In this episode we talk to Scott Smith about the inspiration behind his Ed’s Lace Awareness campaign and how he feels about it relaunching in 2022.

In this episode we speak to PSPA’s Director of Engagement, Carol Amirghiasvand, about PSPA’s new carers support groups. PSPA Volunteer Caroline Woodcock also joins us to speak about how her granny inspired her to volunteer for PSPA and host carer pamper sessions.

Katy Butterill joins us for this episode to share why she chose to take on a walking challenge in honour of her mum, who is living with PSP.

Ewan Phillips joins us to share his experience of Advance Care Planning with her mum, who was living with a diagnosis of PSP.

OT Julie Cummins joins us for the seventh episode of the PSP podcast to advise about making adaptations in your home. Julie draws from her experience as an OT but also from her personal experience of PSP too.

Samanta and Chris join us to chat about their experience of voice banking with SpeakUnique.

In this episode we chat to Sue Wilsea who shares details about her husband Mike, his PSP diagnosis and how they explained the condition to their friends and family.

In our fourth episode we talking about caring for a parent. Claire Wells joins us to share her experience of her mum’s CBD diagnosis, her care routine with her mum and gaining Essential Care Giver status after her mum moved into a care home.

In our third episode we talk about delayed diagnosis. Denise Hunt and Navin Sewak share their experiences of their mums receiving a delayed diagnosis, the impact this had on the family and the care they received. They also share why raising awareness is so important.

In our second PSPA Podcast we talk to Julia Tickridge. Julia shares details of caring for her husband Laurie who is living with a diagnosis of evolving PSP. Julia also talks about where she has found support in her role as a carer.