Radio Rare

There are so many things we wish we could un-say and take back, but sadly, it doesn't work that way.

So here's the next best thing, 3 Golden Rules to help you say the right thing to someone going on a cancer journey.

We've also included a few things we've heard or have been said to us at RCA, so you can see how much impact words really have.

Rare Bites is our new short-form podcast series where we take a look at complicated topics and questions in the cancer space and bring you some bite-sized answers.

In episode one, we look at Sex, Intimacy, and where they fit into the cancer experience.

Do people with cancer have sex? How can you be intimate while living with cancer? And what about masturbation? These are important questions that need to be answered, and our team is here to help.

This episode features Dr. Emily Isham and James Mathews of Rare Cancers Australia, with a special guest, Ross Jacobs, of Canteen Australia.

You can find the Cancer Council PDF here.

For our final episode of Radio Rare, we chat to Rare Cancers Australia (RCA), CEO, Richard Vines as he pulls back the curtain and talks about how RCA came to be and why the need is so great.

All clips in this episode can be found in Season One of Radio Rare.

Ben shares the heartfelt cancer journey of his family when his wife Donna was first diagnosed with a rare cancer. He recounts from the time of the first biopsy, through the ups and downs that no-one sees coming.

Motor Events 2020

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Today's episode is sponsored by Care Connected

Hosam is a father of 3 and a dentist by career. In 2009, he was diagnosed with a rare type of brain cancer and in this episode of Radio Rare, he shares the strange experience that he had when he was first diagnosed and describes the highs and lows of his rare cancer journey.

Today's episode is sponsored by Care Connected

As precision medicine looks to provide new hope to cancer patients, we speak to Professor Sean Grimmond from the Melbourne University Centre of Cancer Research. Professor Grimmond discusses how far Genomic sequencing has come and how much further it will go.

Today's episode is sponsored by Care Connected

To round out Sarcoma Awareness Month we speak to Ewing Sarcoma survivor and member of the ANZSA consumer advisory panel, Julijana Todorovic. Julijana was diagnosed at the age of 22 and dives into how a cancer experience can feel as though you are at a crossroads.

From working in the mines in Queensland to having a life-changing CT scan which revealed a lump on the brain. Luke Bourne shares his 5-year experience of living with an incredibly rare cancer known as Alveolar Soft Part Sarcoma.

Lifeline: https://www.lifeline.org.au/

Beyond Blue: https://www.beyondblue.org.au/

Dr Denise Caruso, CEO of the Australia and New Zealand Sarcoma Association, ANZSA, chats with Dr Emily Isham about sarcomas, clinical trials for rare cancers, and how to educate without inducing paranoia.

20% of childhood cancers in Australia are Sarcoma. Tania Rice-Brading, co-founder of the Cooper Rice-Brading foundation shares why she is passionately striving for more sarcoma research and we also hear the emotional story of who the Cooper behind the Cooper Rice-Brading Foundation is.

A note that the conversation contains stories of childhood cancer which may be upsetting for some listeners. Please reach out to your support network if you are affected or call Lifeline on 13 11 14.