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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 165 episodes available.
June 16, 2026An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation...more22minPlay
June 16, 2026An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research FoundationLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Naomi Aziz, patient advocacy and engagement lead at the Endometrial Cancer Research Foundation. June is Uterine Cancer Awareness Month, and endometrial cancer now ranks as the nation's most common gynecologic cancer....more22minPlay
June 09, 2026An Interview With Dr. Michelle Ng Gong, New President of the American Thoracic SocietyLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Michelle Ng Gong, MD, president of the American Thoracic Society (ATS). Dr. Gong formally replaced Raed Dweik, MD, at the ATS 2026 conference in Orlando, Florida....more12minPlay
May 31, 2026An Interview With Dr. Andrew Wilson, Scientific Director of the Alpha-1 FoundationLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrew Wilson, MD, scientific director of the Alpha-1 Foundation, about the latest therapies to treat alpha-1 antitrypsin deficiency, an incurable genetic disease that causes both lung and liver damage....more8minPlay
May 26, 2026An Interview With Dr. Vallerie McLoughlin, Director of the University of Michigan's Pulmonary Hypertension ProgramLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Vallerie McLoughlin, MD, director of the Pulmonary Hypertension Program at the University of Michigan-Ann Arbor, about results of a phase 3 trial for ralinepag to treat pulmonary arterial hypertension....more10minPlay
May 18, 2026An Interview With Craig Martin, Founder and CEO of the Orphan Therapeutics AcceleratorLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Craig Martin, founder and CEO of the Orphan Therapeutics Accelerator (OTXL) — a nonprofit biotech dedicated to advancing shelved clinical-stage therapies for ultrarare diseases....more15minPlay
May 14, 2026An Interview With Henriette Farkas, Director of the Hungarian Angioedema Reference Center in BudapestLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Henriette Farkas, MD, PhD, director of the Hungarian Angioedema Reference Center in Budapest, and a world expert on the treatment of HAE....more14minPlay
May 04, 2026An Interview With Dr. Antón Blatnik on the Molecular Mechanisms Driving Neuromuscular DiseaseLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Antón Blatnik, PhD, who recently won a $150,000 grant from Cure SMA to study the molecular mechanisms that drive neuromuscular disease and gene expression....more12minPlay
April 27, 2026An Interview With SMA Expert and Neurologist Dr. Kathryn SwobodaLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Kathryn Swoboda, MD, faculty emerita at Massachusetts General Hospital and a neurologist and rare disease specialist who's been working on SMA for nearly 30 years....more15minPlay
April 20, 2026An Interview With Dutch Neurologist Ewout Groen of SMA EuropeLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Dutch neurologist Ewout Groen, PhD, a member of the Scientific Advisory Board of SMA Europe....more9minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 165 episodes available.