An organization out there to help meet the changing needs of patients & families?! We are all about that!

Katherine Lacouture of Help. Hope. Live. (HelpHopeLive.org) discusses the mission of her team -- medical fundraising for the expenses insurance doesn't cover!

We discuss how HHL has a different fundraising model from typical crowdfunding, what community building look like both online & offline -- and how you can get more information for you and your loved ones!

It's the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!

See omnystudio.com/listener for privacy information.

Why is palliative care so important in ILD, especially in early diagnosis? How would you define palliative care, especially in the context of ILD?

Dr. Gillian Love of the Division of Palliative Care with Jefferson Health joins Crockett to discuss these questions and more in the 'Pulmonary Fibrosis' podcast!

Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!

See omnystudio.com/listener for privacy information.

How does ILD typically present in women vs. men? Any noticeable difference in symptoms?

Are there types of ILD that are more common in women than in men?

These are the questions we discuss in this episode of the 'Pulmonary Fibrosis' podcast! Jen Wescoe and Dr. Rachel Criner of Temple Lung Center discuss women and ILD, the mental health of women battling ILD, and great resources you can use to join clinical trials to help beat this disease!

The 'Pulmonary Fibrosis' podcast is brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!

See omnystudio.com/listener for privacy information.

The timeline of diagnosis, to possible transplant recipient -- to post-transplant can feel like a whirlwind for patients and caregivers.

Marion Marin, a lung transplant recipient, joins the show to discuss how that process went for her! She discusses advocating for yourself, waiting for 'the call' -- and the importance of the community around you when physically and emotionally dealing with a diagnosis!

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts!

Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

See omnystudio.com/listener for privacy information.

What is the difference between Palliative Care & Hospice, and why important to discern the difference?!

Dr. Kathleen Lindell of the Medical University of South Carolina joins the show to discuss why Palliative Care can be such an important piece of both the patient and caregivers role in the ILD journey.

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts!

Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

See omnystudio.com/listener for privacy information.

Everyone can have a role in the Pulmonary Fibrosis community! Whether that's as a patient, a caregiver and beyond -- information is key to helping tackle all things PF.

This episode, we're joined by John Marshall and Dr. Ilene Hollin of Temple University Lung Center to discuss the importance of patient engaged research, and how you can be involved in the research as well!! We'll learn more about PCORI and Convene-PF, and how you can participate in the studies!

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

See omnystudio.com/listener for privacy information.

2024 was an AMAZING year for the 'Pulmonary Fibrosis' podcast!

We have been downloaded in 74 countries around the world, and can't wait to continue to explore all avenues that connect the ILD community!

Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss some of the tremendous moments of 2024, and what's in store for 2025!

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

See omnystudio.com/listener for privacy information.

How is the Veteran community impacted by Interstitial Lung Disease? What are some helpful resources to help Veterans navigate ILD?

Dr. Dean (Trey) Kellogg of UT Health San Antonio joins the show to discuss Veterans and ILD!

It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

See omnystudio.com/listener for privacy information.

What is the role of a Research Coordinator in clinical trials? Why are clinical trials so important -- especially when discussing Interstitial Lung Disease?

Rachel Nwafo of Temple Lung Center tells us about her role, and the path she took to get there!

It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

See omnystudio.com/listener for privacy information.

How can spirituality, in all denominations and perspectives, be beneficial for one managing Interstitial Lung Disease?

How does the family dynamic help in managing this part of one diagnosis?

Dr. Patricia Fogelman, and Author/Pastor/Double Lung Transplant recipient Tim Cox join the show to discuss the role spirituality can play when battling disease in the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

See omnystudio.com/listener for privacy information.