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Rare Care Podcast
Rare Care Podcast episodes
- An Interview With High-School Senior Aarush Shah, Cofounder of the Rare Disease Platform OAI Nexus
Larry Luxner, senior correspoondent for Rare Disease Advisor, interviews Aarush Shah, a high-school senior who, along with classmate Veer Chandwani, recently established OAI Nexus, the first public AI platform built exclusively for rare diseases.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
13 min - An Interview With Dr. Doug Flora on How AI Can Help Diagnose and Treat Cancer
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Doug Flora, MD, about his new book, "Rebooting Cancer Care: Can AI Make Care More Human Again?"
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
14 min - An Interview With Donna Appell, Founder of the Hermansky-Pudlak Syndrome Network
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donna Appell, founder and executive director of the Hermansky-Pudlak Syndrome Network. Patients with the most common type of this rare disease always develop pulmonary fibrosis.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
10 min - An Interview With Rich Savino, Grandfather of a Boy With Duchenne
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rich Savino, a New Jersey grandfather of a boy with Duchenne muscular dystrophy. Savino, 71, is among a growing number of grandparents becoming advocates for patients affected by DMD.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
15 min - An Interview With Oncologist and Podcaster Kimberly Ku, MD, on 'Empathetic Communications'
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kimberly Ku, MD, an oncologist with Illinois Cancer Center and host of the podcast "Val-You Based Care,"
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
15 min - An Interview With Christine Clemson, PhD, of Entrada Therapeutics
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Christine Clemson, PhD, senior vice-president and global head of medical affairs at Entrada Therapeutics, about exon skipping therapies in Duchenne.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
12 min - An Interview With Avril Daly, President of Eurordis-Rare Diseases Europe
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Avril Daly, president of Paris-based Eurordis-Rare Diseases Europe, on how the EU is falling behind in clinical trials for rare diseases.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
15 min - An Interview With Jim Palma, CEO of TargetCancer
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jim Palma, CEO of the TargetCancer Foundation, a nonprofit organization that focuses on finding treatments for rare cancers.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
10 min - An Interview With Dr. Paul Esteso on Cardiac Health in Duchenne
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Duchenne expert Paul Esteso, MD, PhD, medical director of the cardiac antithrombosis management program at Boston Children's Hospital.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
12 min - An Interview With Teresa Barnes, Founder of PF Warriors
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Teresa Barnes, founder of PF Warriors—a global support network that provides education, inspiration and hope to individuals and families affected by pulmonary fibrosis.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
13 min
About Rare Care Podcast
From the publisher's feed
Rare Disease Advisor's Rare Care podcast features conversations with experts, healthcare providers, patients, caregivers, and advocates about treating and living with rare diseases.