/CFS and her attempts to adjust to life "as a jailed Tiger".
Sally Doherty is a children's author living with ME/CFS in England. Sally has two books published in the Toby trilogy with further work to come in the year ahead. Here Sally talks to us about her ME journey, the importance of writing characters with ME into her work and how she manages her writing alongside living with ME.
Rachel Horton is a Health Coach living in Michigan USA. She shares from her own experience of CFS as well as reflecting on her work in the health profession.
We meet Christina Baltais who uses her art to express her experiences of life with ME/CFS.
From the publisher's feed