Howdy! We chatted with Mandy Fordyce a while back and talked about her first time [ever] running a fundraiser. And let us tell ya something, she has some great tips on being successful! In fact, she did nearly 5 times her initial goal! What a first run!!!

But before that, we talk about how sometimes well-meaning people say things that trigger us. We've all been there; it's frustrating. But we get it, and we are here to commiserate with you.

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation, where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we'll see you next time!

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Hey everyone! We're picking up where we left off with Colleen English. Her interview ran longer than any other we've had (and we loved it!) so we split it into 2 parts. Just a reminder, this episode discusses topics that may be difficult for some people to listen to (i.e. death of a child, special needs passing away process, organ donation).

Before we jump into the interview, we chat about providing opportunities for those with disabilities that we sometimes overlook. Simply because an individual has a disability doesn't mean that can't or don't want to attend a higher education program. Maybe they're interested in a trade skill. Who knows?! If we don't tell them and share with them what's out there, then we as caregivers become the ones that handicap our special needs children.

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Welcome back, folks! This week is a very exciting episode where we were able to sit down with Colleen English. Colleen has an interesting perspective on Rett Syndrome. Her experience and knowledge are invaluable and we are grateful that she took the time to sit down and chat with us for this episode.

But before the interview, we discuss equipment! Little did we know when we got Zoey's diagnosis that we would be acquiring a lot of new supplies! We've never sat down to write everything out before so this was an interesting experience for the two of us. Be sure to share with us what some of the items you and your family use to deal with Rett Syndrome!

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

It's Rett Syndrome Awareness Month! (YAAAY!) And I, Sam, am taking some time to chat with some dads in our community. I'm calling it ... Dad Chat. (Very clever) This episode I speak with my good friend, Lonnie Morrison!

Rapidfire

If you're interested in participating in Dad Chat, reach out to [email protected].

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

Happy Rett Syndrome Awareness month! Each year we take the month of October to help bring awareness to Rett Syndrome. We share some of our ideas of how to bring awareness to the cause in some different ways that you may not have thought of before.

We also sat down with Mara Contes to talk about speech therapy, special needs parenting, and more. Mara's step-daughter has Rett Syndrome, and Mara's younger sister also has special needs. So, she has a unique perspective on being in the special needs community being a sister and a parent.

You can connect with Mara on her Instagram, @sincerelyspecialneeds. There she shares great ideas, tips, etc. Be sure to check her out!

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

It's been a great couple of weeks, folks. And during that time we had the awesome opportunity to meet some new friends! Korrie Sanders and her mom Brooke live in California. Brooke took the time to sit down and share with us about their family, home life, and most importantly, Korrie. 

Brooke posts quite a bit about dealing with Rett Syndrome on Instagram so head over to @luckylinewife to connect with her and see what we mean when we say that Korrie has an infectious smile. 

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

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It has been too long! We are excited to be back and meeting new friends. On this episode of the pRETTy happy. podcast, Sarah and Sam invite dads to come be featured on a special October Rett Syndrome Awareness Month episode(s), and they meet Sarah and Lonnie Morrison who have an AMAZING announcement to bring happiness to all newly diagnosed families.

Have a different platform you would like to listen to the show on? Click here to see if it has been added to your platform of choice.

If you're a dad / father figure in the Rett Syndrome community, Sam would like to meet you! Just fill out this online form and he will reach out to you about setting up a time to sit down and meet one another.

Amazon Shopping List for Adapting Toys:

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community.

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

We are going to take the next few weeks off as we will be out and about! We'll be back before you know it.

Subscribe today so that you never miss an episode. And we’ll see you next time!

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This week we sit down with ... ourselves! We had quite an interesting experience when it came to Zoey's most recent IEP meeting. (We hope this can at least bring a bit of comfort to other parents of children with IEPs.) Also, with just 4 riding sessions, Zoey has already started seeing improvements in her stability! It's super exciting for our family.

To find out more about hippotherapy, visit the American Hippotherapy Association's website. (Find a Therapist)

You can listen to Sam's sister's podcast, Churro for your Thoughts, by clicking here.

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

Sarah and Sam sit down with Elizabeth who is the mother of Grace. We talk everything from moving countries, swear words on eye gaze devices, and the horrible cycle of raising money for Rett Syndrome awareness from Rett Syndrome families.

Follow Grace and her mom at @graceforrett on Instagram.

You can also read Elizabeth's amazing article about the importance of growing awareness outside of our community.

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod