PSPA Podcast

In the first episode of series three of the PSPA Podcast, we speak to Anna from Rare Minds. Anna helps us to unpick the complexities of coming to terms with a diagnosis of PSP or CBD, for both the person diagnosed, and their carer. As well as looking at the different emotions you may experience, Anna also provides some insight and tips to help you understand and process your feelings.

Paul Johnson shares an insight into his first PSP symptoms, his diagnosis and how his interests have changed since his diagnosis.

In this episode, PSPA Research Coordinator, Megan Hodgson talks to Dr Ed Jabbari.

Dr Jabbari has been working in the field of PSP & CBD research since 2016, when he became the Sara Koe Research Follow.

Ed talks about his different research projects, study outcomes and hopes for the future.

In this episode, CEO Rebecca Packwood talks to PSPA's new Director of Policy and Influencing, Mark Jackson.

Mark shares what his role is and the launch of the #WeCare campaign and how people can help amplify our voice in PSP & CBD Awareness week, and beyond.

PSPA Volunteer Coordinator Lavonne McCormack speaks to volunteer Sally Reynolds. Sally shares details of how she become a Support Group volunteer ten years ago. And also how she increased her volunteering support to include being a Link Volunteer.

2024 is a milestone year for PSPA - it marks 30 years since the charity was registered.

In this episode of the PSPA Podcast, CEO Rebecca Packwood shares an insight into what we have planned for this important year.

Highlights of the year include:

As rare diseases, we know diagnosing PSP & CBD can be difficult.

In the second episode of series two of the PSPA Podcast, we talk to Dr Boyd Ghosh about how PSP & CBD are diagnosed, what the challenges can be and what he hopes are for the future to improve diagnosis of the conditions.

In the first episode of our second series of the PSPA Podcast, we talk to Gilda who has been diagnosed with CBD.

Gilda talks about her symptoms, her diagnosis and how she has adapted her home and hobbies to ensure she remains active and independent, for as long as possible.

Tune into Gilda's personal experience and planning tips today!