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In this episode we hear six unique voices of individuals living with Chronic Illness: Laura, Steph, Katie, Jo, Joy and Paul. Each reflects on the topic of grief and how Chronic Illness has impacted them in different way with regard to living grief.
In this episode we talk to Jessica Taylor-Bearman who spent her teenage and young adult years living with very severe ME/CFS. We talk about her life as portrayed through her first two autobiographical books and look forward to the release of her third book, A Girl Beyond Closed Doors.
In this episode Dov and Dan catch up and 'chew the cud' over a range of issues relating to life with ME. We review recent interview episodes, chat about how we can involve people with severe ME in the podcast, navigating hospital visits, talk about decision-making and how this impacts quality of life, and go where the conversation takes us!
In this episode Sarah Boothby reads from the unpublished novel of her daughter, Maeve Owen who died from ME in 2021. The novel is titled (as yet unpublished): The Alchemists; or Economic Consequences of the Peace. Character list and excerpts are available for viewing from www.pempod.com. If you haven't read part 1, we'd suggest you start there!
In this episode we talk to Sarah Boothby, who's daughter Maeve Owen died from ME in 2021. Sarah and Dan talk about Maeve and her writing. In part 2, Sarah reads from Maeve's novel: The Alchemists; or Economic Consequences of the Peace.
In this episode we talk to Alison Larkman, an artist living with ME in Bristol, UK. Alison is planning a significant roaming art installation project next summer called I Would Be Here If I Could. You can learn more and take part at:
In this episode, we talk to Sally Callow who is organising a significant music event in the summer of 2024 to raise awareness of ME and to fund ME research.
In this episode Dov and Dan talk about trying to find a sense of self whilst living with ME and chronic illness. Apologies for the background noise. Will try and sort for next time!
In this long form discussion, Dan meets Vlad Vexler, philosopher in politics and musical aesthetics to discuss his ME journey and his successful YouTube career. We talk about challenging persisting psychologisation narratives around ME, as well as Beethoven, and transhumanism.
From the publisher's feed