This was such a great episode to put together. First off, Sarah found a phenomenal article that helps put in perspective the importance of understanding that as parents of children with special needs, we deal with chronic traumatic stress disorder: we're living it now! And Tracey Hoyng comes back on the show to tell us all about her experience in finding & purchasing her family's first accessible vehicle.

You can read the article that Sarah referenced here.

Be sure to visit Jovie & Tracey's website over at teamjovie.com. You can find out more about Jovie's story and about what Rett Syndrome is.

View Convaid's Carrot 3 Child restraint by clicking here.

The most beautiful cover of Fireflies by Owl City (@collinvodicka)

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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On this week's episode we go deep on a topic that many people see as taboo. Sam shares about his emotional growth thanks to having Zoey in his life, we meet Courtney Coleman who is the mother of Frankie, a girl with Rett Syndrome, and a founder of the nonprofit, Frankie Says Fight Rett.

To find out more about how you can support the great things happening over at Frankie Says Fight Rett, visit their website. You can also check them out on Facebook as well.

This man must be protected at all costs! Daði Freyr – UNO (Little Big Cover)

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

RettSyndrome.org announces their name "change", and Samantha Brant, Family & Community Engagement Manager for International Rett Syndrome Foundation, shares how connecting with others in the community has brought joy to her and so many others. In fact, Samantha was the very first person we met in the Rett Syndrome community! And our family in incredibly grateful for her.

To read the press release regarding International Rett Syndrome Foundation recognizing 15 clinics, click here.

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

On today's episode we talk about Zoey having recently received a grant for hippotherapy! (And no, she doesn't get to play with hippos.) We also sit down with Kourtney Barnum to talk all thing communication, beginning with her experience as a sibling of an individual with Rett Syndrome to special education & communication.

To find out more about hippotherapy, visit the American Hippotherapy Association's website. (Find a Therapist)

For more information on Rett University, be sure to visit their website. It's there that you will be able to connect with Kourtney as well as the other amazing individuals on their team. 

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

On this episode of the pRETTy happy. podcast we take it to the road, figuratively. We talk about all things travel and specifically doing Disney Parks such as Disneyland and Walt Disney World. 

Check out the Travel Safety Bed from Safe Place Bedding: https://safeplacebedding.com/products/safe-place-travel-bed-blue-bed-only 

Baby Millenium Falcon: https://vegandisneyfood.com/hidden-mini-millennium-falcon-on-the-millennium-falcon-in-star-wars-galaxys-edge/

Connect with Lindsay and the awesome team at Smart Moms Travel here: https://smartmoms.typeform.com/to/M4XXpu5N [email protected] 

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

We sit down this week with an AWESOME family from the Midwest. We discuss family fun, education, and their diagnosis story. After you finish listening to the episode, be sure to head over to their Facebook and check them out. 

https://www.facebook.com/fightingforfinley1 

For more information on how you can use AmazonSmile, use this link: https://smile.amazon.com/ 

Don't know if your company provides a match for charitable giving? Use this website to see if they do: https://ww2.matchinggifts.com/search/unh

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

This month we talk about some very exciting news when it comes to treatments for Rett Syndrome! After you listen to the episode, be sure to hop over to this website to read more about it. - https://rettsyndromenews.com/2021/02/12/novartis-seeking-approval-by-years-end-clinical-testing-rett-gene-therapy/

We also sit down with Elaine Moffatt who is the mother of Sierra. Elaine has been homeschooling Sierra for many years so she is a wonderful resource to hear about the ups and downs to having your child carry out their education at home.

To read the 2005 gene therapy study from Kurume University, Kurume, Fukuoka, Japan, click here. 

To review laws and regulations about homeschooling in your state, click here.

Interested in joining the Homeschooling My Child With Rett Syndrome Facebook Group? Click here!

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

Kim Keane who is a licensed Kindermusik educator sits down with us to talk about the importance of music in a child's development. She also shares how you can participate in her weekly classes. You should definitely check them out! Sarah also talks about how there are 2 companies working to receive approval from the FDA to begin gene therapy trials. This could potentially mean that a cure, or at least a therapy, for Rett Syndrome is right around the corner; how exciting!

Read a May 1, 2005 journal on reversing Rett Syndrome: https://www.cell.com/molecular-therapy-family/molecular-therapy/fulltext/S1525-0016(05)00298-4

To join Kim Keane's Kindermusik classes, click here. https://www.facebook.com/groups/560228311336323

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

We had the absolute pleasure of meeting Jill & Bailey Pratt, Co-Founders of The Jiselle Lauren Foundation. Their mission is "...to improve the experience and potential for all special needs kiddos..." They are such wonderful people and we thoroughly enjoyed getting to know the 2 of them and the purpose of the foundation.

To find out more info on The Jiselle Lauren Foundation, visit their website. https://www.thejisellelaurenfoundation.org/

If you'd like to listen to Sam's sister's Disney podcast, check it out here. https://anchor.fm/annie-jimenez

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod

This week we would like to extend a special invitation to all of our listeners to register for the special Mardi Gras fundraising event on February 19th. This event is hosted by the Rocky Mountain Rett Association (RMRA) who manages the Rett Clinic at Children's Hospital in Aurora, CO. The money raised at this event will go towards supporting the continued operation of this clinic for the hundreds of patients who benefit from its resources. More information regarding this event can be found by clicking here or the link below:

https://www.flipcause.com/secure/cause_pdetails/MTAzNzQ0

To find out more information on the Rocky Mountain Rett Association, visit their website at www.rmrett.org.

If you are interested in a Safe Place Bedding, check out their website: www.safeplacebedding.com/

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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Social Media, Podcast Platforms, & more! - https://drum.io/prettyhappypod

Send us a voice message - https://anchor.fm/prettyhappypod