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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 158 episodes available.
July 14, 2023An Interview With Pediatrician and Medical Cannabis Specialist Bonni Goldstein, MDLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Bonni Goldstein, MD, a Los Angeles-based pediatrician and medical cannabis specialist who has treated more than 18,000 patients, 80% of whom are children with various forms of epilepsy, including Dravet and Lennox-Gastaut syndromes....more13minPlay
July 07, 2023An Interview With Jason Sicklick, MD, FACS, an Expert on Gastrointestinal Stromal TumorLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Jason Sicklick, MD, FACS, an expert on gastrointestinal stromal tumor (GIST), ahead of July 13, GIST Awareness Day. Dr. Sicklick's laboratory focuses on the molecular mechanisms of GIST development and drug resistance in advanced GIST....more15minPlay
June 30, 2023An Interview With Kattayoun Kordy, MD, Senior Director of Rare Disease Clinical Development/Immunology at JanssenLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Kattayoun Kordy, MD, senior director of rare disease clinical development/immunology at Janssen. She discusses her company's clinical trials for nipocalimab, an intravenous infusion that aims to treat hemolytic disease of the fetus and newborn (HDFN)....more11minPlay
June 21, 2023An Interview with Denise Scots-Knight, PhD, CEO of Mereo BioPharma Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Denise Scots-Knight, PhD. Her UK-based company, Mereo BioPharma, is developing therapies for alpha-1 antitrypsin deficiency....more12minPlay
June 16, 2023An Interview with Al Freedman, PhDLarry Luxner, senior correspondent for Rare Disease Advisor, interviews psychologist Al Freedman, PhD, whose late son Jack had spinal muscular atrophy. Dr. Freedman specializes in counseling families of those affected by rare disease....more16minPlay
June 09, 2023An Interview with Kim Smith-Whitley, MDLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Kim Smith-Whitley, MD, a pediatric hematologist and top Pfizer execuive specializing in the treatment of sickle cell disease....more16minPlay
June 06, 2023An Interview with Jason Tardio, Chief Operating Officer of Ovid TherapeuticsLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Jason Tardio, chief operating officer at Ovid Therapeutics,...more13minPlay
May 30, 2023An Interview With Jennifer MacDonald, a Woman From Mexico With AATDLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Jennifer MacDonald—who has alpha-1 antitrypsin deficiency— about the difficulties of being a rare disease patient in Mexico....more14minPlay
May 30, 2023An Interview With Mindy Henderson, Editor-in-Chief of MDA's Quest MagazineLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Mindy Henderson, an SMA patient who is editor-in-chief of Quest, the quarterly magazine of the Muscular Dystrophy Association....more14minPlay
May 19, 2023An Interview With DMD Patient Advocate Christopher CurranLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Christopher Curran, who along with his wife, Jessica, founded Kindness Over Muscular Dystrophy to advocate for patients like their 12-year-old son, Conner, who has Duchenne muscular dystrophy....more16minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 158 episodes available.