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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 158 episodes available.
December 17, 2025An Interview With Dr. Matthew Might on How AI Could Transform Genome-Guided MedicineLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Alabama computer scientist Matthew Might, PhD, on how his son's death from a rare genetic disease led him to become an expert in AI and precision medicine....more11minPlay
December 08, 2025An Interview With Dr. Sarah Chang on the Patient and Caregiver Burden of TK2dLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Chang, PhD, about the patient and caregiver burden associated with the ultra-rare mitochondrial disease TK2d....more11minPlay
December 03, 2025An Interview With Rheumatologist Jinoos Yazdany on the Dangers of Artificial IntelligenceLarry Luxner, senior correspondent for Rare Disease Advisor, interviews rheumatologist Jinoos Yazdany, MD, on the potentially catastrophic medical, ethical and legal consequences of relying too much on AI....more17minPlay
November 24, 2025An Interview With Dr. Barry Byrne, Director of the UF Powell Gene Therapy CenterLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Barry Byrne, MD, PhD, an expert on Pompe disease and director of the University of Florida's Powell Gene Therapy Center....more13minPlay
November 19, 2025An Interview With Rheumatologist Eric Matteson, Winner of the ACR's 2025 Presidential Gold MedalLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Eric Matteson, MD, of the Mayo Clinic and winner of the American College of Rheumatology's 2025 Presidential Gold Medal....more17minPlay
November 11, 2025An Interview With New Mexico Patient Ambassador Karen Smoot of the Pulmonary Fibrosis FoundationLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Karen Smoot, a resident of New Mexico who has both idiopathic pulmonary fibrosis and pulmonary arterial hypertension. Karen is a patient ambassador for the Pulmonary Fibrosis Foundation....more16minPlay
November 04, 2025An Interview With Gabriela Romanow, Founder of Rare Vision, a Project That Helps Artists With Rare Neuroimmune DiseasesLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Gabriela Romanow, founder of Boston, Massachusetts-based Rare Vision. The project showcases works by artists with rare neuroimmune diseases such as NMOSD, MOGAD and transverse myelitis....more9minPlay
October 29, 2025An Interview With Lisa Shea, Director of Global Patient Advocacy and Engagement for Immunology at Johnson & JohnsonLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Shea, director of global patient advocacy and engagement for immunology at Johnson & Johnson, about the experiences of patients affected by HDFN and FNAIT....more8minPlay
October 22, 2025An Interview With Dr. Nicole Lamanna, Leukemia Specialist at Columbia University Medical CenterLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Nicole Lamanna, MD, a leukemia physician specializing in CLL treatment at Columbia University Medical Center in New York City....more12minPlay
October 15, 2025An Interview With Dr. May Lee Tjoa, Maternal and Fetal Immunology Expert at Johnson & JohnsonLarry Luxner, senior correspondent for Rare Disease Advisor, interviews May Lee Tjoa, PhD, senior global medical affairs leader for Johnson & Johnson's nipocalimab and maternal-fetal immunology division....more12minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 158 episodes available.